Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help For A Family Of New Intolerances

ndw3363

By ndw3363
in Food Intolerance & Leaky Gut

Recommended Posts

ndw3363 Contributor
ndw3363
Posted

One of the guys I work with just had his 10yr old daughter tested and it turns out she is intolerant to just about everything.  Now I don't always think that the bloodtests for sensitivities are 100% accurate, but he was told they need to cut out gluten, eggs, dairy, peanuts (and other tree nuts), and most likely soy.  This leaves them with very little IMO to eat.  I'm gluten free and semi-dairy free so I'm only a little bit of help to him.  I gave him this web address as a starting off point, but right now, their heads are swimming.  He has 3 other kids and they are trying to decide if they whole family should follow some of the guidelines or just the daughter.  They are seeing a dietician soon, but thought maybe I could get some other great resources from this group - this is always my first stop for questions since you all are so super helpful all the time.  I'm really just looking for ideas on what a 10yr old can eat with all this.

 

Sidenote - he didn't say whether or not the Dr. did a celiac panel.  I told him about it (had never heard of celiac disease before) and asked that he call the Dr prior to pulling gluten out of her diet.  The sheer number of intolerances suggests to me that there is something else going on.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

One of the guys I work with just had his 10yr old daughter tested and it turns out she is intolerant to just about everything.  Now I don't always think that the bloodtests for sensitivities are 100% accurate, but he was told they need to cut out gluten, eggs, dairy, peanuts (and other tree nuts), and most likely soy.  This leaves them with very little IMO to eat.  I'm gluten free and semi-dairy free so I'm only a little bit of help to him.  I gave him this web address as a starting off point, but right now, their heads are swimming.  He has 3 other kids and they are trying to decide if they whole family should follow some of the guidelines or just the daughter.  They are seeing a dietician soon, but thought maybe I could get some other great resources from this group - this is always my first stop for questions since you all are so super helpful all the time.  I'm really just looking for ideas on what a 10yr old can eat with all this.

 

Sidenote - he didn't say whether or not the Dr. did a celiac panel.  I told him about it (had never heard of celiac disease before) and asked that he call the Dr prior to pulling gluten out of her diet.  The sheer number of intolerances suggests to me that there is something else going on.

Meat, veggies, fruit, rice, quinoa, corn is a short list. You can do quite a bit with those.

Adalaide Mentor
Adalaide
Posted

From experience I can say that with gluten and soy together that it is pretty restrictive, nearly to the point of whole foods or ridiculously expensive crap no one can afford. Dairy adds a whole other layer to that because what isn't whey in?

 

I'm going to agree though that there is quite a lot you can do with meat, vegetables and the available grains. You can suggest coconut aminos as a substitute for soy sauce for stir fries and after that I really can't think of any reason she'll be lacking.

 

And yes, I would prod him to push for that celiac panel and follow up endoscopy quickly. We all know the test won't be accurate if she's already gluten free so there probably isn't a whole lot of time for them to mess around with that and if they can get the blood draw done immediately that would be super.

StephanieL Enthusiast
StephanieL
Posted

Intolerance testing leaves much to be desired.

 

Why did they test to begin with?

 

That diet is what we have followed with a few more. It's about cooking a lot at home but its manageable for sure.  Again, without knowing why they tested though, I would bet a few/most of them aren't an issue really.

ndw3363 Contributor
ndw3363
Posted
  • Author

She has had behavioral problems for years - at one point he said they had her on Abilify, but decided that was a bit strong for a 9 yr old.  They are coming at this from a good place - don't continue to mask the problem...get to the root of it.  She has been very tired and almost depressed for awhile, which is why they had the tests done.  They went through standard pediatrician who specializes in dietary restrictions (which is why I was surprised she didn't run a celiac panel or blood vitamin/mineral tests).  Apparently this Dr is very in demand (they had the blood draw in August and couldn't get a follow up appt to go over results until this past Friday 11/8 - crazy!!)  I of course did not discount the Dr's opinion, but I did explain to him that a lot of this information is subjective and it would be in their best interest to get the celiac panel done now before they make radical changes to her diet (that way they can have the other kids tested if it comes back positive as well).  I was trying my best to help with recipes and food ideas, but I'm allowed dairy (in small amounts) and all my good recipes contain something she can't have.  Mostly need lunch ideas to take to school - poor kid.

