Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Celiac Symptoms Change From Childhood To Adulthood?


Deaminated Marcus

Recommended Posts

Deaminated Marcus Apprentice

When I read a Celiac book I saw I had the classic childhood symptoms of chronic D, sickly and being skinny. 

 

In my 20's the symptoms changed and I lost to chronic D and I gained weight.

 

Because doctors are so misinformed, I just wanted to know if others who were diagnosed with Celiac in adulthood can remember if their symptoms changed from Childhood to Adulthood.

 

Now my big problem are muscle aches and joint pain which I didn't have as a child or teen.

 

Can people who were officially diagnosed with Celiac tell me if their symptoms changed from childhood to adulthood.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

I got more symptoms as time went by. As a child it was stomachaches,"c", and sore knees. In my teens, the GI symptoms were less but I started getting headaches. In my twenties, I had the symptoms continue. Stomach aches and headaches grew worse. I started getting arthralgias and a lot of bronchial or sinus infections. Also got a bad back. In my thirties I fell apart. Everything got quite a bit worse. Bloating really kicked in and I started losing hair. My sore joints started making it hard to do things- like put on a jacket. I was diagnosed when I was 38.

...I'm hoping that my forties will be better! LOL

kareng Grand Master

Marcus, I'm confused here. You have posted many, many posts in the last 2 weeks so I might not be remembering correctly, but.....didn't you say you weren't diagnosed with Celiac? Did I miss that you were diagnosed as a child but didn't eat gluten-free until now?

GottaSki Mentor

Hey Marcus...

 

My symptoms were the same in childhood...unexplained weight GAIN, bloating, discomfort after each meal, sore joints, heat intolerance.....but evolved over the years -- had one 6 year 'remission' during my teen years when I lived off of salad and diet coke -- which i do not recommend for any young woman -- but strangely I was at my healthiest during those years.

GottaSki Mentor

I got more symptoms as time went by. As a child it was stomachaches,"c", and sore knees. In my teens, the GI symptoms were less but I started getting headaches. In my twenties, I had the symptoms continue. Stomach aches and headaches grew worse. I started getting arthralgias and a lot of bronchial or sinus infections. Also got a bad back. In my thirties I fell apart. Everything got quite a bit worse. Bloating really kicked in and I started losing hair. My sore joints started making it hard to do things- like put on a jacket. I was diagnosed when I was 38.

...I'm hoping that my forties will be better! LOL

 

Your 40s are going to be great...I am certain : )

pretty in paleo Apprentice

Absolutely. My mom says that she remembers seeing changes in my health even when I was 9 years old, at the time it was D and behavior problems that were misdiagnosed as ADHD. By the time I was diagnosed a couple weeks before entering college, my symptoms were totally different: constipation, heart burn, stabbing pains after eating, almost fainting, shortness of breath....well, its a very long list. I also was always a skinny kid but then started to get sort of a belly, which is gone now, yay!

Deaminated Marcus Apprentice

No Kareng, I was never diagnosed, I'm still waiting for a gastroenterologist to scope me.

 

Thank you all for your replies. 

I can see 2 changed over time and one remained the same.

I asked because the young gastro doctor I saw last week said I don't fit the Celiac profile.

And a friend keeps saying I don't have Celiac because my symptoms are no longer the classic ones I had as a child - teen.

 

Your responses were helpful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

No Kareng, I was never diagnosed, I'm still waiting for a gastroenterologist to scope me.

 

Thank you all for your replies. 

I can see 2 changed over time and one remained the same.

I asked because the young gastro doctor I saw last week said I don't fit the Celiac profile.

And a friend keeps saying I don't have Celiac because my symptoms are no longer the classic ones I had as a child - teen.

 

Your responses were helpful.

But...didn't you say you have been gluten-free for several years? What would be the point ?

pretty in paleo Apprentice

No Kareng, I was never diagnosed, I'm still waiting for a gastroenterologist to scope me.

 

Thank you all for your replies. 

I can see 2 changed over time and one remained the same.

I asked because the young gastro doctor I saw last week said I don't fit the Celiac profile.

And a friend keeps saying I don't have Celiac because my symptoms are no longer the classic ones I had as a child - teen.

 

Your responses were helpful.

happy to help out anytime!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,064
    • Most Online (within 30 mins)
      7,748

    Shonnet
    Newest Member
    Shonnet
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.