Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Glutened Myself :(

DutchGirl

By DutchGirl
in Coping with Celiac Disease

Recommended Posts

DutchGirl Apprentice
DutchGirl
Posted

I was grocery shopping today and got so hungry that I had the shakes. I'm newly diagnosed so it never even crossed my mind to check the label. I grabbed a protein bar at the store and ate it when I got to the car. I'm so sick and my DH on my scalp is itching like crazy. Does it become second nature to check every label? I can't believe I did that, it didn't even cross my mind at that moment.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFreeMO Proficient
GFreeMO
Posted

So sorry that you got hit!  It happens to us all.   It will become second nature to you and you will know what you can and can't grab in situations like you had today.  I usually grab Sunmaid raisins and a banana or an orange juice until I can get home for a more substantial meal.

 

Hope you feel better soon!  

flowerqueen Community Regular
flowerqueen
Posted

I would think it will be now, after being ill through eating gluten! Read everything twice, to make sure you are not eating something you shouldn't. Also, it would be a good idea to have an emergency gluten free snack bar of some description with you, so if you find yourself in the same situation, you don't just buy the first thing you see. Hope you feel better soon.

DutchGirl Apprentice
DutchGirl
Posted
  • Author

Thank you both, I think I probably learned my lesson. I have been so extra careful since my diagnoses and it's as if I lost my brain this morning. I feel like I'm starting from scratch again, I had been gluten free and now I'm not. Grrr!

Monklady123 Collaborator
Monklady123
Posted

Thank you both, I think I probably learned my lesson. I have been so extra careful since my diagnoses and it's as if I lost my brain this morning. I feel like I'm starting from scratch again, I had been gluten free and now I'm not. Grrr!

 

Lol about "lost my brain". Yes, sadly I bet we've all done that.  I remember the day I ate four or five

Newman's "oreo" cookies. "Wheat free" it said on the package. um yeah,

wheat free but not gluten free (barley malt was in them). sigh. Then

there was the rice from the Mediterranean place nearby where we often

get take-out. Yep, cooked in broth that had wheat in it.  And I'm sure

there are a few more that I'm not remembering. I've probably blocked

them out so as not to embarrass myself. :ph34r:

 

Yes, it does become habit to read every label. But there's a learning curve, and I still fall off of it sometimes. :P

 

Hope you feel better.

DutchGirl Apprentice
DutchGirl
Posted
  • Author

Lol about "lost my brain". Yes, sadly I bet we've all done that.  I remember the day I ate four or five

Newman's "oreo" cookies. "Wheat free" it said on the package. um yeah,

wheat free but not gluten free (barley malt was in them). sigh. Then

there was the rice from the Mediterranean place nearby where we often

get take-out. Yep, cooked in broth that had wheat in it.  And I'm sure

there are a few more that I'm not remembering. I've probably blocked

them out so as not to embarrass myself. :ph34r:

 

Yes, it does become habit to read every label. But there's a learning curve, and I still fall off of it sometimes. :P

 

Hope you feel better.

Yes, the "wheat free" thing gets me. Do companies do that on purpose to confuse people with gluten issues? Sheesh!!

I still don't have down all of the "other" names for gluten so I've just been not eating something if I don't recognize the ingredients. I just can't believe I did that. I'm SO itchy know, it's driving me nuts. Not to mention all of the other undesirable symptoms I've got going on. YUCK!

shadowicewolf Proficient
shadowicewolf
Posted

Nope, you still have to read the package.


Other names? If its got wheat, its gotta be disclosed. Rye is kinda obvious as its normally used in breads and bagels. Barley? This too will be labeled, generally as a malt. This is all in the US, by the way. I've yet to see gluten "hidden" in things.

 

I always eat before i go shopping. When i don't eat and its been a while I get hit with a bad case of low blood sugar (shakes, jitters, etc).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Yes, the "wheat free" thing gets me. Do companies do that on purpose to confuse people with gluten issues? Sheesh!!

I still don't have down all of the "other" names for gluten so I've just been not eating something if I don't recognize the ingredients. !

In the US and Canada - wheat has to day " wheat". Or what type of wheat it is like spelt. But those " fancy" wheat isn't used in most regular stuff. Barley will say " malt" or use the word barley. Rye isn't really in anything but Rye bread type things.

I always carry a packet of nuts or a nut bar like Open Original Shared Link

DutchGirl Apprentice
DutchGirl
Posted
  • Author

By "other names" I meant that long list of forbidden foods, they don't all say, wheat, rye, and barley. Or some spices have an anti-caking agent that contains gluten. I guess I'm just very overwhelmed by all of the unknowns. :wacko:  And while I had the shakes this morning I was feeling frantic and needed to eat. I'm considered pre-diabetic so I get hit with low blood sugar sometimes and it seems to always hit in the grocery store check out line for some reason.

