Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Celiac?

Fenrir

Recommended Posts

GottaSki Mentor
GottaSki
Posted

Protein, Total, Serum=  7.9 g/dL  range=6.4-8.2

Albumin, Serum=4.5 g/dl    range 3.4-5.0

Bilirubin, Total=0.7 mg/dl     Range 0.1-1.2

Bilirubin, Direct 0.2 mg/dl  Range 0.0-0.2

Alkaline Phosphatase, Serum= 158 U/L    Range=50-136 H

AST (SGOT)= 39 U/L   Range=0-37 H

ALT (SGPT)= 87 U/L Range= 0-65 H

A/G Ratio= 1.32     Range=1.00-2.00

 

 

Makes me feel a little better seeing the numbers. They are high but not that much, not uncommon for people with Celiac disease to have liver enzymes 15-20 or so points high when they are loaded up on gluten. The labs were drawn in the afternoon and that morning I ate a couple of donuts and had a couple of gluten packed bars for a snack just before I got the Drs. Office since I wasn't expecting to get my blood drawn. 

 

Elevated liver enzymes correct with time gluten-free.  Mine were very high at diagnosis and came down at a consistent rate until they were normal.  They have lived at a nice "normal" low for about three years now.

 

Welcome to the club....with time those elevated liver enzymes become part of the puzzle and their decrease is comforting....at least it was for me.

 

Hang in there :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 66
  • Created
  • Last Reply
Fenrir Community Regular
Fenrir
Posted
  • Author

Well, starting to seem like i'm lactose intolerant or at least more sensative to it now than I was before. Really massive bloating and gas after eating a cup of yogurt.

 

I'm going to be miserable for a while when I go gluten-free, I eat yogurt and breat pretty much everyday.

GottaSki Mentor
GottaSki
Posted

Well, starting to seem like i'm lactose intolerant or at least more sensative to it now than I was before. Really massive bloating and gas after eating a cup of yogurt.

 

I'm going to be miserable for a while when I go gluten-free, I eat yogurt and breat pretty much everyday.

 

You will likely get your yogurt back -- try it again after six months gluten-free :)

Celiacandme Apprentice
Celiacandme
Posted

How your endoscopy/scope been scheduled? I'm glad you are starting to get some answers. Hope your scope is scheduled soon so you can go completely gluten free and get on the road to feeling better.

Fenrir Community Regular
Fenrir
Posted
  • Author

Unfortunately, all the GI groups around here are pretty busy so I don't get in until the 21st of April.

ezgoindude Explorer
ezgoindude
Posted

Unfortunately, all the GI groups around here are pretty busy so I don't get in until the 21st of April.

Quick question Fennir,

 

By change did you notice any stomach pain or differences in stool prior to them thinking your gallbladder was the cause?  After cutting it out any difference in shape, color, or consistency?

 

Lol, nasty that I'm even asking but I'm currently going through this battle myself in getting a diagnosis and my guts occassionally burning and just funky looking stool is throwing me off.  Only been gluten/milk free for almost 4 months.

Fenrir Community Regular
Fenrir
Posted
  • Author

Quick question Fennir,

 

By change did you notice any stomach pain or differences in stool prior to them thinking your gallbladder was the cause?  After cutting it out any difference in shape, color, or consistency?

 

Lol, nasty that I'm even asking but I'm currently going through this battle myself in getting a diagnosis and my guts occassionally burning and just funky looking stool is throwing me off.  Only been gluten/milk free for almost 4 months.

Well, yes, I have had light colored stools since before I had my gallbladder out. Still happens sometimes now. Also have floating poop frequently, Both of those can be caused by celiac or a gallbladder issues.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fenrir Community Regular
Fenrir
Posted
  • Author

My joints have been killing me the last couple weeks, particularly my knees. Can hardly make up stairs these days.

 

Two weeks until my biopsy. :(

cyclinglady Grand Master
cyclinglady
Posted

Hang in there!

GFinDC Veteran
GFinDC
Posted

Quick question Fennir,

 

By change did you notice any stomach pain or differences in stool prior to them thinking your gallbladder was the cause?  After cutting it out any difference in shape, color, or consistency?

 

Lol, nasty that I'm even asking but I'm currently going through this battle myself in getting a diagnosis and my guts occassionally burning and just funky looking stool is throwing me off.  Only been gluten/milk free for almost 4 months.

