Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Full Knee Replacement ,,,

cahill

Recommended Posts

cahill Collaborator
cahill
Posted

My orthopedist is a very patient man .

 

I saw him last summer he says full knee replacement I say no way, he says come back in 3 months .

 

I go back in three months , he says full knee replacement this the only thing that will work , I say no way, he says come back in 3 months .

 

I cancel that appt ( bad me lol ) but I finally go back to see him last Thursday .

 

He puts up the x-ray from 6 months ago and the one I had Thursday side by side , he and I look at them then he turns and looks at me and says "well??? "

 

Did I monition he is a very patient man .

 

The deterioration of the knee is very obvious to even me :(

 

I say ( a bunch of  4 letter words ,,under my breath of course :rolleyes: ,lol) looks like I need to wrestle with my insurance co .

 

One full knee replacement coming up <_<

 

 

I have osteoarthritis &  osteoporosis . The midiscus  is  gone and it is bone on bone .The pain is off the scale :wacko:

 

I made the mistake of looking up what / how they do a full knee replacement :ph34r:

 

This surgery scares me :unsure:

 

Being in the hosp ( doc says 4 - 6 days) dealing with all that entails is just plain overwhelming  :unsure:

 

Then the weeks of rehab / recovery time :blink:

 

Has anyone had this type of surgery ? how did you make out?  are you glad you did it?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

I have taught water aerobic for over 20 years. I have had many members who have had knee replacement surgery and have been very glad that they did the surgery! One lady did both at the same time and had to go to a rehab hospital during her recovery. She would not recommend that to anyone!

Be sure the hospital is knowledgeable about gluten free. I would even interview the dietician in advance as there are some lame ones out there. Check with the doctor and hospital pharmacist about gluten-free drugs. Actually read the charts when you are admitted. One hospital wrote that I was allergic to Armour Thyroid, yet they kept bring me dairy and eggs which i am allergic to!! Bring gluten-free goodies as a back-up. Have a laptop or tablet brought to you for when you start to get bored. Finally, get the form necessary to get all labs and other docs (doctor notes) from the hospital and submit it on the day of your discharge. It is good to always have these on hand. It is your body after all! Plus, it is funny to read..."A pleasant middle-added woman......." What? I am not old!!!!!!

nvsmom Community Regular
nvsmom
Posted

I had reconstructive surgery on my knee a couple of decades ago but a young adult heals at a crazy rate so I can't compare.

 

My uncle had both of his done a few years ago when he was close to 70. He was a farmer and couldn't even walk his yard anymore.  Since the replacements(about 8 months apart), he is working his farm well and walks on a treadmill and elliptical trainer on most days.  It wasn't fun, but it was worth it to him in the long run.

 

Best wishes to you! I hope it goes perfectly.

mamaw Community Regular
mamaw
Posted

Hey Chill..... I'll send you  off a  private  message.....

IrishHeart Veteran
IrishHeart
Posted

Chill, you sweet babes! I love ya and I pray you have a quick recovery.

 

I cannot tell you how many cousins and aunts have had this done and they are SO GLAD they did it. One was 81 and made a full recovery, no sweat.

I have OA and osteopenia, so maybe this is my future too, for all I know, Already did both shoulders years ago.

 

So, I say Go for it and do the rehab and then, be as pain free as they all say they are...and I have seen these people go from hobbling around to

walking normal. I saw 6 of them gathered at a family wedding last June --all of them dancing. 

 

 

If there were a surgery to fix the pain I live with, you bet I'd  do it. IMHO

 

Plan your food and your after care in advance and try not to worry about it. 

 

Best wishes, hon,  ^_^

cahill Collaborator
cahill
Posted
  • Author

Thanks guys :)

 

I am working on the food plan and the after care plan (  it is stressing me out  :unsure:  )

cahill Collaborator
cahill
Posted
  • Author

Well It's official,,,, I am scheduled for a full knee replacement on June 11th .

I am doing a lot of extra cooking& freezing meals for after my surgery and trying to work out the hosp food issue the best I can .

