Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long After Being Glutened Do You Feel It?

icelandgirl

By icelandgirl
in Coping with Celiac Disease

Recommended Posts

icelandgirl Proficient
icelandgirl
Posted

I think I've been glutened...but I'm not sure. I've been feeling better daily until today. Had the big D after a week and a half without. Stomach cramping, achy joints, fuzzy head. Awful...tired...etc.

I ate out for the first time on Saturday...felt fine then, Sunday and yesterday. Then today it's awful. Could it take this long? I've looked at everything else I've eaten and prepared myself and I don't see anything. Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


luvs2eat Collaborator
luvs2eat
Posted

How long have you been gluten free? It seems like people's reactions happen faster when they've been gluten-free for longer periods of time. When I first started eating gluten-free, I made lots of mistakes and never had any symptoms. A few years later, I was glutened and it took about 4 hours for the explosive D to hit. I've been gluten-free for more than 10 years and the last time I was glutened (last year), it was within an hour and incredibly violent as my body simply purged itself for hours and hours from both ends.

icelandgirl Proficient
icelandgirl
Posted
  • Author

How long have you been gluten free? It seems like people's reactions happen faster when they've been gluten-free for longer periods of time. When I first started eating gluten-free, I made lots of mistakes and never had any symptoms. A few years later, I was glutened and it took about 4 hours for the explosive D to hit. I've been gluten-free for more than 10 years and the last time I was glutened (last year), it was within an hour and incredibly violent as my body simply purged itself for hours and hours from both ends.

It's been about 4 weeks. I feel like I've been so careful.
CaliSparrow Collaborator
CaliSparrow
Posted

That's awful luvs2eat! I've heard the symptoms can get worse but I am not there yet. Icelandgirl, I've been gluten-free for 15 months. The third and fourth days are the most obvious for me. The first thing it impacts is my ability to think so it sometimes takes the symptoms getting a head of steam for me to realize it's happened. That's unless I try out a restaurant (which is rare) and if I leave really dopey & tired, I know I've been hit. When I don't expect it, I become clueless until the bigger symptoms happen. Also, I have found that stress and lack of sleep can give me some symptoms. Sometimes, I feel generally unwell because the gut hasn't had time to fully heal and sometimes it's because I'm sensitive to a food other than gluten. The first year was hard for me.

I hope you feel better soon!

Cali

icelandgirl Proficient
icelandgirl
Posted
  • Author

That's awful luvs2eat! I've heard the symptoms can get worse but I am not there yet. Icelandgirl, I've been gluten-free for 15 months. The third and fourth days are the most obvious for me. The first thing it impacts is my ability to think so it sometimes takes the symptoms getting a head of steam for me to realize it's happened. That's unless I try out a restaurant (which is rare) and if I leave really dopey & tired, I know I've been hit. When I don't expect it, I become clueless until the bigger symptoms happen. Also, I have found that stress and lack of sleep can give me some symptoms. Sometimes, I feel generally unwell because the gut hasn't had time to fully heal and sometimes it's because I'm sensitive to a food other than gluten. The first year was hard for me.I hope you feel better soon!Cali

Thanks Cali. Ugh...it feels icky. And it's so disappointing after starting to feel better. I think I'm gonna have to blame it on the restaurant and it took me 2 1/2 days to feel it.
NoGlutenCooties Contributor
NoGlutenCooties
Posted

Just throwing this out there... any chance it's a bug?

icelandgirl Proficient
icelandgirl
Posted
  • Author

Just throwing this out there... any chance it's a bug?

I'm not a doctor so I don't know I guess. It feels much more like everything I was feeling before going Gluten-Free. Even my lower left rib cage is sore again and that was going away.
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


icelandgirl Proficient
icelandgirl
Posted
  • Author

Looking over everything I've eaten leading up to what I think is glutening I also realized that I had oats for the first time since my diagnosis. They were Bob's Red Mill gluten free. So...The 2 thoughts are either being glutened by Red Robin and feeling it about 48 hours after or the oats and feeling it less than 2 hours after.

Does anyone else have delayed reactions? How long does it take to get better? And is there anything I can do to help it?

Thanks so much for any advice.

NoGlutenCooties Contributor
NoGlutenCooties
Posted

I haven't touched oats since my diagnosis so I can't say for sure whether I could tolerate them.  But both my uncle and my mother have Celiac and neither of them can tolerate oats - even the certified gluten-free ones.  They both react the same to them as they would to wheat or anything else with gluten in it.  (Which is why I haven't gone near them.)

icelandgirl Proficient
icelandgirl
Posted
  • Author

I haven't touched oats since my diagnosis so I can't say for sure whether I could tolerate them.  But both my uncle and my mother have Celiac and neither of them can tolerate oats - even the certified gluten-free ones.  They both react the same to them as they would to wheat or anything else with gluten in it.  (Which is why I haven't gone near them.)

I really didn't think anything of it. I was making meatloaf and it called for oats and I had gluten free ones. Now I'm suffering.

