Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Grumblegrumble, Glutened At Church Today, Grumblegrumble


wmramsel

Recommended Posts

wmramsel Explorer

Argh!  Someone had Cheerios in the 2yo room at the church nursery and my daughter stole some.  She managed to get 4-5 Cheerios...nothing major, but her skin is already bright red in some places.  That was about an hour and a half ago.

 

I'm not mad at them, they were very upset that it happened.  I'm just agitated that it happened at all.  Nobody's fault, in reality.  Just frustrated.  The church (and her preschool) is so good about this- they even sanitize my son's hands before we pick him up just in case he has touched anything to transfer.  Tell me it gets easier when she is old enough to know better.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

with hand sanitizer?  yikes!  i learned that one the hard way - could not figure out what i got glutened with the first time we went camping and that's what it was.  eating with my hands (burgers n dogs) got me after i used hand sanitizer.  soap and water is your friend :)

wmramsel Explorer

Well, they use the wipes.  Why is sanitizer inadequate?

psawyer Proficient

Well, they use the wipes.  Why is sanitizer inadequate?

Sanitizer is intended to kill microorganisms such as bacteria. Although wipes are better than the pump bottles, gluten cannot be killed. It must be physically washed away. Soap and ample water do that well.
wmramsel Explorer

Sanitizer is intended to kill microorganisms such as bacteria. Although wipes are better than the pump bottles, gluten cannot be killed. It must be physically washed away. Soap and ample water do that well.

 

 

Oooooh, now that you say that, it seems obvious.  But it didn't really occur to me.  I will have to let them know!  

momma bee Rookie

Goodness... So many little things to think of! Wow! That makes total sense and is so sad when trying to do the right thing that it is not :( glad you guys posted this for everyone who wouldn't think of it!

valerieanne Newbie

It does get easier, wmramsel. It is hard to watch your child get sick and go through recovery... all due to five cheerios. Frustrating. Mistakes happen, even to us grown-ups who have a full vocabulary, communication skills and access to google. Once you are able to train her to be gluten-free, she will amaze you. Hey, if four year olds can manage their own insulin schedule, a gluten-free diet is not impossible! We had a one year learning curve, and we made the hand sanitizer mistake too. My dd has DH, and her hands were a total mess. I found out her G1 teacher was using sanitizing gel on her 4-5 times/day. It was a nice thought, but her skin is hyper-reactive. It takes some time to close all the gaps, but you WILL get there. I hope she is feeling better soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wmramsel Explorer

Thank you :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,209
    • Most Online (within 30 mins)
      7,748

    gingerkane77
    Newest Member
    gingerkane77
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.