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Well It's official,,,, I am scheduled for a full knee replacement on June 11th .

I am doing a lot of extra cooking& freezing meals for after my surgery and trying to work out the hosp food issue the best I can .

 

Just learned my sister has to have both knees done this summer. One on June 5 and one July 18. 

If only I could get her to see that quite possibly, celiac is causing some of that deterioration?? , but alas, I can get perfect strangers on the internet to listen to my advice, but not members of my own family. :(  ah well....

 

Chill, I wish you all the best!!. take good care and be sure to post and tell us how you are!!!

cahill Collaborator
cahill
Posted
  • Author

Thanks Irish :wub: I will

 

 

I wish your sister well , I am hoping  to put off  having the other one done for a bit longer

kenlove Rising Star
kenlove
Posted

Had mine done Dec. 17th but i might be the wrong person to talk about it. Had a lot of complications and this is only the 2nd week I've been able to walk without assistance.  No matter how painful the rehab is afterwards, you have to do it. I wasn't able to and am paying the price. They want to do the other knee but there is no way in hell. I'll continue to get the cortizone shots instead. 

 

Im vegan besides celiac and the kaiser hospital in honolulu was very helpful -- this time. Last time they were not and sent a tune on whole wheat bread. The nurse made someone from the kitchen come and collect it and hear her wrath.

 

I do wish you luck with this. Im told i'll come around eventually and be glad I did the surgery but I dont see it happening in the near future.

Well It's official,,,, I am scheduled for a full knee replacement on June 11th .

I am doing a lot of extra cooking& freezing meals for after my surgery and trying to work out the hosp food issue the best I can .

IrishHeart Veteran
IrishHeart
Posted

Ken makes a great point.

 

No matter how much we do not like the rehab PT, we have to do it. My one aunt was reluctant to do what she was supposed to because she said it hurt too much (understandable) and now, she's

too stiff to get around. :(

 

I dreaded my shoulder PT...you want me to lift it where, now? over my head? are you out of your *&%! mind?? :D

but I did it. I had to do another 6- week round after that because of scar tissue, but my physical therapist Jeff was awesome and he made me "all better". 

 

I suggest massage therapy too!!--the muscles AROUND the joint will get ouchy and a massage of your legs and butt muscles will work wonders to move the lymph around and get your circulation going. 

 

Sadly, I am somewhat of a PT and MT veteran and know what it takes to get out of acute pain.  

 

Do whatever it takes to feel better! (I also like vodka with seltzer and lemon)  :D

kenlove Rising Star
kenlove
Posted

One other thing -- DEMAND they check all meds for gluten. Twice I had reactions to different  meds they had me on although i as on a lot of different ones due to complications.  

Thanks Irish :wub: I will

 

 

I wish your sister well , I am hoping  to put off  having the other one done for a bit longer

cahill Collaborator
cahill
Posted
  • Author

Thanks Ken, I hope you heal well .

 

I have been forewarned about completing the PT, my doc was very very graphic about what will happen if I dont :ph34r:

 

I was in this same hosp last summer .

The docs  were fantastic about double checking my meds for gluten and soy . They put a band on me that said I was allergic (them calling it an allergy  kinda pi$$es me off ,, they are a hosp for heaven sakes :blink: but it worked )

 

 

The dietary experience was not so great ( they brought me cream of wheat for breakfast :angry: )

kenlove Rising Star
kenlove
Posted

SOunds like we could have been in the same hospital.  In my case they checked the drugs  but not all of them -- two trips to the ER will attest to that.

Then they gave me a big IV of steroids which in tern kicked me over the top with diabetes so I was on insulin until 3 weeks ago when I went to a fasting clinic which  got my body back in order -- It also helped  me get rid of the gout which I never had before the operation either.

just glad to finally  be getting back to normal even if I can bend the knee as much as I would like

 

Thanks Ken, I hope you heal well .

 

I have been forewarned about completing the PT, my doc was very very graphic about what will happen if I dont :ph34r:

 

I was in this same hosp last summer .

