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Gurgles, Neck Pain, Headache Ugghh

answerseeker

By answerseeker
in Coping with Celiac Disease

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answerseeker Enthusiast
answerseeker
Posted

I'm going on like day 4 of gurgling belly, bloating, headaches, stiff neck with pain, and altering d and c.

I cannot put my finger on any cc or glutening. I don't think its a virus because I have no fever. My body temp is actually a bit lower than usual at 97.

Every time I eat, no matter what I eat, I get symptoms.

Can celiac symptoms pop up for no reason after being gluten free for almost 6 months?

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IrishHeart Veteran
IrishHeart
Posted

You can have a stomach bug without a fever. I had one 2 weeks ago. I took extra probiotics and rode it out.

 

People go to my gym when they are sick and spread their germs everywhere. <_< ugh! stay home when you are sick, people!!

 

Celiac disease is under control off gluten, so symptoms of a glutening will not "pop up" unless you have ingested gluten.

 

If you have not been hit, the symptoms you are experiencing may not be related to gluten at all.

 

Even celiacs get the flu once and a while.  It's a bummer, I know. 

 

Hope you feel better soon.

Pegleg84 Collaborator
Pegleg84
Posted

Ditto on Irish.

However, are you absolutely sure you didn't get cc'd from anything? Around the holidays things get tricky, so might be good to double-check on that.

If symptoms last a long time (longer than a stomach flu would), it's always possible it could be an intolerance to something else. Dairy? Soy? anything else that could be bothering you?

 

In the meantime, get some rest and hope you feel better soon!

answerseeker Enthusiast
answerseeker
Posted
  • Author

This is definately a intestinal issue and not the flu. Now I'm having a flareup of er um how do you say without tmi......let's just say preperation H is my friend. I had that issue chronically for years and years (really bad case internal and external) but since going gluten free I haven't had them, well hello there baaaccckkkk

 

I am suspicious of my crock pot. I did a turkey breast in the crock pot for Christmas dinner. I thought it would be ok because it's ceramic but you never know.

AmyP Newbie
AmyP
Posted

I am actually suffering from those exact same symptoms right now... I've been gluten-free for 8 months and every once in awhile have flare ups like this. It's so frustrating! I'm very careful about what I eat (and have even cut dairy-thinking that might be the problem) and the only conclusion I can come up with is that I'm somehow glutening myself...

anti-soprano Apprentice
anti-soprano
Posted

Hi Lori-

Here are some ways I inadvertently glutened myself:

1) old grill grates

2) Bath and Body Works Hand Sanitizer

 

The hand sanitizer was during the winter as I was trying to stay healthy at about the same point as you are now (6 months in).  I would slather it on before I ate and every now and then had something stuck in my teeth.  Whammy. It took me about 3 or 4 weeks to figure that out- only because I ran out of sanitizer and read the label at that point.  Ugh.

 

There are many other ways for this to happen.  Is your kitchen completely gluten free or do you share space?  Are the "gurgling belly, bloating, headaches, stiff neck with pain, and altering d and c" part of your normal glutening symptoms???  

 

Shellie

answerseeker Enthusiast
answerseeker
Posted
  • Author

I've progressively have become worse. I was in the ER over the weekend. They thought I had appendicitis but ct scan ruled it out. However the scan showed fluid in my pelvic cul de sac. Had an ultrasound today and have a GI appointment tomorrow.

My stools have become little pencil thin pieces for the last 6 days. Don't think this is celiac related :-/

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AmyP Newbie
AmyP
Posted

Wow! I'm really sorry to hear that. My symptoms are much better, thankfully... I hope you get some answers soon!

anti-soprano Apprentice
anti-soprano
Posted

I've progressively have become worse. I was in the ER over the weekend. They thought I had appendicitis but ct scan ruled it out. However the scan showed fluid in my pelvic cul de sac. Had an ultrasound today and have a GI appointment tomorrow.

My stools have become little pencil thin pieces for the last 6 days. Don't think this is celiac related :-/

I hope you feel better soon, Lori!  

answerseeker Enthusiast
answerseeker
Posted
  • Author

Thanks :-)

Ultrasound results came back. I have a hemerrhoing cyst on my ovary, uterine fibroids, and possibly endometriosis.

Celiac just keeps coming with surprises

IrishHeart Veteran
IrishHeart
Posted

Thanks :-)

Ultrasound results came back. I have a hemerrhoing cyst on my ovary, uterine fibroids, and possibly endometriosis.

Celiac just keeps coming with surprises

 

 

I had all those too, but hon, even women without celiac develop those issues, too. It's actually fairly common

 

Sorry you are going through it, but it's not necessarily because of celiac.

answerseeker Enthusiast
answerseeker
Posted
  • Author

I thought endometriosis was linked to celiac?

Adalaide Mentor
Adalaide
Posted

I thought endometriosis was linked to celiac?

 

I think it's linked to being a woman. :lol:

 

I don't know, I've never seen any such thing, but I'm not saying it isn't true. I have endometriosis and have had problems since I was a teenager. I'll be laid out for a day or two every month, sometimes barely able to walk and always unable to stand straight because of the pain.

pricklypear1971 Community Regular
pricklypear1971
Posted

Ten years ago, Endo was referred to do frequently as an autoimmune disease. Now, I read they don't know if it's ai or not.

