Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lower Back Heat Sensation

wilderdaniel

Recommended Posts

wilderdaniel Newbie
wilderdaniel
Posted

I was diagnosed with Celiac Disease exactly two weeks ago and have taken gluten completely out of my diet.  Well 6 days later I started to get a heat sensation in my lower back when I lay down flat on my back.  I wouldn´t say it hurts but it is like a burning sensation inside my lower back.  It´s not hot to the touch.  I can feel it a little bit when I am standing up but it is more intense when I am laying flat on my back.  Has anyone else experienced something like this related to Celiac Disease?  Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Diagnosed in March.  I broke a vertebrae just laying down four weeks ago (or maybe it was trying to get off the floor....we'll never know!  After the initial pain, I have a burning sensation and numbness.   Most pain occurred when I was trying to move in bed.   I'm scheduled for a bone density test in two weeks.  Meanwhile my back is healing.  Taking calcium and Vit. D per my doc.   Osteoporosis is common for those with celiac disease and who have not been diagnosed for a while.  Some experience pain and some do not with a fracture. 

 

I wish you the best.

  • 4 weeks later...
wilderdaniel Newbie
wilderdaniel
Posted
  • Author

I am now thinking that the lower back pain comes after I drink pop.  I have drank cola and orange pops and it seems to bother me the same.  Has anyone heard about lower back pain (heat sensation) being connected with carbonation or caffeine?

eers03 Explorer
eers03
Posted

I have had the heat sensation you are describing.  It was quite uncomfortable and rather disturbing to me.  It was early in my diagnosis.  It also went away.  When this happens, DO NOT stand around in the shower with really hot water running down your back and be sure to pat it dry but do not rub across it with your towel. Don't massage it, don't scratch it.  Do not lotion it.  Continue eating gluten free and while the carbonation is not causing it, drinking more water will help you much more in that it is not acidic and THAT will be more helpful to your nerves that are creating this sensation.

 

Also, I know a physician with celiac disease.  She had patches of skin that produced this strange heat/burning sensation too.

 

It will most likely get better.  It might get a little worse first.  Be patient.  Don't stress it.

wilderdaniel Newbie
wilderdaniel
Posted
  • Author

I have had the heat sensation you are describing.  It was quite uncomfortable and rather disturbing to me.  It was early in my diagnosis.  It also went away.  When this happens, DO NOT stand around in the shower with really hot water running down your back and be sure to pat it dry but do not rub across it with your towel. Don't massage it, don't scratch it.  Do not lotion it.  Continue eating gluten free and while the carbonation is not causing it, drinking more water will help you much more in that it is not acidic and THAT will be more helpful to your nerves that are creating this sensation.

 

Also, I know a physician with celiac disease.  She had patches of skin that produced this strange heat/burning sensation too.

 

It will most likely get better.  It might get a little worse first.  Be patient.  Don't stress it.

Thanks for the encouragement!  Sometimes I feel like I am better and then all of a sudden I feel like I fall back a step or two.  I have now gone almost six weeks without gluten and milk, beans, and eggs (my other allergies), nevertheless I am sure that something gets in every now and then.  It has been quite a struggle to keep it all out.  However, my back is feeling better today (no pop).  Thanks again.

  • 3 years later...
TGT Newbie
TGT
Posted

Hi!

I have exactly these symptoms - plus I have a tingling, pins and needles sensation on the bottom of my left foot, around the middle of my instep, that for some reason seems to be related.

Does anyone know how to "cure" them both?

Thanks very much

cyclinglady Grand Master
cyclinglady
Posted
45 minutes ago, TGT said:

Hi!

I have exactly these symptoms - plus I have a tingling, pins and needles sensation on the bottom of my left foot, around the middle of my instep, that for some reason seems to be related.

Does anyone know how to "cure" them both?

Thanks very much

Welcome!  Do you suspect that celiac disease is the root cause of your symptoms? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TGT Newbie
TGT
Posted
On 3/15/2017 at 3:55 PM, cyclinglady said:

Welcome!  Do you suspect that celiac disease is the root cause of your symptoms? 

Hi!

Having read the stories of the people on this website, mine is identical. Many years of battling through health issues, misdiagnosis from doctors, and basically struggling along on your own, trying to fathom out what's going on. I have never been diagnosed with Celiac disease, but gluten is definitely a major cause of all my digestive issues. I came across this site by chance, trying to see if anyone else had the heat sensation in the lower back that I am currently experiencing, that I am certain is somehow linked to all of this.

Thanks! - and any advice, similar experiences, explanations for it etc would be VERY gladly received!

 

cyclinglady Grand Master
cyclinglady
Posted

The original poster has not been around for a while and I personally do not have the back pain you described.  Celiac disease (celiac disease) can cause osteoporosis.  Have you been evaluated for fractures?  Neurological issues are also linked to celiac disease  and can take a long, long time to heal.  

How long have you been gluten free?  You might consider testing to confirm if you still have gluten in your diet or consider a gluten challenge and then get tested.  Here is more information:

Open Original Shared Link

Jmg Mentor
Jmg
Posted
11 hours ago, TGT said:

Thanks! - and any advice, similar experiences, explanations for it etc would be VERY gladly received!

 

Hi and welcome :)

You may be better starting a new topic as people may ignore an older thread resurfacing. 

I know how excited you will be to have potentially found some answers and you will be tempted to go gluten free, but to find out if you've got celiac you need to keep eating it.  The site has an faq here: https://www.celiac.com/gluten-free/announcement/3-frequently-asked-questions-about-celiac-disease/

and you may find some of the links in this post useful as well:

 

Best of luck :) 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Flash1970
      - Flash1970 commented on Scott Adams's article in Additional Concerns
      1

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

      He should have gotten millions. How much is your life worth?
    2. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

      @cristiana, I react the same way. Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies. This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies. We have opioid receptors throughout our...
    3. knitty kitty
      0

      About Celiac Remission

    4. TheDHhurts
      - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing...
    5. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated. So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly. I came off dairy completely next and it worked like a charm...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748
    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      need help understanding testing result for Naked Nutrition Creatine please

      By TheDHhurts · Posted

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      Insomnia help

      By cristiana · Posted

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      nothing has changed

      By wellthatsfun · Posted

      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.