Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Confused About Tests!


Quaylern

Recommended Posts

Quaylern Rookie

I took my 6 year old daughter in to a pediatric gastroenterologist after having a positive saliva test. I checked her chart this morning and it shows her TtG was 10. Not much more explanation of the result so I emailed the doctor for an explanation. Her nurse wrote back and said 0-19 are in the normal range so 10 is normal. But when I looked at the mayo clinic's celiac testing chart it said 0-4 negative, 4-10 should be further tested based on EMA or AGA IgA results and anything more than 10 should go to biopsy. I asked if they ran either of those and they only ran total IgA and TtG. I emailed back asking for further explanation since the info from the mayo clinic is different. I just want to feel that they are interpreting the results correctly.

Here is the info from her saliva test:

Cyrex lava Array 1

Secretory IgA 5.02

Gliadin IgA+IgM > 3.40

Transglutaminase IgA+IgM >3.10

The doctor said these are some of the highest test results that he's seen. He called the lab to verify that they were correct. He said it's most likely autoimmune and to follow up with a gastroenterologist.

I am so confused. Any ideas on how to interperate these results would be hugely helpful! I don't know if we just assume all is fine now and keep an eye on her?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StephanieL Enthusiast

Different labs use different test/testing levels. If your Dr. said 1-19 was the normal range, then 10 would be within that.

 

The saliva test, who ordered that? 

Quaylern Rookie

The saliva test was ordered by a functional medicine practitioner that specializes in gluten intolerance and celiac.

StephanieL Enthusiast

There isn't a test for any sort of gluten intolerance that is considered accurate for diagnostic purposes.  

 

Based on the other testing, the tTG was well within the limits for the lab your Dr. used. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - olivia11 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      26

      My journey is it gluten or fiber?

    2. - olivia11 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      26

      My journey is it gluten or fiber?

    3. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      suggest gluten free food

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      26

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,791
    • Most Online (within 30 mins)
      7,748

    blondebomber
    Newest Member
    blondebomber
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • olivia11
      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
    • olivia11
      Thanks for asking  I’m mainly looking for gluten-free staples and snacks. Any recommendations for brands or go-to items would be appreciated.
    • xxnonamexx
      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble ones fat soluble. So I guess 100MG as you suggested of Life Extension contains Benfotiamine and Thiamine Hydrochloride. and the Objective Nutrients Thiamax contains TTFD.     would work for me.
    • Rogol72
      I put on over 12kg by eating protein with every meal, 3 to 5 times a day. Eggs, Chicken, Tuna, Turkey etc. I stay away from too much red meat as it can be inflammatory. Scott is correct. I've come across a bunch of Coeliac PT's on Tiktok and Instagram. They all say the same thing, the key is getting enough protein and consistency.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.