Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ridiculous Conversations


Auntie-Manda

Recommended Posts

Auntie-Manda Apprentice

This morning I was thinking... I should write a book about all the ridiculous conversations I've had with people about gluten free diet, etc. I'll bet there are lots of stories out there... let's share. Laughing is a good way to cope, right?

 

So I told my coworker (who is also my aunt) that gluten-free diet cleared up my daily migraines (she has migraines often as well). Her response: "well I know that isn't the problem because Aunt F has celiac and she still gets migraines even though she's gluten-free". Sigh. Ok...

 

Here's another one:

LL: did I hear you are wheat free?

Me: yes. Well, I'm gluten-free, which is wheat free.

LL: Well, not all wheat has gluten.

Me: it does...

LL: No, there's this unaltered strain of wheat that some amish farmer in NY has.

Me: Ok, well I don't have access to that, so I'm wheat free. 

LL: *goes on to discuss just starting wheat free and seeing a big difference, and using coconut wheat (?!?) as a substitution*

Me: Well that's good. So wheat is definitely a problem for you, huh?
LL: For sure. I ate pizza all weekend and I'm paying the price now!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 142
  • Created
  • Last Reply
w8in4dave Community Regular

OMG I cannot even think about eating Pizza all weekend!! I make Hubbs cook his own pizza! Lol 

 

Thats like my Daughter telling me she went Gluten free.. About a month later I asked he if she was still Gluten free she said yes. One day she was coming over and was taking a while. I texted her and asked what the hold up was, she said she had to take the kids to lunch they were hungry. I say really? Where did you go? She said  "Panara" <-spelling sorry     ?????? I didn't say a word...  She is Gluten free when she wants to be. 

cap6 Enthusiast

Many people are that way especially once they discover this way of life isn't as easy as it sounded!. 

notme Experienced

O MY GAWD YOU CAN'T EAT ANYTHING!!!  yes i can - just not the crap you're eating............ <_<

 

i love the "i think i have that" people, who, as soon as they hear how strict you need to be, abandon the idea that they could have a problem.  "oh.  i don't have *that* - that's too hard."  oh, brrrrotherrrrr  :rolleyes:

Auntie-Manda Apprentice

Right? I HATE when people are like, "oh, I couldn't do that!" Yes, yes you could, if your health depended on it, and if you felt miserable for a week after eating a cracker. My 2nd most hated comment is, "that's so expensive, though!" Ok, well, forgetting the halthcare and medication required to NOT be gluten-free, may I remind you that rice is cheap, fruits & veggies & meat don't cost more than what you pay... it's only expensive if you buy the gluten-free versions of food that has gluten in it. And not being able to eat at resturants sure saves ME a lot of money!

w8in4dave Community Regular

My friend has Crohns she told me. I don't know how you can just say to your self you have to stop eating all that stuff and do it!! I said "if it ment stoping all or most of your symptoms you would do what you have to do" She said "I am not so sure I could do it"  What ever!! 

eers03 Explorer

Its now entertaining to me that "others" think they are somehow eating better food than I am.  Not true.  You had a combo from Wendy's on the way home from work?  You're right, I'm missing out.... Or not...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ItchyAbby Enthusiast

This thread is great! Being a newb at this, I am getting hit with all these things for the first time. I imagine these questions and comments are common:

 

"What do you eat?" (often accompanied by a truly alarmed look) I want to answer: "Oh, you know, twigs" But I keep trying to remember that this may be a teachable moment, so I tell them all the things that I can eat until their eyes glaze over. :lol:

 

and

 

"That must be so hard" No. No, it's not. It's not always easy, but compared to being covered in the devilspawn-lovechild of poison oak and shingles that is DH, eating gluten free is a cake walk.

w8in4dave Community Regular

Gluten free cake walk :) 

NateJ Contributor

I'm pretty sure I've had everyone of these converstations at least 5 times each.

My favorite is always " oh i could never do that"

Or the fake interest. I get tired of talking about it, like if i hear the word gluten one more time i may have a nervous breakdown.

moosemalibu Collaborator

I'm pretty sure I've had everyone of these converstations at least 5 times each.

My favorite is always " oh i could never do that"

Or the fake interest. I get tired of talking about it, like if i hear the word gluten one more time i may have a nervous breakdown.

I'm pretty certain I have had a nervous breakdown! ;)

africanqueen99 Contributor

This is all new to me - the mother of a toddler celiac (and probably getting the DX for a school age celiac on Monday), but I think I'm going to scream bloody murder if one more person tells me it's not a big deal.  Even my husband's aunt told us that since gluten-free food is easy to find that this is going to be easy.