The docs  were fantastic about double checking my meds for gluten and soy . They put a band on me that said I was allergic (them calling it an allergy  kinda pi$$es me off ,, they are a hosp for heaven sakes :blink: but it worked )

 

 

The dietary experience was not so great ( they brought me cream of wheat for breakfast :angry: )

  • 2 weeks later...
moosemalibu Collaborator
moosemalibu
Posted

It's not the same as a knee replacement but I have had three surgeries on my right knee due to a sudden patella fracture. My physical therapy post-op and scar are remarkably similar to a TKR. I have had many people ask me why I've had my knee replaced at such a young age. Alas, I know I'll need one later in life because of the damage to the kneecap, cartilage, etc. The important thing for you to do is follow the physical therapy guidelines, massage the crap out of your scar to prevent fibrosis and work on range of motion (when you get the OK from the doctor).

 

A forum that I absolutely loved and depended on during my 3 surgery saga was the keeguru/kneegeeks. Lots of people sharing their stories and what worked/didn't work for them.

  • 8 months later...
cahill Collaborator
cahill
Posted
  • Author

Update;

 

 

After some delays and issues I finally had a full knee replacement done in August .

 

Not for the faint of heart ,lol It is a tough surgery and rehab .

 

I still have some pain but I am finally back to work full time .

 

I  also need the other knee done but think I will hold off a bit ,,, I am glad I did the one knee but just not quite ready to go thur that again ( yet )

 

mamaw Community Regular
mamaw
Posted

HI, Don't wait to long for the second knee... Our PT daughter thinks the recovery is better when one doesn't wait until they are wheel-chair bound.... some docs say the same... my hubby waited two years on the second one when doc said do it within a couple months... the outcome has been totally opposite from the first one.. He even fell on the first one a few weeks after surgery ---- still better than the second one! It's been a year since the second one & he stills has some issues with it..... the first one is perfect like he never had it done! hugs

mamaw

kenlove Rising Star
kenlove
Posted

I had a lot of allergic reactions to the drugs so it took me   about 10 months of rehab but now its back to normal and i trust the  fake knee more than the other real one that they want to change soon too. Like the Chicago Cubs,  wait till next year is what I keep telling them!

 

Update;

 

 

After some delays and issues I finally had a full knee replacement done in August .

 

Not for the faint of heart ,lol It is a tough surgery and rehab .

 

I still have some pain but I am finally back to work full time .

 

I  also need the other knee done but think I will hold off a bit ,,, I am glad I did the one knee but just not quite ready to go thur that again ( yet )

cahill Collaborator
cahill
Posted
  • Author

I had a lot of allergic reactions to the drugs so it took me   about 10 months of rehab but now its back to normal and i trust the  fake knee more than the other real one that they want to change soon too. Like the Chicago Cubs,  wait till next year is what I keep telling them!

that is what I said ken,lol

I had an arthroscopy  on the bad knee in Dec. Doc was able to " clean it up a bit" as he says. He cleaned up some of the arthritis and repaired some of the midiscus damage but the exposed bone is still an issue  :ph34r:  so maybe next year :D

kenlove Rising Star
kenlove
Posted

i hear yah!  The  bone on bone is no fun

mamaw Community Regular
mamaw
Posted

For what it's worth my knee is bone on bone,,, for about 2 years now.. I was to the point where I couldn't walk much without assistance & couldn't do steps... I went to several knee docs, all agreed with the bone on bone dx's but like Ken & Cheryl I have severe reactions to the planet so all three docs agreed that I would have to be wheel chair bound for them to try a replacement... drugs & me just don't get along then the metal in the replacement ! I have been checked for the metals used in the different makes of knee replacements.... I responded poorly to all that is available at t his time..A knee replacement is

final so they don't want to give me one only to have to remove it & no options after that but a wheel

chair....

I take Ibuprofen daily, & the best help I've found is cold laser therapy.. if I do that a couple times a week I can do walking & a few stairs one on one...Cold laser is sometimes hard to find ( our town only has one guy) but it is worth the search.....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.