So, who knows.

But it sucks.

They think I have it. Was set up for the scan, etc. by a fertility doc for dx but I finally got pregnant....and pregnancy seemed to put mine into remission.....so, I've treaded with care and aside from a brief flirtation with a bit of estrogen by one doc been symptom free.

Progesterone cream does help me reduce symptoms - cramping, etc. I'd ask for blood and saliva testing to see your levels or you can just but some natural topical progesterone and try it. No rx needed.

Good luck, I know it's painful.

And an endnote - get your thyroid thoroughly tested...not just TSH!!! Free t3, free t4 and antibodies, reverse t3. When my thyroid is off, I get more Endo symptoms....

surviormom Rookie
surviormom
Posted

This is strictly opinion, but I think, if you are a woman and you have celiac, you will have endo and fibroids, however, even if you do not have celiac, there is still a chance you can develop them.  Strictly opinion. 

IrishHeart Veteran
IrishHeart
Posted

I thought endometriosis was linked to celiac?

It can be yes, but my point was that having celiac does not mean you will be predisposed to it.

.

Women who are not celiacs may develop it as well and not all women with celiac have it. See what  mean?

 

And honestly, over 300 symptoms are "associated with" celiac as we know, but it does not mean celiac is to blame for anyone developing those other conditions. It just means they are clinically linked if someone were to look at your health history and connect the dots.

 

That's all I was trying to say.  :)   Hope you feel better soon.

 

PS The gurgles, neck pain and headache you started the post with....are those gone?

answerseeker Enthusiast
answerseeker
Posted
  • Author

It can be yes, but my point was that having celiac does not mean you will be predisposed to it.

.

Women who are not celiacs may develop it as well and not all women with celiac have it. See what mean?

And honestly, over 300 symptoms are "associated with" celiac as we know, but it does not mean celiac is to blame for anyone developing those other conditions. It just means they are clinically linked if someone were to look at your health history and connect the dots.

That's all I was trying to say. :) Hope you feel better soon.

PS The gurgles, neck pain and headache you started the post with....are those gone?

No those symptoms are still present.

pricklypear1971 Community Regular
pricklypear1971
Posted

No those symptoms are still present.

When I was in extreme pain from the supposed Endo, I'd tense my body up. It was so painful, I just wanted to scream. And it wasn't isolated to any one time of the month....and I was left spent and totally exhausted after an episode.

I was stuck between being hungry and wanting to vomit sometimes. I just wanted someone to knock me the hell out.

answerseeker Enthusiast
answerseeker
Posted
  • Author

Uggh so I had my OB/GYN appointment today. She found blood in my urine and lots of protien. So now back to my GP for more tests. Having lab work on my kidneys now. Bladder was very tender upon physical exam and I'm still very lightheaded.

For the cysts just a follow up ultrasound in 2 months to check it's stability

pricklypear1971 Community Regular
pricklypear1971
Posted

Uggh so I had my OB/GYN appointment today. She found blood in my urine and lots of protien. So now back to my GP for more tests. Having lab work on my kidneys now. Bladder was very tender upon physical exam and I'm still very lightheaded.

For the cysts just a follow up ultrasound in 2 months to check it's stability

Do they think you have an infection or are they just not saying?

answerseeker Enthusiast
answerseeker
Posted
  • Author

Do they think you have an infection or are they just not saying?

No infection just blood and protein. Could be stones or the kidneys themselves.

answerseeker Enthusiast
answerseeker
Posted
  • Author

Do they treat endo? She mentioned me possibly having it. We will know more at the 6 week ultrasound

pricklypear1971 Community Regular
pricklypear1971
Posted

Do they treat endo? She mentioned me possibly having it. We will know more at the 6 week ultrasound

Not very efficiently, unless things have changed.

The best defense seems to be to suppress estrogen-so, bcp's or progesterone cream. They do have procedures to remove adhesions, but I think they generally grow back. I think it depends on degree, location and individual response.

You need a laparoscopy to dx it, most times.

I certainly hope you don't have it. It isn't fun.

answerseeker Enthusiast
answerseeker
Posted
  • Author

Not very efficiently, unless things have changed.

The best defense seems to be to suppress estrogen-so, bcp's or progesterone cream. They do have procedures to remove adhesions, but I think they generally grow back. I think it depends on degree, location and individual response.

You need a laparoscopy to dx it, most times.

I certainly hope you don't have it. It isn't fun.

But endo wouldn't cause this right side lower abdominal pain that radiates to the back right? It hurts so much more when I walk

pricklypear1971 Community Regular
pricklypear1971
Posted

But endo wouldn't cause this right side lower abdominal pain that radiates to the back right? It hurts so much more when I walk

In my experience, yes it could.

The endometrial tissue can grow outside the uterus. They find it in odd places.

Women have said they'd take childbirth over Endo. And quite frankly, reflecting on three days of labor....I see similarities.

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