Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Had A Dexa Scan Today. I Am In Limbo On The Results


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

Anyone if the tech person is aware of the results of the test.  Anyone had a technician that talked about the results? I didn't expect a glowing report, so nothing would surprise me. Waiting for the results is often the hard part.  Too bad I didn't check my bone density right away or years back.  I feel sure that I have already improved it some, but who knows.  30 + years of drawing from the bones is likely hard on them.

 

Dee


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sweetsailing Apprentice

My first dexa scan was in 2011 (done because of very early menopause - age 41).  The technician gave me my T scores right away while I was there.  That is how I found out I had osteopenia.  This was before I even had the worst of my celiac symptoms.  It was all downhill after that.  Now that I have been gluten free for 7 months, I am having another dexa scan on Tuesday next week.  Hoping my numbers improve :)

cyclinglady Grand Master

My first dexa scan was in 2011 (done because of very early menopause - age 41).  The technician gave me my T scores right away while I was there.  That is how I found out I had osteopenia.  This was before I even had the worst of my celiac symptoms.  It was all downhill after that.  Now that I have been gluten free for 7 months, I am having another dexa scan on Tuesday next week.  Hoping my numbers improve :)

Please keep us posted.  I have another year before my next scan!  I was just shy one point from osteoporosis, but my doctor thinks that I already have osteoporosis in my upper back since I have had two vertebrae fractures within three months of my celiac disease diagnosis.  I am hoping that hormones and calcium will do the trick (I already exercised a lot!).

 

I did have problems sleeping with my hip and ribs last year and that has resolved.  So, I think I'm building bone!  

GottaSki Mentor

my first tech didn't tell me...probably didn't want to say osteoporosis to a 44 year old woman

 

good news is the follow ups were much improved...last one I was only borderline osteopenia/normal -- that was at 4 years gluten-free :)

 

eat right and regular weight baring exercise replaces those nasty weak bones!

 

oh and good calcium/d vitamins ;)

IrishHeart Veteran

Techs are not allowed to say much, so do not take that as anything "bad".

 

My first DEXA was indicative of osteopenia.  You know my history, so you can imagine how long calcium was being leeched from my bones.

 

2 years later, and my bone density had improved.

 

You need the right amount of calcium, magnesium and D--not just from supplements but from food--- and you need to do weight-bearing exercise-- as much and as often as you can!

 

All these things improve your bone density. 

 

Nothing is a "given" just because we are in our 40s and 50s and went unDxed for a long time.

 

Things reverse & things improve.  We're all living proof.

1desperateladysaved Proficient

Out to garden today. That will give some sun and exercise.   I also am continuing my trampoline every other day.  My sense of extreme transition is continuing.   I am doing vitamin D and magnesium supplements.  My calcium levels have been good, but possibly that will be reconsidered depending on the results.  I have been having my actual levels of nutrients tested carefully I take only what is needed.

 

When I was 25 the doctor felt my done density was low.  I am not sure what she based it on.  My dentist had certainly complained.  I lost the enamel off my teeth at 17.  Calcium supplements made me sick to my stomach.  My nurse now tells me that calcium can make celiac worse.  In my youth, I drank so much milk.  If milk were the only key to make strong bones, I would have them!  Somehow I think absorbing nutrients is much more important than one particular food.

 

I am wondering if they would ever recommend rehap or therapy.  I could use some exercise as I have noticed some weakness in my thigh area.

GF Lover Rising Star

Maybe you could exercise at home?  I don't think therapy would be recommenced for a sore thigh.  Walking is great!

 

Colleen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

Home is my favorite place to exercise!  At home I do the trampoline every other day for 10 minutes.  Run up and down the stairs about 20 times a day.  Cook 3 meals from scratch for 8 people.  I also shop for the family.  In the summer I garden, in the winter I play ping pong and badmitten.  I do exercises recommended for my back by my chiropractor, and 20 squats, 20 sit ups and 20 push-ups.  I think that is enough, but perhaps I will get someone to help decide on how to strengthen anything that yet is weak. 

 

One thing I know.  I had worked up to 20e- minutes of trampoline per day.  it is really fun.  However, I found my self dreading my daily bounce, and being overwhelmingly tired day after day.  When I cut back, I began to look forward to doing it again.  I don't do it, though, when the garden work is heavy as today we are pitchforking 80 foot rows and planting.

 

Dee

1desperateladysaved Proficient

GREAT NEWS TODAY  It is a miracle.

 

I had 5 children and nursed for 12 years straight one time.  You can read more above. I also have thin back bones in my immediate family.  My sister and Mom have back bone trouble.   I was expecting the dexa scan to show thin bones.  However, after 2 years gluten free and an even greater amount of years on supplements:  MY Results were NORMAL!

Wi11ow Apprentice

That's SO great! Good for you! One less thing to worry about!!! Yeah

Celiacandme Apprentice

That is fabulous news!!!! Yay!!!!!

IrishHeart Veteran

Hate to point this out, but I think like a scientist. ^_^

 

If you do not have a baseline DEXA, you have nothing to compare your results to.

 

You actually have no way of knowing if you ever had osteopenia or osteoporosis. Your bone density may have been perfectly fine, gluten

free or not.

 

Not everyone suffers from a loss of bone density, no matter the age, the number of children they breastfed,or what their relatives have.

 

You may call it a miracle if you wish, but I use that word for things that truly are miracles.

 

In your case, it may just have been good calcium levels all along. Loss of tooth enamel is not an indicator of  a calcium deficiency. 

 

Tooth erosion happens when acids wear away the enamel on teeth. Enamel erosion can be caused by the following:

  • Excessive soft drink consumption (high levels of phosphoric and citric acids)
  • Fruit drinks (some acids in fruit drinks are more erosive than battery acid)
  • Dry mouth or low salivary flow (xerostomia)
  • Open Original Shared Link (high in sugar and starches)
  • Open Original Shared Link disease (Open Original Shared Link)
  • Gastrointestinal problems
  • Medications (Open Original Shared LinkOpen Original Shared Link)
  • Genetics (inherited conditions)
  • Environmental factors (friction, wear and tear, Open Original Shared Link, and corrosion)

 

My mother has excellent bone density, has had many health problems, but she lost all her teeth young--as in her 30's.  It was because when she was little, it was the depression and they had no money for dentists. But her back is ram-rod straight and her bones are as good as it gets. She drank milk all her life. She joined a gym when she retired at 55.

She still works out and walks every day. She is 87.  :)

GottaSki Mentor

I agree with Irish on this one. I'm glad you got good news, but unless you had prior measurable data ... This is great news, but far from miraculous.

Hoping the rest of your nutrient levels are good or improving :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.