Hey EZ,

 

If you read up on having your gallblader removed you will find that the follow-on symptoms may include problems with diahrea and stool changes.  They say that tends to improve over time, like a year or so.

 

Open Original Shared Link

 

There have been quite a few people post on the forum about having their gallbladders removed prior to finding out they had celiac disease.  IMHO it's possible in some cases they may have been able to save their gallbladders if they knew about the gluten-free diet and began following it earlier.  The gallbladder reacts to chemical signals from the small intestine to discharge it's contents.  So if the small intestine is damaged and not sending those chemical signals the gallbladder is left helpless/up the creek.

 

Having your gall bladder out means the liver bile is continually being dumped into the small intestine instead of being held until needed by the gallbladder.  It's kinda similar to walking around with a full bladder and never urinating.  Eventually that is going to cause a problem.  If nothing else when it gets high enuff your eyes will turn yeller. :)

 

Of course if the gallbladder is already diseased/iretrievably damaged it needs to come out.  But it is worthwhile trying the gluten-free diet as a fix if that is not the case.  Once the small intestine heals and can make the chemical signals again, things may start working better in the gallbladder.

ezgoindude Explorer
ezgoindude
Posted

 

Thanks for the reply Fenrir!  I feel you on the joint pain,  mine is only located in the lower back at the moment. 

 

 

Sup GFinDC!  I should have added that I haven't had any surgery yet, heck, they haven't even suspected my gallbladder after the mysterious endoscopy......

 

What is really bugging me is I haven't had a "normal" stool in months, pretty much right before I started getting crazy symptoms beyond the IBS excuses.

 

The stool is the right shape but color is off,  always light brown/ligh green?/tan......

 

 

Its also annoying that I'm doing an elimination diet but not finding relief and what could be problems other than gluten.  For example, I've brought back bell pepper and onion this week, and do necessarily feel worse, you know? so I can keep eating them?  then you read accounts online and nightshade veggies are supposed to be the worst for you?

 

Sorry for the rants but I tend to use this forum in some ways to vent when its been 6 months of testing with little to no idea on what they want to diagnose me.

GFinDC Veteran
GFinDC
Posted

Thanks for the reply Fenrir!  I feel you on the joint pain,  mine is only located in the lower back at the moment. 

 

 

Sup GFinDC!  I should have added that I haven't had any surgery yet, heck, they haven't even suspected my gallbladder after the mysterious endoscopy......

 

What is really bugging me is I haven't had a "normal" stool in months, pretty much right before I started getting crazy symptoms beyond the IBS excuses.

 

The stool is the right shape but color is off,  always light brown/ligh green?/tan......

 

 

Its also annoying that I'm doing an elimination diet but not finding relief and what could be problems other than gluten.  For example, I've brought back bell pepper and onion this week, and do necessarily feel worse, you know? so I can keep eating them?  then you read accounts online and nightshade veggies are supposed to be the worst for you?

 

Sorry for the rants but I tend to use this forum in some ways to vent when its been 6 months of testing with little to no idea on what they want to diagnose me.

 

Hi EZGoingDude,

 

The thing about food intolerances is, they don't come in a one size fits all package.  I might be intolerant to ABC and C,  while you might be intolerant to X, Y and Z.  That's why elimination diets are so helpful, they reveal the food intolerances of the person doing the diet, not some random others.

 

II don't know how you are doing your elimination diet.  A good way is to start with a very small number of foods, often 5 foods, and then slowly build up from there.  Slow as in adding only one new food every 3 to 5 days.  If you add too many foods to quickly it wil confuse the results.

 

Starting off with the just 5 foods for two weeks you should see an improvement in symptoms.  If you don't have any change either you are intolerant to one or more of the 5 foods you started with, or there is some other issue going on.

 

Another common digestive issue for us is gut flora whackiness, or dysbiosis.  That's where probiotics can  be helpful.

ezgoindude Explorer
ezgoindude
Posted

Yea, after the blood tests come back I'm thinking of saving up for a food allergy test.... I caved and bought digestive enzymes to help the body, wouldn't hurt the gallbladder anymore, right? (haven't even checked that one yet....) 

 

What would be the recommended amount of probiotics daily?  the stores have it vary between 5billion to 200billion,  I bought 20billion thinking an average would be good.

 

Let us know about the biospy Fenrir,  from my endoscopy the doctor could see damage yet my biopsy shows healthy and normal........ getting nowhere!

