Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can A Person With Celiac Donate A Kidney?


Nikki2777

Recommended Posts

Nikki2777 Community Regular

Just wondering - I've got someone in my life who is looking for a donor.  

 

Thanks,


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

Just wondering - I've got someone in my life who is looking for a donor.  

 

Thanks,

Hi Nikki.......my brother is now looking into kidney transplant surgery as he is a Type 1 diabetic and has been for years.  I believe he also has Celiac but I can't convince him it could be the reason his health is so poor.  I doubt any one with Celiac would be able to donate because doctors generally do not accept those with autoimmune issues.  Celiac's have a high alert immune system...overactive, so removing a kidney could stir up trouble.  I cannot donate blood because I have 4 AI diseases.  I have them all under good control, but I was rejected for donating blood due to this issue.

 

I hope that person in your life is successful in finding a kidney and becomes well again!  Good luck.

kareng Grand Master

Open Original Shared Link

Can someone with celiac disease donate blood, bone marrow or organs?

There is no reason why someone with celiac disease (in remission while on a gluten-free diet) can’t donate blood, other biological specimens or postmortem organs.

Not sure if they thought about non- postmortem organs in answering this question.

IrishHeart Veteran

I would not risk it, hon.

 

You would have to be on many drugs (pre- and post-surgery) which would seriously impact your gut health. Anesthesia often causes problems.

 

I would think donating blood is fine (mine was always rejected because of anemia) or possibly even a bone marrow transplant, but 

a surgical procedure and an organ transplant? Not a great idea.

 

Post-mortem, yes.

I am an organ donor and if anything in my body can help someone, I say,  have at it. .

Gemini Experienced

Yup...I agree, Irishheart. Some medical advice is wonky and not to be trusted. With an over active immune system, even under good control with the gluten-free diet, having an organ removed is asking for trouble. It's a total crapshoot and a path I would not venture down myself.

I was rejected for blood donation due to autoimmune disease. They do not like to take blood from people with these issues because donation could dump you into anemia or other problems. I suppose there are places that wouldn't take this into account but I am glad the woman was honest enough to tell me this. She appreciated the offer but said no. I can live with that...there are plenty of other people who can donate.

frieze Community Regular

I would wonder if the donee would have problems with the donated kidney, after all, our genes are expressed in all parts, yes?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,220
    • Most Online (within 30 mins)
      7,748

    Dye42
    Newest Member
    Dye42
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.