Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First Gluten, Now Lactose (Noooo!)

eers03

By eers03
in Coping with Celiac Disease

Recommended Posts

eers03 Explorer
eers03
Posted

I started out by cutting gluten.  My follow up labs show that I have done a great job of staying compliant with my gluten-free diet.  My other marker shows that my immune system/tissues are still reacting.  I'm absent IGA so it could take longer for these numbers to decrease.  

 

I have noticed on my own that when I eat ice cream (evening habit), and drink milk (love it) or make my pizzas (extra cheese please), I get G-A-S-S-A-Y.  

 

I've gone (mostly) lactose free and have noticed major improvement in the aforementioned.  I think its safe to say, I need to stick with the lactose free wagon.

 

Additionally, I've seen improvement in a urinary symptom as well, more bubbles than the norm.  Thats been going on for a few years, recently, it has cleared up.  Huh?  Whatever, works for me.

 

Anyhow, if you have gone gluten-free and are still having a few issues you can't shake, try eliminating lactose.  I didn't want to believe it but its helped.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BelleVie Enthusiast
BelleVie
Posted

This is a really common issue with a lot of celiacs. I recall my time in college when I worked in a coffee shop. I would often drink coffee drinks made with milk, topped with whipped cream. EEK. Gassy. Yes. It was not pleasant! The good news for you is that once your gut has healed, you will very likely be able to enjoy dairy products again in the future.  :)

eers03 Explorer
eers03
Posted
  • Author

Thanks for sharing!  I've heard people mention that lactose and gluten can be concomitant issues but I've not heard someone mention that I may eventually be able to have lactose again.  Good to have something to look forward to!

squirmingitch Veteran
squirmingitch
Posted

The tips of the villi are where lactose is dealt with. It takes time for them to heal & grow back. When that happens, there's a good chance you will get dairy back again.

w8in4dave Community Regular
w8in4dave
Posted

Yup I am living proof of that!! It took a bout 3 months and I slowly introduced Lactose into my diet and It worked!! Good luck!! Hope you get it back!! 

dilettantesteph Collaborator
dilettantesteph
Posted

I had decades of not tolerating lactose.  After about a year gluten-free I started trying it again, and now I can tolerate several cups of milk in a day.

BelleVie Enthusiast
BelleVie
Posted

I'm still kind of confused about casein intolerance. I cut out dairy and casein because I was having some weird rashes/head spaciness issues that I now know were linked to dairy consumption. A forum member told me that for some people, casein is like gluten, and once you are intolerant, it may always be that way, but then it's also possible that the intolerance could pass. Is there any scientific info on this stuff, do you guys know? Sorry, I hope I'm not hijacking the thread! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eers03 Explorer
eers03
Posted
  • Author

That is a great question.  I have wondered about casein as well but eggs and meat do not seem to cause the same reaction that milk and ice cream or large amounts of cheese do for me.  Don't know.

Pegleg84 Collaborator
Pegleg84
Posted

I've got trouble with casein too, so I avoid all dairy. A tiny bit doesn't do much, and it is the lesser of my woes, but it's insta-headache, some stomach troubles, and messes with my sinuses. Not fun.

 

Some people do eventually reintroduce things their intolerant to, but I think it really depends on the person. I can't have soy either, and don't expect to ever get that back. 

 

If it's just lactose you have problems with, though, then it is more likely that you'll be able to reintroduce it eventually.

 

Glad you're feeling better without it!

GFinDC Veteran
GFinDC
Posted

Hi,

 

Casein is a protein in cow dairy.  Eggs don't have it, or meats.  It is unlikely for a casein reaction to stop being a problem.  It may be possible to tolerate it in small amounts, but it is not something you should eat regularly if you are having a reaction to it IMHO.

 

Daiya makes a dairy free cheese sub that is ok.

moosemalibu Collaborator
moosemalibu
Posted

Hi,

 

Casein is a protein in cow dairy.  Eggs don't have it, or meats.  It is unlikely for a casein reaction to stop being a problem.  It may be possible to tolerate it in small amounts, but it is not something you should eat regularly if you are having a reaction to it IMHO.

 

Daiya makes a dairy free cheese sub that is ok.

 

I don't know about the Daiya cheese... That stuff is GROSS! Nothing compares to a good sharp cheddar.

squirmingitch Veteran
squirmingitch
Posted

I have to agree with you there Jamie! I tried that Daiya stuff & it's gross IMO.

Tbolt47 Newbie
Tbolt47
Posted

That is a great question.  I have wondered about casein as well but eggs and meat do not seem to cause the same reaction that milk and ice cream or large amounts of cheese do for me.  Don't know.

I tolerate real cultured cheese and Greek yogurt well, however milk and Ice cream  are an issue. Additionally, soy was a bigger issue than lactose for myself.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
    3. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was...
    4. Amy Barnett
      - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

      What is the best liquid multivitamin for celiac disease?
    5. Scott Adams
      0

      Quick Gluten-Free Shrimp Stir-Fry With Crisp Vegetables

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      Question

      By Amy Barnett · Posted

      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.