Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

504 Plan For Pre-K/kindergarten


Fourmonkeysjumping

Recommended Posts

Fourmonkeysjumping Rookie

Hi everyone,

My daughter is currently in preK (she's a peer model in an integrated public program) and currently does not have a 504.  We have never needed it with our son (3rd grade), because he has an amazing elementary school nurse who goes above and beyond.  Alas, we are now having to look into it for our daughter, because her teacher just really isn't getting it.  The final straw was an email we received yesterday asking if she could help make papier-mache as long as she wore gloves or should she just watch.  I explained the dangers of being in a class with flour (AGAIN) and sent some links along as well as alternatives (making it with watered down glue), but I'm now just feeling like it's time to move forward.

 

I would love to know ideas of what you have in your plans for young ones.  I know that the challenges they face are different than kids in an elementary class, so I don't want to miss anything.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StephanieL Enthusiast

1) No food unless it's from home.

2) All art products are vetted by me.

3) If the school is archaic enough that they allow outside foods treats for birthdays, you get 48 hours notice.

4) Being there to monitor class parties. 

5) Access to bathroom as needed.

frieze Community Regular

at least the teacher is asking.....

dilettantesteph Collaborator

Good luck.  Some schools are better than others.  You must read things about it being a fad.  When it is people who deal with our children who have that opinion, it can be very difficult.  It is amazing to me that school administrators can believe that they know more about your child's health than your child's own doctors. 

africanqueen99 Contributor

We have an "agreement" with our Early Childhood Center because my youngest is currently only in Mom & Me classes (so I'm there).  She starts Kids Morning Out in the fall so we are putting her 504 in place this Spring.

 

Things we are addressing:

- only food from home and either NOT touched by any adult or served first

- her eating space needs to be clean before she sits

- she should eat at the end of the table (sandwiching the celiac preschooler between other gluten eaters is a bad idea)

- have a "birthday box" that she can have a treat from there when others bring in cupcakes/cookies for their day

- unrestricted access to bathroom and handwashing station (NO use of hand santizer)

- safe sensory table contents

- safe art supplies

Fourmonkeysjumping Rookie

Thankfully, at this point, she brings her own snack and the school requires all kids to wash their hands before and after eating (they started that just for her).  I send in all playdoh (the gluten-free kind from discount school supply) and she has a sink in her classroom.  So, on the whole, things have been okay.  Unfortunately, her teacher went out on maternity leave and the new teacher is pretty old school and likes things her way.  There are no class parties and no outside treats allowed at all in our district, so that makes life a LOT easier.  The art supplies issue is really the only one we have had (we had it with our oldest's kindergarten teacher, but she was just an idiot anyway).  I just want to make sure I don't miss anything.  I'm going to get moving on this ASAP.  I'll put in a call to the district nurse (I'm fortunate there, because her daughter is a Celiac!) and see where to go.  I've already dropped the word "504" in relation to this, so I"m hoping that scares them out of doing it tomorrow.  Frustrating!

africanqueen99 Contributor

Oh, I should have mentioned this above, but our ECC is through our school district and they bought all new playdoh tools for my kid in a box labeled "Gluten Free/Celiac".  They are prepared to move the box up with my youngest as she moves, but if another Celiac shows up we will share.  The alternative is for me to purchase all tools, playdoh making equipment (bowl, spoon, etc) and it becomes owned by my kid so no other teacher but hers will use it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.