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Suddenly Have Gluten Sensitivity?

lostinpa

By lostinpa
in Related Issues & Disorders

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lostinpa Newbie
lostinpa
Posted

I have been tested twice for celiac disease and both times my blood work came back negative..I have MS and thyroid problems. I ended up doing the radioactive iodine to kill my thyroid.  I have iron deficient anemia as well.  The anemia only started about a year ago. I had an endoscopy to see if I was bleeding internally.  The only thing that showed up was my stomach lining was red and inflamed.The doctors said that was from my use of Motrin for the last 8yrs.  Never a mention of gluten sensitivity.  Can you all of a sudden be gluten sensitive or was I born with it?  

 

I am so confused about this...

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notme Experienced
notme
Posted

me too!  why do you think you have gluten sensitivity?  celiac wouldn't show in your stomach, it would show in damage to your small intestine.  have you had an endoscopy?

lostinpa Newbie
lostinpa
Posted
  • Author

Yes I had an endoscopy and a colonoscopy.  The reason I might have a sensitivity to gluten was from the suggestion from my neurologist.I have had stomach issues my entire life.  Nausea, constipation, stomach pain....

mamaw Community Regular
mamaw
Posted

did  they  take  several biopsies  when  you  had the  endo done? I too am  thyroidless  from RAI...plus  several other  autoimmune  disorders...it  appears  once  your  get  one  autoimmune  more  follows.....

You  can develop  sensitivity   at  any  time...

There  are  many  who only  have  anemia  &  docs  put  hem on a gluten-free  diet....

Lost  in pa...... I'm  from  western Pa.....(Pittsburgh area)

NoGlutenCooties Contributor
NoGlutenCooties
Posted

Can you all of a sudden be gluten sensitive or was I born with it?  

 

Welcome to the Forum LostInPA -

 

You're born with a predisposition for Celiac - the predisposition for it is genetic.  But that doesn't mean that you will necessarily get it.  Some develop the disease very early in life - pretty much as soon as they are given solid foods that contain gluten.  Others don't develop it until very late in life.  Some develop it after a traumatic event (i.e a serious illness, pregnancy, etc.).  Some have intense symptoms and some have no symptoms at all.

 

(FYI... about 1/3 of the population has at least one of the genes identified as predisposing you to Celiac.  Only about 1% of the population actually has it.)

mommida Enthusiast
mommida
Posted

A gluten free diet has been shown in some studies to be helpful for auto-immune diseases.  (In basic terms..  the gluten protein chain is more complex,  choosing a simple diet is easier for an already stressed body~ so eliminating extra stress in the gut enables the body to be healthier.  The usual suspects for food intolerance/allergies are well known as the top 8 allergen list) 

 

I have known an MS sufferer who went on the gluten free diet as a last line of defense (she could no longer afford her medications).  She has had an amazing turnaround in her health.  She has also decided to avoid sugar among other allergens.  Her doctor now really stresses to patients that changing their diet is part of treatment plan that works.

 

If you have had testing for Celiac/intolerance completed you can start the diet.  Welcome to the board!  Any questions feel free to ask.  Peruse old posts by all means, but if you need to ask questions, it might be best to start a new thread.

sarahdea Rookie
sarahdea
Posted

Yes. My gluten-insensitivity seems to have been triggered by pregnancy. I am very new to gluten-free lifestyle.  Like you, I have thyroid problems. I have to pay down my existing medical bills before I get the endoscopy test to get more difinative results...  But for me, the bottom line is, how do I FEEL. This gluten thing hit me all of a sudden, and I just felt terrible after eating: I mean debilitating gut pain!   When I cut out gluten, I stopped having excruciating pain! And now that I have cut out dairy, my other GI issues seem to have calmed down as well.  

 

So, IMO, doctors and tests ARE important, but as Celiac and NCGI are only treatable by diet, change your diet and see how you feel. :)

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kareng Grand Master
kareng
Posted

Yes. My gluten-insensitivity seems to have been triggered by pregnancy. I am very new to gluten-free lifestyle.  Like you, I have thyroid problems. I have to pay down my existing medical bills before I get the endoscopy test to get more difinative results...  But for me, the bottom line is, how do I FEEL. This gluten thing hit me all of a sudden, and I just felt terrible after eating: I mean debilitating gut pain!   When I cut out gluten, I stopped having excruciating pain! And now that I have cut out dairy, my other GI issues seem to have calmed down as well.  

 

So, IMO, doctors and tests ARE important, but as Celiac and NCGI are only treatable by diet, change your diet and see how you feel. :)

If you go gluten-free, there is no point in other celiac tests - blood or endo. You will have to go back on gluten for a few months to get an accurate celiac test. It's best to get tested before you go gluten-free.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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