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  1. Past hour
  2. Grit
    Grit joined the community
  3. Today
  4. Flash1970 started following Can someone help explain my labs?
  5. Flash1970
    I never had bad stomach issues before I was diagnosed. What I did have was anemia and hashimoto's thyroid disease. The celiac was suspected because I had to keep taking higher and higher doses of synthroid just to try to get out of hypothyroidism and also the unresolved anemia. Once I had the blood tests, celiac was confirmed.
  6. Mari started following Retirement/assisted living facility and cross contamination in the kitchen and Is Thiamine Deficiency the Beginning of Celiac Disease?
  7. Mari
    It is rather amazing to me that I was able to follow, in a general way, your reasoning in this scientific thesis. It is very good work on your part taking different research papers and tying the information together if not for a cure for celiac disease, the ability to decrease the symptoms of celiac disease and other autoimmune conditions. Now if you can...
  8. Mari
    Hi Kelly, We have had at keast 2 discussions abour people with Celiacs moving into assisted living. . No easy solutens to the problems Celiacs face when they cannot eat the food served so they need to prepare their own meals or order gluten-free meals. You seem to be coping quite well. It is not clear to me whether you are suffering because you miss...
  9. Flash1970 started following Why Some People Develop Celiac Disease Instead of Type One Diabetes?
  10. Flash1970
    Very interesting article. My father had type one diabetes. I was always worried I would develop diabetes. I must have had the group that gave me celiac disease. I knew both were autoimmune diseases, but not how closely they were linked.
  11. icon Aretaeus Cappadocia reacted to a post in a topic: Struggling with gluten challenge and not sure it’s worth it - looking for advice / experiences / encouragement
  12. icon Aretaeus Cappadocia reacted to a post in a topic: Struggling with gluten challenge and not sure it’s worth it - looking for advice / experiences / encouragement
  13. Rory Bokser started following Tracking food triggers with elimination diets — tried Tract app?
  14. Rory Bokser
    Hi everyone, I've been struggling with identifying food triggers beyond gluten — things like dairy, soy, corn, and various FODMAPs. Elimination diets are incredibly helpful but the tracking part is a real pain. I recently came across an app called Tract (tract.health) that's specifically designed for gut health tracking with IBD, ...
  15. Monkey67
    Monkey67 joined the community
  16. Sheree28
    Sheree28 joined the community
  17. HectorConvector
    I take B12 and Vitamin D (1000 I.U) as well. I can't take 500mg twice a day, only once due to cost reasons. I'm getting more than the minimum rda of Niacin in my diet but not supplementing it.
  18. Scott Adams
    You’re partly right—non-celiac gluten sensitivity is generally considered independent of HLA-DQ2 and HLA-DQ8, meaning people can have it without carrying those genes. However, some individuals with non-celiac gluten sensitivity do still have one or both of those genes, so there’s some overlap. The key difference is that, unlike celiac disease, those genes...
  19. Scott Adams
    This was an oversight, which we updated, thank you!
  20. Landiak
    Landiak joined the community
  21. Yesterday
  22. trents
    @Aretaeus Cappadocia, yes it is. And we know that OP doesn't have either of those genes. But we also know that not having DQ2/DQ8 is not quite a slam dunk rule out for celiac disease.
  23. Aretaeus Cappadocia started following Struggling with gluten challenge and not sure it’s worth it - looking for advice / experiences / encouragement
  24. Aretaeus Cappadocia
    @trents Just clarify, isn't NCGS independent of HLA-DQ2/HLA-DQ8?
  25. trents
    Yes, you can buy powdered gluten on Amazon or at many health food stores and, as knitty kitty said, add it to food or shakes after weighing it out. That takes the guess work out of it.
  26. knitty kitty
    My cat bumped me while typing to remind me it's his dinner time. LoL
  27. trents
    knitty kitty, was there more to that thought?
  28. knitty kitty
    I'm so glad I could help! Make it a "Bon Voyage" party and treat yourself to all your gluten-y favorite foods in the coming weeks. Chewy breads have more gluten in them than cakes and cookies. Think thick pizza crust, rolls and such. Vital wheat gluten can be weighed out and sprinkled into meals.
  29. trents
    It is true that we don't have a clear understanding of NCGS. Some experts feel it can be a precursor to celiac disease. Most people assume it to be more of a uncomfortable/inconvenient condition than something damaging to your health as is the case with celiac disease but I'm not sure we know all there is to know in that regard.
