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Just Saying Hello!


justgf

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justgf Newbie

Hi Everyone,

 

I am new but new on the forum. I have been reading the forum for about  5 months now and have found tons of helpful  information here. I have seen this forum members provide lots of support to others. I have found the stories and the information shared here very informative and very encouraging. Cheers to all of you for such good work :)

 

Little about me:

 

   I was diagnosed with celiac late 2013. I had suspected I might have it after my mom was diagnosed with Celiac in 2009 but I guess I was in denial and in university  :D  so I decided to push my diagnosis back for a while. My symptoms for Celiac were constipation, fatigue and anemia . Not having severe symptoms also contributed to not take the Celiac seriously but I guess I should count my blessings and be thankful that the symptoms are not severe.

  

 My mood started getting worse (very angry and irritable)  last year and I guess so did the damage to my gut. Endoscopy showed grade 3 out of 4 damage (it sound bad given that my GI  looked concerned ^_^ ). I guess I can't cry about it now given this is a consequence of my own choice -_- . 

 

I have been gluten free for about 3 months (well 4 months of I count the big blunders I made in the first month of the diet)  and hoping that my health will go no where but up  :D .

 

I just completed the follow up blood work yesterday and am hoping that it shows some good results of my hard work for the last 3 month. I need some positive vibes from you guys!!!

 

Thank you!

 


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bartfull Rising Star

:D Hooray for you! :D

 

I'm glad you finally got tested. My Mom had it too and like you, I was in denial for a long time. But I'm so glad I finally went gluten-free. Glad you did too. I hope your tests show great improvement!

GottaSki Mentor

Welcome JustGF!

 

The good news is that once the transition is complete it gets much easier.

 

It is great that your symptoms were not severe...you are still young and will heal now that you are living gluten-free.

 

Good luck with your upcoming check...let us know how it goes :)

LauraTX Rising Star

Welcome!   This is a great place to be, feel free to ask anything.

justgf Newbie

Thank you everyone!

 

I am really optimistic about this positive (and at times hard) lifestyle change. I guess its all worth it in the end. 

I am just hoping to see some validation in the results for the blood work. I will share how it went. 

livinthelife Apprentice

Welcome! I say that like an old pro when I was just officially diagnosed 11/13! 

 

Yes, let us know how your blood work goes. I go back in April for my follow-up and am hoping for some good stuff! Keep up the good work!

GFinDC Veteran

Welcome to the group! :)  As long as your antibodies are lower than before you are making progress.  You'll be an old-pro in no time! :D


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NoGlutenCooties Contributor

Welcome JustGF!

 

I was diagnosed on Oct 1, 2013 so haven't been at this for long.  I go back for the follow-up blood work towards the end of March.  You're very fortunate to have caught this thing before getting severe symptoms.  I didn't have any symptoms and yet the biopsy showed moderate to severe villi damage - so the myth about "no symptoms, no problem" (a.k.a. blatant denial) is a load of crap.  ^_^

 

Good luck on your gluten-free journey!

justgf Newbie

Thank you everyone! I got my blood work results back today.

Now way back in 2009 I was tested in diff country while taveling and my ttg was 297and I have been on full gluten diet until last year november Here in canada I they never give a number. It just said > 200.

But happy to say its 160 Yay!! It might not be as low as others might have seen but I am happy for this progress. My other antibody is now NORMAL.

My hemoglobin had jumped from the 70s to 127. My ferritin has gone up to 73!

Just thought I should share the numbers. I am off to celebrate with some glutenfree honey and peanut butter sandwiches :)

LauraTX Rising Star

Thats great to hear.  You are on the right track, and the first few months are the hardest.  

1desperateladysaved Proficient

Glad to hear you are recovering.  Have a nice journey.

 

D

GF Lover Rising Star

Congratulation to YOU!!.  Enjoy your celebration  :)

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    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
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