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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- Mettedkny posted a topic in Gluten-Free Foods, Products, Shopping & Medications0crunchmaster Searching for the source - anyone have problems with Crunchmaster crackers?
Hi everyone, I am on a mission to figure find the source of a hidden gluten in my diet, and I would greatly appreciate help. I have been diagnosed with celiac disease for 17+ years, NEVER had an issue, has always had "perfect" numbers and after healing, no damage to my intentional lining (had an endoscopy done a month ago which did not show any signs... -
- Scott Adams replied to Waterdance's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms18Diagnosed gluten allergy but not Celiac
Celiac disease is an autoimmune disorder, not something one "outgrows"; the historical belief that children did has been completely debunked by modern science. The immune response to gluten is lifelong. Furthermore, the idea that a strong immune system can "subdue" celiac disease is incorrect—the disease is the immune system mistakenly attacking the body. ... -
- Mettedkny replied to Mettedkny's topic in Gluten-Free Foods, Products, Shopping & Medications24
Progesterone pills - are they gluten free??
Thank you for your comment Daisyskd - I do not have a soy or peanut allergy (I have many others, but not these) so that was never a concern for me. I still have not figured out where my high numbers are coming from. Had an endoscopy done, which shows NO damage (yay) but my high numbers are still unexplainable. Very frustrating. I have a meeting with my celiac...- high gluten
- hormone-related
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- Sarawiththeceliac replied to Sarawiththeceliac's topic in Related Issues & Disorders5Untreated celiac
But I think consuming vitamins without absorbtion it might make kidney issues I don't want any other problems I try to take vitamins every week or 5 days till I complete 3 months with strict gluten, also how much should I wait for the villi to become normal? -
- Kimmy88 posted a topic in Related Issues & Disorders0New Celiac Disease patient & new to this group-Questions
Hi Everyone, I was just diagnosed with Celiac Disease and I am also new to this group. I am overwhelmed by thinking of all the products you ingest including prescription medications, and even toothpaste. Do people contact the manufacturer ? What toothpaste is gluten-free? I was able to find a chewing gum that was gluten-free. Any help or direction would...
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Hi everyone, I am on a mission to figure find the source of a hidden gluten in my diet, and I would greatly appreciate help. I have been diagnosed with celiac disease for 17+ years, NEVER had an issue, has always had "perfect" numbers and after healing, no damage to my intentional lining (had an endoscopy done a month ago which did not show any signs of damage). My son, who also has celiac disease has perfect numbers, and is my "blind study" on this mission. Over the past year my IgG numbers have gone up from 3 to 93 (normal range under 15), my IgA is 1.5 (normal range below 15, and has not changed all this time). At first I thought it might be my "new" (started a year ago) Progesterone pills, which I checked were gluten-free before starting. I spoke to Aurobindo (the manufacturer) and they assured me that there is no gluten in the pills, but cannot state they are gluten-free. I have asked in this forum regarding the pills to see if anyone else is having an issue, which does not seem to be the case and it does not seem likely that they are the culprit. I have stopped eating lunch at my job (which I have done previously without issue for 10+ years) to see if that would make a difference. After 3 months of bringing my own lunch, I can report that that was not the culprit either. I do not eat out, eat home cooked meals, in a 100% gluten-free kitchen and have never in my first 16 years of diagnosis had any problems at all. My latest idea is that perhaps it could be the Crunchmaster multigrain crackers, something that my son does not eat. The crackers are certified gluten free and have been my go-to food for a long time - but could they really be the problem? I am at my witts end but I am determined to find the source of the problem. The strange thing is I have NO signs of being glutened (I am very sensitive and get a reaction at the slightest crosscontamination = mouth ulcers and the worse), and as I said, have no damage to my intestine. Any suggestions?? Thank you all for your help.
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By Scott Adams · Posted
Celiac disease is an autoimmune disorder, not something one "outgrows"; the historical belief that children did has been completely debunked by modern science. The immune response to gluten is lifelong. Furthermore, the idea that a strong immune system can "subdue" celiac disease is incorrect—the disease is the immune system mistakenly attacking the body. Symptoms manifest due to this autoimmune response, not because the immune system is too weak to suppress it. Finally, wheat is not chemically addictive, though the habit of eating it can be powerful and difficult to break. While maintaining adequate Vitamin D is crucial for overall immune function and bone health in celiac patients, this theory overstates its role. Vitamin D deficiency is a common consequence of celiac disease due to malabsorption in a damaged gut, not a proven root cause of its onset. The claim that high-dose Vitamin D can effectively neutralize the systemic autoimmune reaction to gluten is not supported by clinical evidence; a strict gluten-free diet remains the only known treatment. Furthermore, recommending a daily intake of 10,000 IU is potentially dangerous without medical supervision, as it can lead to hypercalcemia and kidney damage, despite newer, higher safety thresholds. -
Thank you for your comment Daisyskd - I do not have a soy or peanut allergy (I have many others, but not these) so that was never a concern for me. I still have not figured out where my high numbers are coming from. Had an endoscopy done, which shows NO damage (yay) but my high numbers are still unexplainable. Very frustrating. I have a meeting with my celiac doc this week and I am very curious as to what he might suggest.
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By Sarawiththeceliac · Posted
But I think consuming vitamins without absorbtion it might make kidney issues I don't want any other problems I try to take vitamins every week or 5 days till I complete 3 months with strict gluten, also how much should I wait for the villi to become normal? -
Hi Everyone, I was just diagnosed with Celiac Disease and I am also new to this group. I am overwhelmed by thinking of all the products you ingest including prescription medications, and even toothpaste. Do people contact the manufacturer ? What toothpaste is gluten-free? I was able to find a chewing gum that was gluten-free. Any help or direction would be appreciated.
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