Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hidden Foods! Was Doing So Well!


Missmtl

Recommended Posts

Missmtl Newbie

So at my Dr's suggestion of going gluten free to see if it would help with my health issues of truncal weight gain, bloating, nsusea, burping, rashes, joint pain and fatigue, i started a gluten-free diet last Friday. It went amazingly well! My bloating went down to barely noticeable, i lost 3 pounds, no stomach pain, gas or bloating etc i was thrilled!

I made pizza last night using bob mills gluten-free crust mix and it is the first time for me to eat pizza snd not feeling sick or instantly ballooned tummy!

After dinner, my bf offered me a strawberry twizzler, I had 2 without thought that it might gave gluten in it and within the hour, i got little white bumps on my arms, stomach and puffy look in my legs, thrn burning and tingling hands, sore tummy and nausea, swollen red lymph node on jaw line near my ear!

I woke up this morning still feeling sick and bloated, bumpy and itchy.

I feel depressed, how will I get through this without making mistakes?

Is there a site that has a comprehensive list to type in and see if its gluten free that is accurate?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

I am not aware of a source such as you are looking for, and would not recommend it even if I did.

 

The problem with a list--any list--is that products change all the time. A list is based on a moment in time. The example of the product you have in hand may be newer, or older, than the information in the list.

 

It does seem overwhelming at first, but over time you get to know what isn't safe and what to question. If in doubt, read the ingredients. Wheat must be clearly disclosed in both the US and Canada. Rye and oats don't appear in unexpected places, but barley can be listed as malt without disclosing the source in the US.

 

Canada adopted new rules effective August 4, 2012, that require all gluten sources to be explicitly disclosed by naming the grain in question. Products packaged prior to that date may still be in stores.

 

Read the ingredients.

kareng Grand Master

The easiest rule to live by right now is:

 

Read the ingredients on everything with an ingredient list and don't eat anything you haven't prepared yourself or seen prepared. 

 

 

There are apps but they are limited.  There is no way they have info for every brand of everything.  Some compensate for that by saying the unlisted items have gluten, even when they don't.

Gemini Experienced

Twizzlers have wheat in them and it's clearly marked on the package.  Like others have said, you have to read all labels from now on.  This will become second nature very quickly so relax!

You will get there, even if you feel overwhelmed right now.

notme Experienced

yes, you will get very good at 'package flipping' - remove package from shelf, flip package over, read package (til you see gluten), flip package back over, put package back on shelf.

 

it's a little easier now with the allergy warning following ingredients if it's not clearly listed in the ingredients.

Adalaide Mentor

I live by the motto of every label, every time. I'm buying something I bought last week? I read the label. I'm buying more than one of something? I read all the labels. At home when I pick something up in the pantry, if I can't remember the actual store trip when I purchased something, I read the label. Eventually it will become second nature.

 

And just so you don't get disappointed later, if you walk into the grocery store and start picking up licorice, nearly all of it has wheat. Enough that it took me no time at all to realize I would never find good licorice in a store again.

Pegleg84 Collaborator

Yup, no more casually accepting offered food. Ask: What is it? what's in it? where's the package? I need to read the label. If you can't find out what's in it, don't eat it!

It's a learning curve, definitely. we've all messed up, and feel horrible, then get better, then mess up again, but you get better at it, and eventually it'll become second nature.

 

In the meantime, it sounds like the gluten-free diet it working for you! Which is great! This is just a bump in the road. Too bad it has to be so unpleasant.

 

I don't like licorice anyway, but I do believe you can find it gluten-free in health food stores on occasion, but just the black stuff.

 

Happy Healing


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



alesusy Explorer

"package flipping"! I love that definition....

May I add my Italian experience? We have a very active AIC association here (Associazione Italiana Celiachia). They actually print (and also have on their website, constantly updated) a list of all gluten-free products on sale in Italy, including those you find in normal supermarkets(which mayonnaise to buy? etc). Also a list of all hotels and restaurants in Italy guaranteeing gluten-free food. Plus, they give out certification to gluten-free products.

 

However, while I do trust them, it is not enough. Plus, I'm lactose-intolerant and a good part of those gluten-free foods is still going to make ME sick. Plus, they deal with food and proclaim for instance that lipsticks and hairspray and cosmetic creams are not ever a problem.  My own experience has been different. So - it's back to the learning curve and reading all labels, always.... and to package flipping!

GottaSki Mentor

Welcome!

Yep...package flippers are us!

Take a look at the "Newbie 101" thread -- it gives wonderful advise that will speed your transition to your gluten-free life. The transition is tough...I was brought to tears regularly during grocery store missions out of package flipping -- especially when I had to start carrying "cheaters" to read some of the teeny tiny print. It does become second nature....the best thing to do is think outside perimeter shopping - you see al the whole foods without many ingredients - meat, dairy, fruits and vegies are all found here....limit the processed foods...even processed foods labeleled gluten-free can be tough on your healing digestive system.

Hang in there and focus on that first piazza that didn't make you ill.

Read the newbie thread and ask lots of questions...it really does speed the transition :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748

    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.