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So Confused About Tests!

Quaylern

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Quaylern Rookie
Quaylern
Posted

I took my 6 year old daughter in to a pediatric gastroenterologist after having a positive saliva test. I checked her chart this morning and it shows her TtG was 10. Not much more explanation of the result so I emailed the doctor for an explanation. Her nurse wrote back and said 0-19 are in the normal range so 10 is normal. But when I looked at the mayo clinic's celiac testing chart it said 0-4 negative, 4-10 should be further tested based on EMA or AGA IgA results and anything more than 10 should go to biopsy. I asked if they ran either of those and they only ran total IgA and TtG. I emailed back asking for further explanation since the info from the mayo clinic is different. I just want to feel that they are interpreting the results correctly.

Here is the info from her saliva test:

Cyrex lava Array 1

Secretory IgA 5.02

Gliadin IgA+IgM > 3.40

Transglutaminase IgA+IgM >3.10

The doctor said these are some of the highest test results that he's seen. He called the lab to verify that they were correct. He said it's most likely autoimmune and to follow up with a gastroenterologist.

I am so confused. Any ideas on how to interperate these results would be hugely helpful! I don't know if we just assume all is fine now and keep an eye on her?

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StephanieL Enthusiast
StephanieL
Posted

Different labs use different test/testing levels. If your Dr. said 1-19 was the normal range, then 10 would be within that.

 

The saliva test, who ordered that? 

Quaylern Rookie
Quaylern
Posted
  • Author

The saliva test was ordered by a functional medicine practitioner that specializes in gluten intolerance and celiac.

StephanieL Enthusiast
StephanieL
Posted

There isn't a test for any sort of gluten intolerance that is considered accurate for diagnostic purposes.  

 

Based on the other testing, the tTG was well within the limits for the lab your Dr. used. 

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
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      celiac, chocolate and alcohol

      By barb simkin · Posted

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

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    • barb simkin
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      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
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      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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