 

In less than a month I've had my baby girl get DX, de-gluted my entire house and repurchased all the essentials, spent hours figuring out what I need to do with my beauty products (I'm still nursing) and had a meeting with the director of her early childhood center.  Please allow me my freaking pity party and let me state that it's a very big deal!!  I am the mother - it's MY job to make sure she gets better!  And *I* am the one that hears my other kids get tearful when they really want a cheese-it or a spaghetio.  So now I'm making it my mission to be better in the kitchen so I can help those kids not resent the baby.

 

Sigh...  At least the people here get it.

Pegleg84 Collaborator

My favourite one recently was while asking about the menu at a new bar. They were very accommodating to dietary needs, and have good gluten-free beer, so I did just fine, but anyway:

 

Me: I'm gluten free, and can't eat soy or dairy.

Server (I think she might have been the owner, actually): oh, are you on a cleanse?

Me: uhhh, a permanent one, I guess.

server: Oh, you must have great skin now.

Me: um, maybe, can't say I've noticed, but sure...

 

*face plant*

 

They did make things for me sans soy/gluten and I did just fine, so will definitely go back sometime, but MAN! total hipster-trendy-health-craze-myth alert!!

NateJ Contributor

I'm pretty certain I have had a nervous breakdown! ;)

Maybe i have and just don't notice. :) ignorance is bliss

 

I'm thinking of adding a sig to my posts here that just says "intolerant to everything"

moosemalibu Collaborator

My favourite one recently was while asking about the menu at a new bar. They were very accommodating to dietary needs, and have good gluten-free beer, so I did just fine, but anyway:

 

Me: I'm gluten free, and can't eat soy or dairy.

Server (I think she might have been the owner, actually): oh, are you on a cleanse?

Me: uhhh, a permanent one, I guess.

server: Oh, you must have great skin now.

Me: um, maybe, can't say I've noticed, but sure...

 

*face plant*

 

They did make things for me sans soy/gluten and I did just fine, so will definitely go back sometime, but MAN! total hipster-trendy-health-craze-myth alert!!

 

She sure wouldn't say that to someone with DH.... jeez...

w8in4dave Community Regular

At a friends house just soon after I found out I had Celiac. She made Riffle soup, I said Ohhhh darn I can't eat that!! Darn it!! She said what can I do different so you can eat it? I said use Gluten free flour. She said well besides that. Lol I said actually there is nothing you can do :) 

Auntie-Manda Apprentice

Lol. These are funny.

LauraTX Rising Star

For me, the most annoying thing ever is the people who think reading a few articles on the internet gives them a medical degree and makes them an expert at your problems.  I have lupus, celiac, and I also lack part of my natural immune system, and I always tell people the minimum amount necessary because I have heard the most ridiculous crap from people who barely know me and my health history.  Some times I am not nice about it, if they are strangers and are very intrusive.  Also the whole saying it is a fad, etc. will get you a scientific lecture.  I tutored science to eat my way through college, so I WILL make sure you understand by the time I am done with you!

 

Also I am surprised no one has put, on the list of silly things said to celiacs:

 

Me: "I can't have gluten."

From an RN:  "Oh, so glucose? So you are a diabetic?"

 

After ordering a milkshake from sonic and asking them to clean the stirry stick since I cant have gluten which is in the oreos and pie pieces, the employee came out after a long time without the item and said sweetly,

"You can't have gluten?  Well there is a lot of sugar in this, we just want to make sure that is okay."

Luckily that was an opportunity to educate and when I see her there I will make a U-turn when driving past and go get a milkshake in confidence

 

"What DO you eat?"- I will list off all the delicious food I made myself in the last few weeks.

 

 

And on a more humorous note, things my husband has lovingly said to me:

 

"-redacted dirty thing- is gluten free!"   (if you are a married woman, use your imagination here, haha) 

He got slapped over that!

 

"You are my silly yak girl"

 

At petsmart: "I wonder if they have any silly yak food for you here?"  

That got a dirty look from me, but I was cracking up!

Juliebove Rising Star

Its now entertaining to me that "others" think they are somehow eating better food than I am.  Not true.  You had a combo from Wendy's on the way home from work?  You're right, I'm missing out.... Or not...

Yes!  I originally made the entire house gluten-free but husband became angry because he no longer had his sandwiches.  He loves pizza too but we don't, gluten-free or not so I'm sure he doesn't get that as often as he'd like but...  I eventually bought premade sandwiches and then went back to making them after I got my daughter her own little fridge. 

 

He knew that I was paying more for her food and knew that we were keeping it separate, only because he and my parents couldn't understand the diet.  They kept trying to feed daughter stuff that she shouldn't have and she wasn't quiite old enough to read the labels to know.  So between the fridge and the card table (have since bought a shelving unit), they knew that whatever food was there was safe for her to eat.

 

Then one day, husband pitched a fit and said that "we" were eating better quality food than he was!  I don't have to eat gluten-free but have other food intolerances as does daughter.  So I had to buy other special things that were free of peanuts, dairy, eggs and other common foods.  He couldn't understand this.  Instead of being thankful that he could eat cheap stuff if he so chose, like regular pasta and white bread, he claimed I was feeding him the cheap, crappy stuff and we were getting the higher quality stuff.  Mm hm.

