Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

7 More Days...i Think I Can I Think I Can


NotMollyRingwald

Recommended Posts

NotMollyRingwald Apprentice

Three weeks of gluten. I'm a hot mess. Mostly neuro symptoms. brain fog is brutal. Achy body, headache, fatigue. My attention span is worse than a 18 mo old. Can't stay awake to save my life. Crazy sounds coming from my mid section and I have these weird bumps behind my ears and on my face. I look 6 mo pregnant. gahhhhhhh. Need to hold on, only 7 more days before i see the GI. I can do this. I can do this!

Tell me I can do this. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Ooooh, you're close to that finish line!  Hang in there. Mybe try eating your gluten in the evening so it doesn't wreck your day... just your night. :huh:  In the final stretch, it's time to enjoy those last "glutenous" treats. A Blizzard with oreos, beer, cinnamon buns, and picking any food off a menu without worrying... Choose foods that almost make the pain worth it.

 

You can do it.  :)

Celiac Mindwarp Community Regular

You can do it, nearly there.

At least there is no question in your mind whether gluten is a problem :):(

I might duck just in case that wasn't helpful....

Dozey Apprentice

Hold on and good luck.

Jo

NotMollyRingwald Apprentice

Thanks everyone. :)

You can do it, nearly there.

At least there is no question in your mind whether gluten is a problem :):(

I might duck just in case that wasn't helpful....

Lol you're lucky I don't have the strength to throw anything dangerous. Jk! But you are absolutely right, there is no question in my mind, gluten and I don't get along!

IrishHeart Veteran

Well, I think it's clear to US  you are gluten intolerant (if not a full blown celiac) and I hope your doctor is wise enough to see it too.

No matter what the tests say, your body screams a primal scream of  "GLUTEN BAD!!!" :angry:

 

Hang in there, hon. I still have my pom poms:

 

smileys-cheerleading-755332.gif

 

Go Amy go, Go Amy go. Go Amy go.!!

NotMollyRingwald Apprentice

Well, I think it's clear to US you are gluten intolerant (if not a full blown celiac) and I hope your doctor is wise enough to see it too.

No matter what the tests say, your body screams a primal scream of "GLUTEN BAD!!!" :angry:

Hang in there, hon. I still have my pom poms:

smileys-cheerleading-755332.gif

Go Amy go, Go Amy go. Go Amy go.!!

Thanks, Irish-The pom poms cheer me right up! :) This has been such a bizarre experience...I'm so ready to put it all behind me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Thanks, Irish-The pom poms cheer me right up! :) This has been such a bizarre experience...I'm so ready to put it all behind me.

 

I'll bet.  :unsure:

kareng Grand Master

Open Original Shared Link

 

 

I think I can... I think I can...

 

 

 

And The Chicken Dance - just cause its cute

 

Open Original Shared Link

IrishHeart Veteran

:lol:  :lol:  that is cute, K. 

taynichaf Contributor

You can do it! You can't give up now, or the last three weeks of feeling like crap would have been pointless.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.