  30. icon knitty kitty reacted to a post in a topic: Struggling with gluten challenge and not sure it’s worth it - looking for advice / experiences / encouragement
  31. smiths
    @knitty kitty thank you for your reply too! I don’t fully understand the test results, but the interpretation section only mentions HLA DQ 2 and HLA DQ 8. So I think likely they only tested for those. I also don’t think my doctor is especially knowledgeable in this area even though he’s a gastroenterologist. When I asked him how much I need to eat for the g...
  32. knitty kitty
    Are you taking your B Complex a magnesium, too? Thiamine needs B 6 Pyridoxine, Riboflavin B2 and Niacin B 3. There's sulphur in thiamine, so it can make urine smell funny. Asparagus does the same thing. It's harmless. Molybdenum helps process sulphur out of the body. Have you tried taking 500 mg twice a day? Have you tried taking...
  33. smiths
    Thank you both for replying! I wasn’t sure anyone would answer, let alone leave such supportive replies. It helps a lot just to hear that I’m not crazy and be reminded that I don’t need a celiac diagnosis on paper for my improvement to be real. If I continue to feel better on a gluten free diet I’m truly grateful even if I don’t get to understand exactly w...
  34. knitty kitty started following Struggling with gluten challenge and not sure it’s worth it - looking for advice / experiences / encouragement
  35. knitty kitty
    @smiths, I'm curious about the genetic test. Some doctors only test for the two most commonly found Celiac genes HLA DQ 2 and HLA DQ 8, mostly found in people of Northern European descent. However, there are other genes, HLA DQ 5, 7, and 9, that denote Celiac disease in other populations from the Mediterranean, Asia, and others around the world. You...
  36. icon Aretaeus Cappadocia reacted to an article: Rethinking Celiac Follow-Up: How Virtual Annual Reviews May Transform Long-Term Care
  37. Laura started following When "Gluten Sensitivity" Isn't Gluten: The Tick-Borne Condition Many Doctors Miss (+Video)
  38. Laura
    I don't understand why this whole article never mentions alpha-gal syndrome except in the tags. That's the common name of the allergy the article is about, and it seems like important information for people to have.
  39. ggsimmons
    ggsimmons joined the community
  40. Annie Bostelaar
    Annie Bostelaar joined the community
  41. Rory Bokser
    Rory Bokser joined the community
  42. icon Scott Adams reacted to a post in a topic: Struggling with gluten challenge and not sure it’s worth it - looking for advice / experiences / encouragement
  43. Scott Adams
    Very good point! Total IGA should always be part of a blood test for celiac disease. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because...
  44. icon Scott Adams reacted to a post in a topic: Is it celiac?
  45. HectorConvector
    I've been on the hydrochloride for over a week now. No difference in nerve symptoms so far. Only difference I've noticed is my it smells a bit different, less umami and more "musty" or pungent smelling both in the bottle and in my pee lol.
  46. brittanyburket
    brittanyburket joined the community
  47. Kathy koch
    Kathy koch joined the community
  48. icon sc'Que? reacted to an article: Is Mustard Gluten-Free? What People with Celiac Disease Should Know
  49. icon knitty kitty reacted to a post in a topic: Is Thiamine Deficiency the Beginning of Celiac Disease?
  50. icon knitty kitty reacted to a comment on a blog entry: Is Thiamine Deficiency the Beginning of Celiac Disease?
  51. trents started following Struggling with gluten challenge and not sure it’s worth it - looking for advice / experiences / encouragement
  52. trents
    Hello, @smiths! Even if you don't have celiac disease you could still have NCGS (Non Celiac Gluten Sensitivity). There is real overlap in the symptoms, especially in the GI area. Both conditions require the elimination of gluten from your diet. The difference is that celiac disease is an autoimmune disorder and does damage to the lining of the small bowel...
  53. trents
    @Lintol, what kind of symptoms do you experience when you throw caution to the wind and eat significant amounts of gluten? Are the symptoms unbearable? I'm asking because I'm wondering how feasible it would be for you to undertake a rigorous "gluten challenge" now and create the conditions for valid testing so as to get a definitive answer of whether...
  54. Last week
  55. Scott Adams
    You’re definitely connecting some real dots here, and your thinking isn’t off base—but it’s important to separate what’s established from what’s still theoretical. There is good evidence that HIF-1α and hypoxia-related pathways are involved in inflammation and are elevated in celiac disease tissue . And separately, thiamine deficiency can push cells t...
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