Juliebove Rising Star

At a friends house just soon after I found out I had Celiac. She made Riffle soup, I said Ohhhh darn I can't eat that!! Darn it!! She said what can I do different so you can eat it? I said use Gluten free flour. She said well besides that. Lol I said actually there is nothing you can do :)

Curious now.  What is riffle soup?

Juliebove Rising Star

Got into an argument with my mom the other day who herself has multiple food intolerances but perhaps is senile (we think she is) and doesn't realize it but is also super stubborn and has always just done what she wanted, whether it was the smart thing to do or not.  And she lives in denial.  Says she will not eat eggs (eggs make her sick) then orders waffles and can't figure out why she is sick.  Well, she didn't eat EGGS!  She ate waffles!  Also tried to tell me that there was no egg in Avgolemeno soup.  It was cream in there.  Not eggs!  The woman doesn't cook, so she has no clue.  I've made the stuff.  Anyway...

 

She kept suggesting places for us to eat at where we couldn't go.  To complicate things, daughter is now a vegetarian and both of us have multiple food intolerances.  I can't eat chicken.  So someone suggested The Rock.  It's a pizza place with burgers, salads topped with chicken and beer battered fries.  I told SIL that the only thing I could eat there was a plain hamburger patty.  Can't have the bun or the fries.  So she tells me that they have salads. Yeah.  Salads with CHICKEN!  Daughter can't have those either and she needs more than a dinky dinner salad.  Plus we don't want to have to sit through another meal with you all eating stuff that we can't have.  Sure, I know that could happen anywhere but at least give us some options for our meal! 

 

So once again, my mom suggested The Rock and some other place that literally had no options for us.  And when I said, "no", she got nasty with me and demanded to know why but added, "And don't use your food issues as an excuse!"  So all I could do was shake my head and tell her that I didn't know why.

Juliebove Rising Star

Before I knew much about the gluten-free diet, my neighbor suggested putting my daughter on it to see if it would help her.  She added that it hadn't helped with her daughter though and she had tried it for a full two weeks.  So I said something like...  "But isn't it hard to do?"  She told me that it was easy.  Just feed the kid rice instead of bread.  And what kind of rice did she give her?  Rice A Roni!  Mm hm. 

 

This is the same woman who told me that she put all of her kids on a low sodium diet because heart problems ran on her husband's side of the family.  I blinked my eyes at her and asked her why then she was giving them Gatorade?  Not only was she giving it to them but it was the only thing she allowed them to drink.  As she was telling me that Gatorade had no sodium in it, her husband walked in.  He's a runner.  He blinked at her too and told her that it was loaded with sodium.  She became angry with the two of us but finally read the label, fell silent and put it back in the cupboard.  Yes, she served it from the cupboard and put the opened bottle back in there.  She had some reason (not sure why) that they could only have it at room temp.  Mm hm.

w8in4dave Community Regular

Had pulled pork sandwiches today :) Hubbs got himself some wheat buns! I was shocked! Usually I would get Wheat and he'd get white. So when everything was done he said Look! I got you some buns. I said Dave sweetie I cannot eat that! He looked at them and looked at me. He said their whole wheat, I said hunny I cannot eat wheat .. He just got that look like ughhh what was I thinking? Poor guy!! Lucky for me I had some UDI's bread in the freezer :) He ate the whole wheat and was happy with it! I guess it's the thought that counts. :) 

Rucko Apprentice

When visiting family after being diagnosed with celiac, my father-in-law got out a loaf of home-made bread and told me I would be able to eat some of it because he didn't put gluten in it.  He proceeded to get out a package of Vital Wheat Gluten and assure me he hadn't used it.  My husband said "it doesn't matter, it already has gluten in it" but his dad seemed skeptical...

w8in4dave Community Regular

Rucko I do miss home made bread!! I used to make home made bread every day!! I used to make pizza dough :) Yup I used to add Gluten to it!! I  have got to make some home made gluten-free bread I havn't gotten the nerve yet.. It seems to take so many ingredients .. I just haven't made the list and done it yet!! But man hubbs loved my bread!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,702
    • Most Online (within 30 mins)
      7,748

    Coach Chris
    Newest Member
    Coach Chris
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
    • deanna1ynne
      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
    • deanna1ynne
      The first negative biopsy in 2021 just said "no pathological change" for all the samples, and the second one in 2022 said "Duodenal mucosa with mild reactive change (focal foveolar metaplasia) and preserved villous architecture." So I think Marsh score 0 in both cases, though it's not actually written in the pathology reports. I'm really hoping to get a clear positive result this time, just for her sake.  
    • Wends
      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.