Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Loss Of Courage


Dozey

Recommended Posts

Dozey Apprentice

Could this illness rob you of character, determination and courage? I haven't always been this way but this last year and a half seems to have taken all those qualities from me. In the past I have been ice skating, horse riding, ski ing and even abseiled down a quarry. I have driven everywhere and towed a caravan, with none of this anxiety. Now I seem to feel afraid about doing anything.

Jo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

In short?

Open Original Shared Link

 

Before the worst of it hit me several years ago I was very much a different person. I eventually became housebound because of a variety of circumstances. In short, it is because this stupid disease took too much from me. I am finally taking back. I have back now what it takes to do things for myself and leave the house alone, even go to doctor's appointments alone. It may be a hell of a battle, but it is for sure worth fighting.

Dozey Apprentice

That made me smile. Thank you. I have been housebound for a few months but getting out a bit now, as long as I have someone with me and don't go too far. Sometimes it seems immpossible to get back to how I used to be.

Jo

Adalaide Mentor

It isn't impossible, merely daunting. I am also an avid My Little Pony fan, and could cite what feels like a billion reasons why the show is now obviously made for adults and nerds, not for 8 year old girls. There really is nothing in quite like ponies to bring a smile. :D

Dozey Apprentice

Hi Adalaide. Thank you for the encouragement. I have not yet been diagnosed Celiac, but something is not right with me. I love all animals, but horses and ponies are beautiful, that's a fact.

Jo

notme Experienced

i have been feeling braver lately - my brother moved nearby and we are going camping over memorial day weekend.  we were talking about things to keep the kids occupied and one of his suggestions was badminton.  he told my husband:  she was so good, and so aggressive when we were younger.  and I WAS!  nowadays, i can't even throw or catch a ball.  don't have the desire to try.  but when he was talking about the badminton, Old Me wanted to whip his a$$ just for a second.  Old Me is still in there, i hope to find a little more of her every day.  i hope you find your answers, jo :)  

Dozey Apprentice

i have been feeling braver lately - my brother moved nearby and we are going camping over memorial day weekend.  we were talking about things to keep the kids occupied and one of his suggestions was badminton.  he told my husband:  she was so good, and so aggressive when we were younger.  and I WAS!  nowadays, i can't even throw or catch a ball.  don't have the desire to try.  but when he was talking about the badminton, Old Me wanted to whip his a$$ just for a second.  Old Me is still in there, i hope to find a little more of her every day.  i hope you find your answers, jo :)

Thanks Ariene. That's just how I feel, no energy and no desire. A bit of crafting interest is creeping back, but not like I used to be. I hope you ger back to yourself soon.

Jo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Hi There Jo!!!

 

Yes....I lost those things along with a thriving career over the past fourteen years -- others have lost as much or more.

 

Here is the good news -- you can get things back -- a little at a time that small desire to do a bit of crafting or wanting to walk out the front door -- will happen. 

 

Take it slow - finish all the necessary testing -- then remove gluten -- then be patient -- I was not born patient - far from it -- Celiac taught me patience -- even more good -- those of us that lost much....greatly appreciate the little stuff and I for one enjoy finding joy in all the little stuff!

 

Hang in there :)

EmiPark210 Contributor

I noticed I got really insecure when I continually eat gluten, to the level where I can now understand why I stayed in an emotionally abusive relationship for 3 years. Celiac's can mess with more than just your gut. Well, the messing with your gut can mess with your mind. The types of losses in courage and determination can be associated with depression, which (according to this article: Open Original Shared Link) is over 4 times more likely for people with celiac disease. This is because over 90% of our serotonin is produced by the gut (Open Original Shared Link). If you listen to or read any anti-depressant medication advertisement, they mention dopamine and serotonin as being key to "fixing" depression. But if your gut is damaged, you can't absorb nutrients or produce serotonin --> depressive symptoms. The good thing is, that if your loss of determination is caused by a nutrient/hormone imbalance from celiac's then once your body heals on the gluten free diet, you should go back to what you thought of as normal. I've found it really helpful to have people to talk to about all of the issues as well. 

 

(Full disclosure, I do study psychology and have a personal interest in the biological basis for pathologies, but I haven't done any personal research on these topics. I've cited my sources so feel free to take a look and form your own opinions)

Dozey Apprentice

Hi There Jo!!!

 

Yes....I lost those things along with a thriving career over the past fourteen years -- others have lost as much or more.

 

Here is the good news -- you can get things back -- a little at a time that small desire to do a bit of crafting or wanting to walk out the front door -- will happen. 

 

Take it slow - finish all the necessary testing -- then remove gluten -- then be patient -- I was not born patient - far from it -- Celiac taught me patience -- even more good -- those of us that lost much....greatly appreciate the little stuff and I for one enjoy finding joy in all the little stuff!

 

Hang in there :)

Hi Lisa and thank you.

It seems odd to think food can cause so much trouble, especially the psychological aspects. I was begining to think I was going mad till I read others suffer the same things.

Jo

Dozey Apprentice

I noticed I got really insecure when I continually eat gluten, to the level where I can now understand why I stayed in an emotionally abusive relationship for 3 years. Celiac's can mess with more than just your gut. Well, the messing with your gut can mess with your mind. The types of losses in courage and determination can be associated with depression, which (according to this article: Open Original Shared Link) is over 4 times more likely for people with celiac disease. This is because over 90% of our serotonin is produced by the gut (Open Original Shared Link). If you listen to or read any anti-depressant medication advertisement, they mention dopamine and serotonin as being key to "fixing" depression. But if your gut is damaged, you can't absorb nutrients or produce serotonin --> depressive symptoms. The good thing is, that if your loss of determination is caused by a nutrient/hormone imbalance from celiac's then once your body heals on the gluten free diet, you should go back to what you thought of as normal. I've found it really helpful to have people to talk to about all of the issues as well. I

 

(Full disclosure, I do study psychology and have a personal interest in the biological basis for pathologies, but I haven't done any personal research on these topics. I've cited my sources so feel free to take a look and form your own opinions)

Thank you EmiPark. It is good to be able to discuss your fears etc with people who understand. I have been feeling a bit low just lately and getting it all out on here helps a lot. I am just expecting to be told the blood test is negative.

Jo

GFinDC Veteran

Hi Dozey,

 

Celiac disease and malabsorption can cause lots of different mental symptoms.  This thread talks about some of them.

 

Short temper thread
https://www.celiac.com/forums/topic/34917-anger-quick-temper-depression/
 

Dozey Apprentice

Hi Dozey,

 

Celiac disease and malabsorption can cause lots of different mental symptoms.  This thread talks about some of them.

 

Short temper thread

https://www.celiac.com/forums/topic/34917-anger-quick-temper-depression/

Thanks again, I'll have a look.

Jo

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

    2. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748

    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.