Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Would You Do?


Jrg

Recommended Posts

Jrg Newbie

I have an endoscopy scheduled for this Wednesday but was just told that my insurance won't cover it. It's going to set us back probably more than $700 in the end. I'm so completely nervous that I'll spend the money only to get negative biopsy results, which would just frustrate me even more. I already tested positive on the deamiated (sp) gliadin iGa blood test, negative on the others. So I know there's a chance the biopsy could go either way. My question is, what would you do? Just assume you have celiacs, go gluten free & cancel the test, or fork over the money just to know for sure?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Have your GI contest that by giving the insurance company more info? It might delay it a couple of weeks but that is what most doctors offices do.

Jrg Newbie

Have your GI contest that by giving the insurance company more info? It might delay it a couple of weeks but that is what most doctors offices do.

They said it was because I hadn't reached my deductible for this year yet. I thought an endoscopy would fall under a different category but it doesn't so I'm not sure if contesting it will do any good.

kareng Grand Master

They said it was because I hadn't reached my deductible for this year yet. I thought an endoscopy would fall under a different category but it doesn't so I'm not sure if contesting it will do any good.

That's not the same as your insurance won't pay for it. So an appeal wouldn't make any sense.

Jrg Newbie

That's not the same as your insurance won't pay for it. So an appeal wouldn't make any sense.

Well I didn't suggest an appeal. I said that my insurance wasn't going to cover it. I was originally told that it wouldn't be a problem & I would just have to pay a copay, so now that I found out I will have to cover the full amount I'm just wondering what people would do. I'm torn as to whether I should go through w/it or just take my blood results & vitamin/iron deficiencies & just assume to go gluten free to see what happens.

Lock Newbie

If it were me, I would go through with the endoscopy IF I trusted the GI doctor to be very thorough and to use the latest techniques to find any villous damage, if the damage exists. If the doctor is not up to speed with diagnosing celiac then a negative result will only confuse you more. But if he is very good, a negative result will assure you that your intestine is healthy. So my answer as to whether you should pay for this and go ahead with the procedure depends on the quality of the doctor.

cyclinglady Grand Master

I'm self-employed and pay for our health insurance policy.  When you have a policy that has a deductible, you need to set aside money to cover that deductible.  Seven hundred dollars seems like a lot, but in perspective, it's not really.  Not when it involves your health.  

 

In my opinion, this is an "emergency".  The long term side effects of not treating celiac disease are far more costly.  Would you balk if you thought you had cancer?  If you were in a car accident and needed surgery?

 

That said, if you really can't afford the endoscopy, you can always go gluten free based on your blood test.    My hubby did just that.  Docs suggested that he give up gluten and he did.  He strictly adheres to the diet.  I got scoped only because I didn't have a tummy issues and had a hard time believing that both of us have gluten issues.  

 

Hope this helps!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Well I didn't suggest an appeal. I said that my insurance wasn't going to cover it. I was originally told that it wouldn't be a problem & I would just have to pay a copay, so now that I found out I will have to cover the full amount I'm just wondering what people would do. I'm torn as to whether I should go through w/it or just take my blood results & vitamin/iron deficiencies & just assume to go gluten free to see what happens.

 

 

I suggested it because I couldn't tell why they wouldn't cover it.  Thought it might help.

 

Myself - I would and did pay for my colonoscopy and endo with the deductible.  It cost a lot more than $700 but I had the colonoscopy portion and anesthesia, too.  I thought it was worth it to see the amount of damage and make sure nothing else was wrong.  We put money aside in a health reimbursement account but its too late for you for this year.  If you are young and haven't had anything medical to pay out before, its not something you would want to do.

 

If you decide to pay yourself. I would find out how much deductible you have to meet.  So you know how much your limit will be.  Also, will you have to pay the pathology company for looking at the biopsy?  Pay any additional for sedation?  Does the doctor bill separately from the center where you are getting the procedure done?  Just some additional costs to consider.   

nvsmom Community Regular

It depends on you. Would a positive endoscopy help you stay gluten-free? What if the endoscopy is negative (there are a few around here with positive blood tests and negative scope - it's not uncommon), will that affect your dedication to the gluten-free diet?

 

I personally think a scope can be useful if you continue to have long term problems (which would be useful if you get re-scoped in the future for comparisson) or there is another un-idenified health issue in play that needs to be found.

 

I personally did not do the scope and just went gluten-free based on a couple of blood tests. I figured that if I continued to have problems, I could always get the scope done in the future to look for other problems.

 

You have to do what you feel comfortable with.  :) Aren't I helpful?  LOL ;) Good luck with what ever you decide to do.

Jrg Newbie

Thank you everyone. I went ahead with the endoscopy today, so now I'll just wait for my biopsy results

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    3. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,438
    • Most Online (within 30 mins)
      7,748

    rednecksurfer
    Newest Member
    rednecksurfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.