Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Until You Declared Yourself 100%


sweetsailing

Recommended Posts

sweetsailing Apprentice

I am about 6.5 months into being gluten free and I still continue to feel like I am coming up out of my hole.  Certainly, I noticed improvements in the first few weeks and along the way I feel like I keep turning another corner so to speak. 

 

At 6.5 months in, I haven't felt this good in at least 4 - 5 years.  So, I feel like I am in unchartered waters.  I don't even have a concept for when the improvements will end. 

 

Up until very recently, I haven't been able to tolerate multi-vitamin supplements.  They gave me D and felt like they just washed right through me without any benefit.  Finally, I am now able to take multi-vitamins and I think this is actually making a difference.  I did take Vit D and probiotics since day one and those were fine. 

 

I am exercising more and more now and I can't tell you how wonderful it feels to be appropriately sore in my muscles from working out as opposed to just hurting all the time. 

 

I am riding the "good train" and I don't know when it ends but I am liking where it is going. 

 

So, how long before you declared yourself 100% or maybe you haven't yet. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

I think I would put myself at 80% better. I was an undiagnosed celiac since babyhood, so I have a few permanent health issues that aren't going to improve, and a few others that I don't think will go completely (as there still hanging in, at a much reduced severity, after almost 2 years gluten-free.

GottaSki Mentor

For me, the damage caused by Celiac Disease will likely never be completely remedied -- but in many ways I am better than ever before in my life. 

 

My bones have replaced themselves these past five years with strong healthy bones -- no more premature osteoporosis. 

 

My tendons and ligaments are all functioning much better -- used to have knees that would pop out if the wind blew the wrong direction, etc. 

 

The plumbing is finally running a bit more smoothly :P

 

My gums are healthy :D

 

My skin, nails and hair are all wonderful :wub:

 

I have a few problems we are still working on, but overall I am healthier -- just need to figure out the last few remaining pieces of the puzzle -- and I will :)

Fenrir Community Regular

For me, the damage caused by Celiac Disease will likely never be completely remedied -- but in many ways I am better than ever before in my life. 

 

My bones have replaced themselves these past five years with strong healthy bones -- no more premature osteoporosis. 

 

My tendons and ligaments are all functioning much better -- used to have knees that would pop out if the wind blew the wrong direction, etc. 

 

The plumbing is finally running a bit more smoothly :P

 

My gums are healthy :D

 

My skin, nails and hair are all wonderful :wub:

 

I have a few problems we are still working on, but overall I am healthier -- just need to figure out the last few remaining pieces of the puzzle -- and I will :)

Yeah, I'm hoping mine improve as well.

 

I may have had this since I was a kid as I remember going to the ER multiple times as a kid with stomach pain that they never figured out. My joints feel shot, abdominal pain, headaches, plumbing issues..ect.

 

About 10 days gluten free and I feel some improvement already. Knees are not near as bad but still not good but it will take time and my headaches are pretty much gone already,

NatureChick Rookie

I think that you are going to have milestones for things such as completing the initial recovery phase, getting really good at avoiding cross contamination, no longer feeling deprived, being able to shop for groceries without even noticing that your shopping card is completely different than it used to be. And all of those will be steps in the right direction.

But there will also be times when some new health problem will arise, forcing you to play detective to figure out what might be the cause, deal with doctors who don't understand celiac, or make you worry about the damage that your body has endured and might not ever heal. I think that being prepared for these to pop up may make them easier to deal with when they do happen. 

But just reading Fenrir's comment makes me remember how wonderful my first month gluten-free was compared to the hell that preceded it. Which I needed because I'm in the midst of one of those new mysteries that I haven't solved yet.

GottaSki Mentor

Yeah, I'm hoping mine improve as well.

 

I may have had this since I was a kid as I remember going to the ER multiple times as a kid with stomach pain that they never figured out. My joints feel shot, abdominal pain, headaches, plumbing issues..ect.

 

About 10 days gluten free and I feel some improvement already. Knees are not near as bad but still not good but it will take time and my headaches are pretty much gone already,

 

Many things will improve gluten-free -- it simply takes time.  It often feels like a dance two steps forward, one step back -- but overall you are improving.  Like NatureChick, I believe acknowledging the victories -- small and large -- along with being prepared to handle the setbacks is important.

1desperateladysaved Proficient

I had 30+ years of celiac symptoms and I think my measuring stick is all messed up.  Once what I thought was normal, isn't normal.  I feel very much better than what I had been.  I am 2 years gluten free and still feel like I am in transition. I had a couple of big lurches ahead when I started digestive enzymes and when I cut out all food intolerances.  I felt very much improvement when my low ferritin was corrected.  We are in a race and I don't know where the finish line is.  In many ways I am already over 100%, but  I have some baggage.  I think 100% is an illusion like the horizon.  One can never really tell when they get there.  But in the case of celiac recovery, one can remember where they started and marvel at where they are now!

 

Dee


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

3 1/2 (well, almost 4!  wow)  years and i am still seeing improvements.  sooo many (seemingly unrelated) health issues that i struggled with have cleared up.  my skin is not an itchy mess, my vertigo is vertigone <see what i did there)  i have put on 22 lbs (!)  from 97 lbs to 119 and i'm still trying to gain about 5 more.  in my boobs HAHA   :P   i even had a constant headache that i didn't know i had until it disappeared.  all my vitamin levels except D are good :)  i don't take vitamin supplements, so my gut must be absorbing.  i don't wake up needing a nap  :D  feeling fine :)

 

i still slip up occasionally, but less and less.  i think.   :huh:  ;)

BlessedMommy Rising Star

I'm fortunate in that I caught my gluten issues relatively early. I believe that they were triggered during my 1st pregnancy when I was 23. I started cutting out wheat a couple of years later and after my TIA and hospitalization in 2010 (so age 27) it was gluten free for life for me.

 

I feel like my overall health has improved a lot. I'm still working on some issues, but definitely feel much better now than I did in my early 20's!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    2. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

    3. - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    4. - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    5. - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,837
    • Most Online (within 30 mins)
      7,748

    Juliane
    Newest Member
    Juliane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.