Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lab Results Back But I Can Barely Read Them =(


SeekingSarah

Recommended Posts

SeekingSarah Apprentice

The results are scanned into the patient portal but the type is so small and opening up in a new page and zooming is just blurry.

 

I can read Results do not support a dx of Celiac.

 

I think these are the readings:

 

0.4 IgG

1.3 IgA

1.0 TTG IGA

Negative EMA

 

Total Serum IgG 470

 

Thats the best I can make out....I can't see the ranges worth a crap...frustrating.

 

I still have the skin issue I can go see if a dermatologist can do a correct biopsy of....

 

GI said he'd be willing to do an endo but not sure he will if the blood work says no Celiac. Doesn't mean I won't go off to Glueten to see how I do knowing it could still be intolerance. 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gatita Enthusiast

Hmmm, yeah you need to see the ranges to know what those numbers mean. I hope you get some answers soon!

 

My strongest, best answers came from going gluten free, so as you say, that may be your best option if you can't get the endo.

nvsmom Community Regular

Having the results and not being able to read them WOULD be frustrating! Hmmm, ttg tests usually have a range of 0-20 (but not always) so i would guess that one is negative. EMA is a titre, meaning they keep diluting it until they can't find the autoantibodies. I think a positive is 1:10 or 1:20, but I'm not sure... These are all just my guesses. I have no idea what the IgA or IgG is referring too.

 

Good luck. I hope you find out what it all means soon.

SeekingSarah Apprentice

I even tried to pull up on my boyfriends huge screen but its same resolution, once I'm home I will try to print it and see if its more legible. It's a can into their system since they sent the blood out for the celiac panel. If I'm making it out verses the ranges two are borderline. Like the 1.0 is where the reference starts...so I'm right there.

SeekingSarah Apprentice

My sed rate was 65, normal being 0-20. Already knew I was def in b12 and d but they write that off as being post op rny gastric bypass.

SeekingSarah Apprentice

But it does appear only 5 results verses the number of tests suggested...so there were some he didn't order...correct?

nosy parker Apprentice

Can't you call them and ask them to send them to you?  I can't help you with interpretation of what you've written, but I'd be going cuckoo if there were results and I couldn't read them! Aaaack!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SeekingSarah Apprentice

I'm going to try and print once home (out of town right now), if I can't read the print out then ill ask them for a copy.

SeekingSarah Apprentice

GRRRRRRRRRRRrr....printing the page just prints it out in same 1/4 page scanned image. Going to call and ask for them, I'm sure they'll just say "oh the results state result not indicative of Celiac diagnosis"...that's it. 

 

Questions: Should I push for endoscopy biopsy next or see a dermatologist for skin biopsy of rash for possible DH...or both?

kareng Grand Master

I would insist on readable lab results!  Whether positive or not.

 

 

People with DH often don't have a positive blood test.

 

Open Original Shared Link

 

If you continue to eat gluten, you could have the DH biopsied and that would be your confirmation of Celiac.  Just make sure the Derm knows to biopsy mext to the active "spot".  

 

Open Original Shared Link

frieze Community Regular

yeah, demand that they be posted in a readable formant.  I do admit to an occasional "touch" of paranoia, but I would wonder if this isn't purposeful?

SeekingSarah Apprentice

Ok had the idea to look up testing lab and compare the ranges there...and from I can make out on the scan this is it.

 

 

Deamidated gliadin peptide antibody IgG ELISA: <4.9 EU/mL Mine: 0.6
Deamidated gliadin peptide antibody IgA ELISA: <6.1 EU/mL  Mine: 1.3
Anti-human tTG IgA ELISA: <10.3 U/mL Mine : 1.0
Anti-endomysial IgA IFA: Negative Negative 
Total serum IgA: < 3 years: 8-220 mg/dL; 3-13 years: 41-395 mg/dL; >13 years: 44-441 mg/dL Mine: 470 (or 410 ugh can't make it out clear enough to be confident)
 
Hospital said I need to go in person and get results with ID, and they are 45 min away so haven't made a special trip. See GI again on 29th.
 
So from what I read the Total Serum number doesn't really matter if it's 410 or 470, as either would just indicate there was enough of it in my system to make the other tests accurate. Did I get that correct?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    2. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,803
    • Most Online (within 30 mins)
      7,748

    MaryAlice
    Newest Member
    MaryAlice
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.