GFinDC Veteran
GFinDC
Posted

Yea, after the blood tests come back I'm thinking of saving up for a food allergy test.... I caved and bought digestive enzymes to help the body, wouldn't hurt the gallbladder anymore, right? (haven't even checked that one yet....) 

 

What would be the recommended amount of probiotics daily?  the stores have it vary between 5billion to 200billion,  I bought 20billion thinking an average would be good.

 

Let us know about the biospy Fenrir,  from my endoscopy the doctor could see damage yet my biopsy shows healthy and normal........ getting nowhere!

 

Hi Ezgoing,

 

There aren't any set standards for amounts to take yet. 

 

Celiac Now (Harvard) probiotics, Prebiotics etc.

Open Original Shared Link

 

I have some that are 5 billion and some that are 10 billion etc.  The little buggers are going to multiply in your gut after all, so it's not critical I don't think.  But taking them every day for a while is good, so they can get established.

Fenrir Community Regular
Fenrir
Posted
  • Author

Well, only a few days until I have the colonscopy/EGD with biopsy.

 

I never would have expected to be excited to get a colonoscopy/EGD done but I just want to know what's wrong and get it fixed.

 

Knees continue to kill me lately, now headaches.

 

Hopefully this will be all over soon, because it seems to be getting worse.

Fenrir Community Regular
Fenrir
Posted
  • Author

Well, had the colonscopy and EGD with biopsies done yesterday. Went pretty well, wasn't as bad as I thought.

 

The GI doc says I probably don't have Crohn's which is good. Colonoscpy was negative for pretty much anything of cocern. EGD noted some reflux which I have had in the past but otherwise on visual looked fine.

 

Just waiting for biopsies to come back later in the week. She also did biopsies of the colon just because they were in there.

GFinDC Veteran
GFinDC
Posted

I hope they come up with some clear answers for you fenrir.  Waiting for test results sure is fun eh?  :)

Fenrir Community Regular
Fenrir
Posted
  • Author

Well, I wasn't expecting to get the results the next day but I it is official, I have Celiac Disease. 

 

I'm strangely happy about that, at least now I know what it is and it's not something worse. 

 

Colon biopsy negative so everything good there. 

 

Feels good to have a direction after 6 months of chronic pain and not feeling well. Good thing we figured this out as well, symptoms were getting worse. 

kareng Grand Master
kareng
Posted

Well, I wasn't expecting to get the results the next day but I it is official, I have Celiac Disease. 

 

I'm strangely happy about that, at least now I know what it is and it's not something worse. 

 

Colon biopsy negative so everything good there. 

 

Feels good to have a direction after 6 months of chronic pain and not feeling well. Good thing we figured this out as well, symptoms were getting worse.

Welcome to the club! Unfortunately, the secret decoder rings have been on back order for 2 years. :)

cyclinglady Grand Master
cyclinglady
Posted

Supply issues still??????

Welcome, Fenrir!

LauraTX Rising Star
LauraTX
Posted

Good to hear you finally have some answers, Fenrir.  Welcome to the "Nooooooo I don't wanna be in that club" club.  :)

Fenrir Community Regular
Fenrir
Posted
  • Author

Thanks for the welcomes.

 

This is the coolest uncool club that I never wanted to be a part of...... :P

1desperateladysaved Proficient
1desperateladysaved
Posted

Glad you are now ready to start your new gluten free life.  I am so glad you got a definitive diagnosis and so soon after the scope!

 

Dee

GFinDC Veteran
GFinDC
Posted

Wow, those were quick test results!

 

So, time to learn how to eat gluten-free then.  There is a whole new world of whole foods and gluten-free alternatives to explore.  It can be kind of fun to try out new foods that you may not have considered in the past.  Welcome to the 1% club Fenrir! :)

GottaSki Mentor
GottaSki
Posted

Welcome to the best club none of us ever wanted to join.

 

Good health awaits...cheers!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. sc'Que?
      - sc'Que? commented on Celiac.com Sponsor: Review's article in Product Reviews
      1

      Bold Taste, No Alcohol & Crafted to Remove Gluten: Daura Non-Alc Beer Takes Alcohol-Free Beer to the Next Level

      @Daura Damm: Can we get a gluten-free Imperial Oatmeal Stout, please? Please?!?
    2. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    4. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    5. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,545
    • Most Online (within 30 mins)
      7,748
    PatientOne
    Newest Member
    PatientOne
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.