 

I picked up some Larabars today and stuck some in my purse and some in my van. Hopefully that will help next time I'm in that situation! :D

pricklypear1971 Community Regular
pricklypear1971
Posted

By "other names" I meant that long list of forbidden foods, they don't all say, wheat, rye, and barley. Or some spices have an anti-caking agent that contains gluten. I guess I'm just very overwhelmed by all of the unknowns. :wacko: And while I had the shakes this morning I was feeling frantic and needed to eat. I'm considered pre-diabetic so I get hit with low blood sugar sometimes and it seems to always hit in the grocery store check out line for some reason.

I picked up some Larabars today and stuck some in my purse and some in my van. Hopefully that will help next time I'm in that situation! :D

You'll get the hang of it.

And next time (I'm not kidding) grab gluten-free lunch meat. Generally (but always read the label) it's a safer bet and will probably hold you better than the bar. Add an apple or other fruit if you need sugar/carbs. All available in your friendly grocery store!

DutchGirl Apprentice
DutchGirl
Posted
  • Author

You'll get the hang of it.

And next time (I'm not kidding) grab gluten-free lunch meat. Generally (but always read the label) it's a safer bet and will probably hold you better than the bar. Add an apple or other fruit if you need sugar/carbs. All available in your friendly grocery store!

Good suggestions!! And I already know which lunch meats I can have. I have certainly learned my lesson, I can't wait for the kids to go to bed so I can curl up in a ball in bed.

pricklypear1971 Community Regular
pricklypear1971
Posted

Good suggestions!! And I already know which lunch meats I can have. I have certainly learned my lesson, I can't wait for the kids to go to bed so I can curl up in a ball in bed.

I'm sorry. I know it's terrible.

I had a freak out moment today, after eating sushi last night...thought I was having a reaction but turned out no.

Makes you change your plans in two seconds. Ugh.

DutchGirl Apprentice
DutchGirl
Posted
  • Author

I'm sorry. I know it's terrible.

I had a freak out moment today, after eating sushi last night...thought I was having a reaction but turned out no.

Makes you change your plans in two seconds. Ugh.

Yes it does! I'm volunteering in my Daughter's class tomorrow and dreading how I'll feel playing with 28 first graders!

kareng Grand Master
kareng
Posted

By "other names" I meant that long list of forbidden foods, they don't all say, wheat, rye, and barley. Or some spices have an anti-caking agent that contains gluten. I guess I'm just very overwhelmed by all of the unknowns. :wacko:  And while I had the shakes this morning I was feeling frantic and needed to eat. I'm considered pre-diabetic so I get hit with low blood sugar sometimes and it seems to always hit in the grocery store check out line for some reason.

 

I picked up some Larabars today and stuck some in my purse and some in my van. Hopefully that will help next time I'm in that situation! :D

What I'm trying to say is, if you are in the US, its illegal to " hide " wheat. If they use an anti- caking ingredient it would say anti- caking ( wheat). However, because wheat gets sticky when wet, it makes a horrible anti- caking ingredient.

pricklypear1971 Community Regular
pricklypear1971
Posted

Yes it does! I'm volunteering in my Daughter's class tomorrow and dreading how I'll feel playing with 28 first graders!

Water, probiotics, gas meds, imodium, etc. whatever it takes...

DutchGirl Apprentice
DutchGirl
Posted
  • Author

What I'm trying to say is, if you are in the US, its illegal to " hide " wheat. If they use an anti- caking ingredient it would say anti- caking ( wheat). However, because wheat gets sticky when wet, it makes a horrible anti- caking ingredient.

Oh okay, gotcha!! I think I just look at all of the ingredients and get overwhelmed! I know I'll get it, it will just take time!

DutchGirl Apprentice
DutchGirl
Posted
  • Author

Water, probiotics, gas meds, imodium, etc. whatever it takes...

I wonder if Benedryl would help the itching?! I will definitely be popping some Imodium in the morning though!

pricklypear1971 Community Regular
pricklypear1971
Posted

I wonder if Benedryl would help the itching?! I will definitely be popping some Imodium in the morning though!

It might. Won't hurt...

pricklypear1971 Community Regular
pricklypear1971
Posted

And if you can stand it, put ice packs on the itchy spots. That does help.

DutchGirl Apprentice
DutchGirl
Posted
  • Author

And if you can stand it, put ice packs on the itchy spots. That does help.

I think anything would be better than the itching!

gatita Enthusiast
gatita
Posted

Oh poor thing! Been there, done that. I got glutened last week from a restaurant salad that must have CC'd me. The lesson is I still can't eat in restaurants without taking a big risk.

 

You will get to the point where you read EVERY label and don't even think twice about it. My friends all know now to hand me the can or package before they feed me lol....

DutchGirl Apprentice
DutchGirl
Posted
  • Author

Oh poor thing! Been there, done that. I got glutened last week from a restaurant salad that must have CC'd me. The lesson is I still can't eat in restaurants without taking a big risk.

 

You will get to the point where you read EVERY label and don't even think twice about it. My friends all know now to hand me the can or package before they feed me lol....

I hope my family and friends get to that point as well. I have a very supportive husband but I get the feeling he thinks I'm being dramatic. I wish I could find a good documentary for him to watch so he can understand it a little better!

 

I'm terrified to eat in restaurants, there is one here in town that has a dedicated cookware and fryers. The owners have a child with Celiac.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748
    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.