Have you ever been glutened? What does it feel like? How long does it last? Does anything help? I was feeling so encouraged and this feels like a setback and it's hard emotionally.

NoGlutenCooties Contributor
NoGlutenCooties
Posted

I really didn't think anything of it. I was making meatloaf and it called for oats and I had gluten free ones. Now I'm suffering.

Have you ever been glutened? What does it feel like? How long does it last? Does anything help? I was feeling so encouraged and this feels like a setback and it's hard emotionally.

 

I was glutened once when I took a little tiny taste of tabuli that I got mixed up with another salad.  The tabuli had bulgar wheat in it - and I couldn't have eaten more than about 6 or so tiny pieces of it.  A few hours later I went to bed and shortly afterwards was woken up with chills and cold sweats - like what you get when you come down with the flu or get food-poisoning.  Thankfully I didn't experience any intestinal symptoms and was able to force myself to go back to sleep.  The next day I couldn't concentrate, was still freezing cold, and completely exhausted.  I was tired and "off" for about 5 days and was irritable for a couple weeks or so.  I was so pissed at myself!

Everyone seems to have different reactions though - partially based on how much gluten they actually consume.  Seems like a person's reaction will vary over time too.

Many Celiacs can tolerate gluten-free oats, but some of us can't.  Sorry you had to learn the hard way.

Did you put ketchup on the meatloaf?  I don't think all ketchup is gluten-free either.

 

Edited to add: Forgot to mention, my first sign that I was going to get symptoms was bloating.  Before I went to bed my stomach blew up like a balloon - I swear I looked pregnant.

icelandgirl Proficient
icelandgirl
Posted
  • Author

I was glutened once when I took a little tiny taste of tabuli that I got mixed up with another salad.  The tabuli had bulgar wheat in it - and I couldn't have eaten more than about 6 or so tiny pieces of it.  A few hours later I went to bed and shortly afterwards was woken up with chills and cold sweats - like what you get when you come down with the flu or get food-poisoning.  Thankfully I didn't experience any intestinal symptoms and was able to force myself to go back to sleep.  The next day I couldn't concentrate, was still freezing cold, and completely exhausted.  I was tired and "off" for about 5 days and was irritable for a couple weeks or so.  I was so pissed at myself!Everyone seems to have different reactions though - partially based on how much gluten they actually consume.  Seems like a person's reaction will vary over time too.Many Celiacs can tolerate gluten-free oats, but some of us can't.  Sorry you had to learn the hard way.Did you put ketchup on the meatloaf?  I don't think all ketchup is gluten-free either. Edited to add: Forgot to mention, my first sign that I was going to get symptoms was bloating.  Before I went to bed my stomach blew up like a balloon - I swear I looked pregnant.

Thanks...I'm bummed. The ketchup was gluten free. So either the oats or red robin. I'm so painfully gassy and constantly burping and uncomfortable and the D. Hopefully it starts to get better soon? I just went and got digestive enzymes since a lot of people on here say those help.

I guess I want to think it was glutening because I don't want to have something else be wrong with me. Between late December and late January I received 4 diagnoses...Uterine polyps, gallbladder polyps, h pylori and celiac. I'm 2 weeks out of gallbladder removal and uterine polyp removal and was really ready to have my life maybe start feeling normal. Sigh.

notme Experienced
notme
Posted

I'm not a doctor so I don't know I guess. It feels much more like everything I was feeling before going Gluten-Free. Even my lower left rib cage is sore again and that was going away.

when i get that lower left under the rib cage pain, it is a dead giveaway.  my reaction time is also 2 days - very frustrating!  lolz - and the last time i ate out, it was (ta daaa!)  red robin.  i had eaten there before with no issue, but they got me the second time i tried it.  i start getting a headache and gradually, joint pain, fatigue, the big D, all those lovely symptoms i lived with for years.  annnd for me it takes 14 days to get back to normal.  sorry you got hit - hope you feel better (everybody's duration of symptoms seem to be different, as well...)

GF Lover Rising Star
GF Lover
Posted

I feel it before my dinner is over.  Takes the question work right out of the equation.

 

Colleen

icelandgirl Proficient
icelandgirl
Posted
  • Author

when i get that lower left under the rib cage pain, it is a dead giveaway.  my reaction time is also 2 days - very frustrating!  lolz - and the last time i ate out, it was (ta daaa!)  red robin.  i had eaten there before with no issue, but they got me the second time i tried it.  i start getting a headache and gradually, joint pain, fatigue, the big D, all those lovely symptoms i lived with for years.  annnd for me it takes 14 days to get back to normal.  sorry you got hit - hope you feel better (everybody's duration of symptoms seem to be different, as well...)

OMG...The rib pain. I hate it. Does anything help with it? It's a constant.

I was so excited to go out to eat...first time since being diagnosed. The waitress was very knowledgeable. And now this...ugh.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,695
    • Most Online (within 30 mins)
      7,748
    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.