Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Got Glutened By....my Own Stupidity!


tonalynn

Recommended Posts

tonalynn Explorer

Ok, I get it. I can't have gluten anymore. Suspicions removed.

 

This past Friday I started not feeling very well. I haven't been eating as much since going gluten-free in October, just not as hungry or interested in food. Friday was like any other day, working at home and eating my standard fare: frozen waffles, coffee and a banana.

 

Around 4 pm I started feeling queasy. I figured it was from staring intently at the computer screen for several hours, and felt like I had been reading in a moving car. I decided to take a break and lie down. It didn't help.

 

I bit of background - I hate, hate HATE to throw up. I will avoid it at all costs. I even pass out instead of vomiting. I know I'd feel better faster if I quit fighting it and just got it over with, but I just can't, never could. It's just the worst thing ever. I'd rather have my arm cut off than throw up, that's how much I hate it.

 

I took some Nausene (gluten-free) and waited. Didn't feel better. I couldn't figure out what was wrong, I haven't been around sick people, and didn't eat anything out of the ordinary. I remembered I have Zofran, and took one, but it was too late. Not 5 minutes later I was praying to the porcelain god. It was so forceful and so painful, I think I bruised a muscle under my ribs. It was the first time I vomited in 15 years. :-(

 

That night before bed, I kept trying to figure out what happened. All of a sudden, something occurred to me and I went to the kitchen. I looked at the box of frozen waffles I always buy (Simple Truth Gluten Free waffles). There, right on the front of the box....was absolutely no indication they were gluten free. I picked up the wrong box.

 

I guess you do get more sensitive after eliminating gluten. If eating it now makes me do the one thing I absolutely can NOT stand, I'm a believer. No more gluten. It was yummy, but it's not worth throwing up over.

 

I can't believe I did it to myself! Lesson learned - pay attention in the grocery store!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

We've all done it.

Sorry. It sucks.

Hope you feel better soon!

kareng Grand Master

gluten happens!

When I first got diagnosed, my youngest was about 12. He decided to be the gluten police. He would grab things out of my hand if he thought they looked too much like the non gluten-free version ( like Oreos or gluten-free cookie dough ice cream ). He and his dad and brother made me some gluten-free brownies. They put butterscotch chips in them. My husband, son and I all looked at the ingredients and missed the barley malt!

smartcookie Newbie

Thanks for your reply. It’s my first post on here and not sure where it should go. What section should it go in?

 

 

This  is challenging.  Yes, I have done a thorough cleaning, but what is your definition of thorough cleaning? This is new to me.

 

Dust and crumbs fly everywhere so how can I keep kitchen safe?

 

Aren’t  mixing spoon, measuring spoons, measuring cups, baking pans ok if you put in dishwasher?

GF Lover Rising Star

Thanks for your reply. It’s my first post on here and not sure where it should go. What section should it go in?

 

 

This  is challenging.  Yes, I have done a thorough cleaning, but what is your definition of thorough cleaning? This is new to me.

 

Dust and crumbs fly everywhere so how can I keep kitchen safe?

 

Aren’t  mixing spoon, measuring spoons, measuring cups, baking pans ok if you put in dishwasher?

 

SmartCookie,  I started your post as a New Topic.  It can be found here:

 

https://www.celiac.com/forums/topic/105828-making-gluten-free-cookies-in-a-gluten-kitchen/?hl=kitchen

 

Thanks, Colleen

NoGlutenCooties Contributor

You're not alone.  I've been gluten-free for 3 months.  I read every label every time.  I've only eaten out a few times - and only at places I knew would be safe.  Then last weekend I was at a friend's.  She's been great about letting me read all the labels, keeping things separate for me, not giving me a hard time about bringing my own food, etc.  Then she said she had some quinoa salad she wanted me to try.  Then we got talking about the guinoa tabuli I had made a few weeks prior.  Well... she ended up grabbing the tabuli out of the fridge instead of the quinoa salad.  Not my tabuli, but stuff from the deli.  Without thinking and without reading the label I took a tiny taste.  Thankfully it was just a tiny taste to see if I even liked it.  The pursuing conversation went something like this.  "This doesn't taste like quinoa,  um... what's in the tabuli?" - "Oh crap" - (reading of the label) - "Oh crap.  It's Bulgar" - "As in BULGAR WHEAT??" - F**ck

3 hours later my stomach blew up like a baloon - I swear I looked 6 months pregnant.  I went to bed only to wake up an hour later with clammy, sweaty skin and uncontrollable shivers.  I tried to go to work the next day but was getting hot and cold and hot and cold and then shaky.  Had to go back home and curl up on the sofa under a blanket shivering my butt off for the rest of the day.  Took a couple of days for my stomach to really trust me with food again.  Took 5 days for the brain fog to lift.

