Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unknown Leg Pain. Result Of Celiacs?


NatZag

Recommended Posts

NatZag Rookie

I have a pain in my lower right leg that has been occurring randomly over the last few months. It almost feels like my bone is about to split or theres a ton of pressure on the bones. I'm concerned that it has something to do with osteoporosis but I think I am just psyching myself out. I know there is a heightened risk with celiac disease so that is why I am concerned. I guess I should mention that I am only 20 years old and have been gluten free for about a year and a half now. Should I get anything specific checked out by a doctor or should I just mention that my leg feels this way? Has anyone else had this pain?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I don't have any specific advice since I have not had any bone pain, but as a mom I'd recommend seeing a doctor.  Take care.

shadowicewolf Proficient

Shin splints perhaps? Open Original Shared Link

Gemini Experienced

I had bone pain for awhile and it was my femur (thigh) bone.  That sucker hurt for 3 years after I went gluten-free.  I was limping some days, it was so bad.  Bone pain....not anything else.  I also have osteoporosis but that is a silent disease.  You usually never have pain with it or any discomfort....until you break a bone.  I am weight training to reverse that but have never broken a bone.

 

I doubt you have osteo because you are young and, even if your bones were a little compromised, at your age you should regenerate bone pretty easily because you still have your hormones. At 20, you have good levels of hormones too. 

 

I had an x-ray of my leg done and the doctor said the bone looked perfect....no arthritis or anything else.  So I went home and dealt with it.  At the 3 year mark of

being gluten-free, all of a sudden one day, I realized that my leg did not hurt anymore.  It has never returned.  I think it was either a vitamin deficiency that resolved once I healed or it was a neurological issue that healed and the leg stopped hurting.

 

You have been gluten-free for a year and half and that is good but not very long, in Celiac terms.  It can sometimes take 3-4 years for pain issues to resolve.  You could ask for an x-ray but if it comes back OK, then I wouldn't worry.  You may wake up one day and it will be gone.  That is the norm for many.

 

I wish you luck but it most likely is one of those quirky things that happen to us for many different reasons. If you are really worried, ask for an x-ray.  Those are pretty easy to do!

janpell Apprentice

It may be shin splits, especially if you have taken up any activities such as jogging, tennis, fast paced walking or if you started wearing new shoes. Spring weather brings out the flattest of flats so these actually work your lower legs. I just broke in a pair of new running shoes that were as flat as I could get and then got shin splits - was also forewarned from the salesperson I bought them from that this would happen. And this was from everyday movement, not running. Just a few things to think of while you work out where the pain is coming from.  Good luck.

Deaminated Marcus Apprentice

You might want to ask your doctor if these blood tests are appropriate for your symptoms:

 

CBC

Protein Electrophoresis
Immunofixation Electrophoresis

Immunoelectrophoresis

 

Do see a doctor.

Good luck and keep us posted.

notme Experienced

have you moved somewhere or gotten a new job, etc, that has alot of stairs?  that (just in one leg and similar to shin splints) happens to me sometimes - one time my friend's elevator went out in her building and we had to walk it - 12 flights!!  it took them a week to get the part and oh, boy, i thought it was broken.  maybe try heat or ice?  to see if it goes away.  i think you are too young to worry with osteoperosis <sp but that is my opinion :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Deaminated Marcus Apprentice

Here is the story of a little girl with Osteoporosis that was posted on this forum.

 

https://www.celiac.com/forums/topic/101118-questions-re-blood-tests/

 

 

When it comes to Celiac, don't take anything for granted.

Gemini Experienced

Here is the story of a little girl with Osteoporosis that was posted on this forum.

 

https://www.celiac.com/forums/topic/101118-questions-re-blood-tests/

 

 

When it comes to Celiac, don't take anything for granted.

Osteoporosis does not cause any pain.  It's a silent disease.  Even if someone that young, or anyone under the age of menopause, had it, once they go gluten-free and heal, it almost always reverses itself easily, due to youth and hormones.

Older people can reverse it too but it takes work and dedicated exercise. 

  • 2 weeks later...
kareng Grand Master

You might want to ask your doctor if these blood tests are appropriate for your symptoms:

 

CBC

Protein Electrophoresis

Immunofixation Electrophoresis

Immunoelectrophoresis

 

Do see a doctor.

Good luck and keep us posted.

I'm sorry but....recommending electrophoresis? Why? Seems a bit odd & extreme to recommend.

 

Natzag-

Do you run or do a sport a lot? You might want to see the doctor. It could definitely be shin split type thing. It sounds a little like someone I know who had a stress fracture. It sort of came and went. They figured it started to heal and then, when she felt better and used it more, it got worse.

IrishHeart Veteran

I'm sorry but....recommending electrophoresis? Why? Seems a bit odd & extreme to recommend.

 

Agreed.

Serum protein electrophoresis is most often done to screen for a disease such as Open Original Shared LinkOpen Original Shared Link, orOpen Original Shared Link.

Not sure why would someone with leg pain would request these tests .

eers03 Explorer

Are you a runner or doing workouts/athletics?

IrishHeart Veteran

I have bouts with shin splints from time to time. Most recently, it occurred after I had been carrying heavy things up the flight of stairs from the basement. I did this repeatedly over the course of an hour (we were spring cleaning)

 

It hurt like hell. Really bad. The PT/MT that I see told me to ice the area-as in rub an  ice cube briskly over the area quickly... and make it numb.

 

Then, she told me to massage it. Then, apply heat for a few minutes. Ice takes care of inflammation and heat makes it "pliable" and relaxes the muscles.

 

She said:  do this a few times... in that order. I did.

 

The next day, it was all better.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,151
    • Most Online (within 30 mins)
      7,748

    Travis25
    Newest Member
    Travis25
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.