StephanieL Enthusiast
StephanieL
Posted

Desperate parents will try anything, I know :(  I just hate to see people restricting diets so much without a clear reason and scientific testing first to rule things out.  It's hard to get people to comply with these diets with no back up (from the patient to the families to the schools).  
 

 

Soy is going to be the big one. If they do decide to pull everything, that would be the one I would try to add back first as it will open up a lot.  Hummus with veggies, soups and stuff like that would be where I would start with for lunches.

Juliebove Rising Star
Juliebove
Posted

My daughter had all of those intolerances and more.  There is plenty to eat.  Can use coconut oil instead of butter.  Can pop pocorn in it.  Can eat sunseed butter on a rice cake, rice crackers, corn tortilla, gluten-free bread, etc.  There are all kinds of fruit.  Meat.  Now there is great dairy free and soy free cheeses.  Daiya is one such brand.  In a restaurant, safe choices would be a hamburger patty,fruit, plain baked potato, sometimes fries.  In a Mexican restaurant, beans, rice and corn tortillas are usually safe.  Often the meat is safe but you have to ask.  Have to concentrate on what can be eaten and not on what can't.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,051
    • Most Online (within 30 mins)
      7,748
    levizagepro
    Newest Member
    levizagepro
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Pepsid alternative

      By Scott Adams · Posted

      It seems crazy to me that even when you call a manufacturer they can't, in this day and age, answer the simple question about what exactly is in their product!!
    • Stephanie Wakeman
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By Stephanie Wakeman · Posted

      Thank you so much for your response! It's been a challenging journey with this condition! 
    • milana
      Pepsid alternative

      By milana · Posted

      Thank you very much for your response. Since I got this advice I called Pepsid manufacturer and they could not give a definite answer. Basically,  there is no final testing and they do not guarantee anything. So I went and got farmotidine from Wagmans that was marked gluten-free and also our pediatrician gave us a prescription for farmotidine that was also gluten-free. So there are other options there thankfully. In case someone will come across of this dilemma.
    • Diana Swales
      Recently qualified Nutritionist looking for support

      By Diana Swales · Posted

      A nutritionist typically focuses on general wellness, lifestyle guidance, and preventative health. A dietician allowed to provide medical nutrition therapy. When i was diagnosed there was zero support and few dieticians and Dr understood celiac disease.  I typically guide a newly diagnosed celiac to a whole food diet to easily transition to the gluten free lifestyle  
    • Scott Adams
      gluten-free self diagnosed journey so far as well as what triggers. Eye crying like peeling onions?

      By Scott Adams · Posted

      Your gluten-free journey sounds like a lot of trial and error—especially working in a deli where gluten exposure is constant! The eye-watering issue could be an airborne gluten sensitivity (like flour dust irritating your eyes) or even a mild wheat allergy, since you’re around it daily. A daily antihistamine (like Claritin or Zyrtec) might help if it’s allergy-related, but avoiding airborne gluten as much as possible (masking, washing hands/face often) is key. It’s great you’re tracking triggers—high-fiber foods and certain gluten-free substitutes (like those tortillas or PB pretzels) can sometimes cause similar symptoms due to additives or digestive adjustments. For travel, pack safe snacks (protein bars, nuts) and research gluten-free translation cards for Aruba. On flights, opt for packaged gluten-free meals or eat beforehand. Many gluten-free foods and baking mixes contain xanthan gum or other gums like guar gum. Although they are both gluten-free, they may cause IBS-type issues in some people with celiac disease or gluten sensitivity:   You’re doing all the right prep—trust your research and enjoy your trips! 
×
×
  • Create New...