 

And all that time I just kept saying to myself - how freakin stupid could I be???  I know I can't eat anything prepared at a deli!!  I know better than to taste something without reading the label - usually twice.  What the heck was I thinking????

 

Anyhow...  you're not alone.  I look at it this way... at least I know I've been doing something right because I must be cleaning it out of my system to have a reaction like that to a tiny little bit after just 3 months.  Also, now I don't have to be terrified of the unknown - I know exactly what a glutening is going to do to me.

 

Live and learn.

luvs2eat Collaborator

Been there... done it... after being gluten-free for 10 years! I feel the same way about throwing up, but after grabbing a package of Rudi's hot dog buns and chowing one down, I spent the next many hours on the john w/ a waste can in my lap while my body completely purged itself from both ends. I was amazed that my stomach kept trying to empty LONG after it was dry. I didn't know Rudi's made non-gluten free stuff and didn't even look at the package. THAT was a night I won't forget!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tonalynn Explorer

If I needed positive proof I can no longer eat gluten, I got it last Friday. Since I never had any GI symptoms before (not that I knew of), going gluten free seemed more like a punishment than a cure. I figured if I had some gluten by accident, I'd just feel really tired and foggy, but then be ok, all the damage being done inside was something I couldn't feel. WRONG!

 

At least it was good enough emphasis that I can't have gluten, and it WILL make me sick. I have a lot less of a problem going gluten free if I know it's going to literally make me puke. Yuck!!

 

My bf and I came up with a good saying for a bumper sticker: Eatin' Gluten Gets Me Pukin'! :D

MGR Apprentice

Don't feel bad, I've done something even more stupid! I live in UK and my family and I spent Christmas in Spain with my family and my husband's family flew out from UK. Big party and very tricky to cater for gluten free surrounded by gluten full eaters. I was doing the cooking and managed to stay safe for nearly two weeks, only one minor incident with some chocolates we thought were gluten free but weren't ... And a little tummy ache with A little D on the side.. But the really serious thing I did was whilst travelling back from Spain to Uk an I learned how tricky it is being on the move with celiac. Our ferry in Spain was cancelled due to bad weather and we had to embark on an epic three day drive through Spain, France and uk to get back home. I had my gluten free goodies, like bread, ham, rice cakes, home made Spanish tortilla, rice and chicken with cauliflower salad- by day 2 I had eaten all my cooked foods and only had bread and cheese left. We were on the boat, it was lunch time, warm food.... Nothing I could eat available ... See a steak looking at me and before I could evaluate the situation, I had ordered one, without chips but with peas... Ate it and OMG! I spent the rest of the journey with horrendous tummy ache and arrived home in the early hours in the morning and have been clutched to the WC ever since! Lesson learned - always ask, never assume anything, and if in doubt eat your rice cakes! I have only been gluten free for about 4 weeks now and the thing I have learned so far, it is a great learning curb! Happy New Year to you!

MGR Apprentice

Sorry, I managed to post this two times by accident and can't work out how to remove this second one- but I will take this opportunity to wish you all a very happy new year!!

MsMarginalized Rookie

Been there, done that!

 

I was diagnosed in Oct. 2012 & started gluten-free right away.  For the past 9 months or so everything was smooth (ish).  In the last 3 months, I've found that sneaky little weasel we call gluten creeping in!  First it was the WalMart brand of crinkle cut french fries.  Has wheat.  And their BBQ sauce & steak sauce...all have wheat!  DS (he was diagnosed a month after I was) realized the fryer oil was contaminated by the weasly french fries.

 

I keep a mixed kitchen (DH & DD are not gluten-free) but I'm wondering if that really is do-able?  DS was just asking me today about when we wash our gluten-free pots & pans in same water as everything else & he's the one that realized the plastic cereal bowls would be a problem...I'm almost feeling as helpless as when I was first diagnosed! :(

NoGlutenCooties Contributor

I keep a mixed kitchen (DH & DD are not gluten-free) but I'm wondering if that really is do-able?  DS was just asking me today about when we wash our gluten-free pots & pans in same water as everything else & he's the one that realized the plastic cereal bowls would be a problem...I'm almost feeling as helpless as when I was first diagnosed! :(

 

My uncle was diagnosed with Celiac approx. 15 years ago and my aunt keeps a mixed kitchen.  My uncle has his own toaster and I think his own cutting board.  But all other utensils, plastic storage containers, etc. are shared and they have no problems - they just wash everything very well before using it to prepare gluten-free food.  And he's very sensitive to cross-contamination but they make it work.  I know many on here are advocates for separate plastic (utensils and containers) but it seems unnecessary as long as they are washed thoroughly.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,668
    • Most Online (within 30 mins)
      7,748

    CDR40
    Newest Member
    CDR40
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.