Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

moosemalibu

Recommended Posts

moosemalibu Collaborator

So I have noticed that I have a few swollen lymph nodes popping up on my body. First I noticed my inguinal lymph node and then I noticed a lingual lymph node. Have others had this phenomena? Does it go away? I found this AFTER a gluten-free diet change... I feel like I am having more symptoms now than pre-diagnosis. Is this normal after going on a gluten-free diet?

 

I am fatigued, still having diarrhea, bruising, insomnia, and now lymph node enlargement...sigh


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Lymph node enlargement means your body is actively fighting something.  Usually a few enlarged nodes do not mean anything by itself.  I will also say that in my experience, when my nodes enlarge, it is my immune system telling me I'm sick.  It is then up to me to figure out what is triggering my immune system. 

 

Since you are diagnosed celiac, lymph node enlargement in you may be saying that you are still getting some amount of gluten which is triggering your immune system.  I would look at possible hidden gluten.

 

All the best.

 

Colleen

1desperateladysaved Proficient

Me too.  I had some problem with something I ate two weeks ago and feel a lot of nodes.  My practitioner and I are also considering whether a progesterone cream, with some of my allergens caused my issues,.  I was hoping applying it topical would work alright.  Meanwhile, I have never had it this bad, or at least I think I haven't.  I think my body is able to protest louder than ever since I am healing.

 

Jumping on the tramp is supposed to help.  What it did for me is make me feel more pressure in the nodes.  Sometimes things feel worse before better.

 

D

GF Lover Rising Star

Diana,

 

I'm assuming that jumping on a trampoline would help drain the lymph fluid? Is this what your saying?  I would suggest that this may in fact irritate the nodes more. 

 

The appropriate way to stimulate drainage of lymph nodes is to lightly massage the effected area in the direction toward the two main nodes which are located above the belly button and the top of the chest. 

 

Colleen

1desperateladysaved Proficient

Diana,

 

I'm assuming that jumping on a trampoline would help drain the lymph fluid? Is this what your saying?  I would suggest that this may in fact irritate the nodes more. 

 

The appropriate way to stimulate drainage of lymph nodes is to lightly massage the effected area in the direction toward the two main nodes which are located above the belly button and the top of the chest. 

 

Colleen

 

 

Diana,

 

I'm assuming that jumping on a trampoline would help drain the lymph fluid? Is this what your saying?  I would suggest that this may in fact irritate the nodes more. 

 

The appropriate way to stimulate drainage of lymph nodes is to lightly massage the effected area in the direction toward the two main nodes which are located above the belly button and the top of the chest. 

 

Colleen

Yeah, perhaps it is a better preventative than cure. 

D

 

I am sure I heard the information from this party.  http://www.reboundair.com/?gclid=CKfe5qnX8bkCFYwWMgodJW8A8g I also heard it from a gymnastic coach that coached Us Olympic trampoline team.

 

Nevertheless, I did get better, I think I got to the root and it wasn't a need to exercise.

moosemalibu Collaborator

I know I got glutened via Jose Cuervo margarita mixer during my camping trip several weeks ago (I'm 99% sure anyway as they do not list it as gluten-free on their website, whereas other items are listed gluten-free).

 

But other than that one incident I cannot see how I could be getting glutened. I am not saying it is impossible. But I have been going through all my day-to-day items I cook with or vitamins,etc. and I cannot find one that is suspect. I see my GI doc next week so if it's not better by then I'll ask him.  I haven't gotten any flu-like symptoms to make me think I just got a regular cold/flu either.

 

Thanks for your replies!

kareng Grand Master

 

I am sure I heard the information from this party.  http://www.reboundair.com/?gclid=CKfe5qnX8bkCFYwWMgodJW8A8g I also heard it from a gymnastic coach that coached Us Olympic trampoline team.

 

 

 

That is a website that sells trampolines. I wouldn't take medical advice from them.  :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



moosemalibu Collaborator

Went to the doctor to figure out the painful swollen lump under the chin. Told me it should subside in 2 weeks and if not to return for follow up and possible ultrasound. Potential swollen lymph node or salivary gland.

moosemalibu Collaborator

Going back in because lump is making it painful to swallow and move my head from side to side and up and down. Has really enlarged and changed the silhouette of my jawline! Crossing fingers.

1desperateladysaved Proficient

Oh, wow!  I hope you will resolve this well and soon.

D

kareng Grand Master

Going back in because lump is making it painful to swallow and move my head from side to side and up and down. Has really enlarged and changed the silhouette of my jawline! Crossing fingers.

 

 

Yuck!  Did they drain it? 

moosemalibu Collaborator

Yuck!  Did they drain it? 

No - it is very firm. They said it could be a cyst or abscess but I have a pending CBC, chemistry, and they did an ultrasound yesterday so I will hopefully know what it is Monday. I hate waiting. I don't think it is related to the Celiacs but it is alarming none the less. I feel like a monster with this thing on my face! 

  • 1 year later...
Kati.o.rose Newbie

I know your lymph node issues was over a year ago, but did you ever find anything more out, about what caused it, etc? And are you doing okay? :) I have an u/s on Friday morning for a similar issue and was hoping to have a possible heads up. Thank you for any expiriences you may have to share.

SMRI Collaborator

Again, I know old post, but Mumps are going around the country so just be aware it could be that.  I had a salivary stone in a gland and oh boy does that hurt!  It was under my jaw to the right of my trachea.  Try massaging the gland from your ear toward your trachea and see if you get saliva out-often with a funky metallic taste.

  • 1 year later...
CELIAC SINCE 2011 Newbie

After being glutened over 1 week ago, I've quickly noticed swollen lymph nodes under my left arm pit and on the left side of my groin area as well.  I have been using hibiclens religiously and it has been going down, plus I have been preparing my own gluten free meals.  I do believe there is a correlation between the two.  I have a call into my doctor to get his opinion on this as well.  I will keep you posted. 

  • 4 years later...
Laudia Newbie
On 9/28/2013 at 8:12 AM, moosemalibu said:

So I have noticed that I have a few swollen lymph nodes popping up on my body. First I noticed my inguinal lymph node and then I noticed a lingual lymph node. Have others had this phenomena? Does it go away? I found this AFTER a gluten-free diet change... I feel like I am having more symptoms now than pre-diagnosis. Is this normal after going on a gluten-free diet?

 

I am fatigued, still having diarrhea, bruising, insomnia, and now lymph node enlargement...sigh

I too have the exact same, although the bruising seem to be much less. 

Scott Adams Grand Master

Hi @Laudia, welcome to the forum! The topic you replied to here is quite old, so you may not get replies from the original posters.

Are you on a gluten-free diet? Have you been diagnosed with celiac disease? If so, it can take up to two years for many of the symptoms to reside.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,192
    • Most Online (within 30 mins)
      7,748

    DenisC
    Newest Member
    DenisC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.