Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

And The Torture Begins...


Georgia-guy

Recommended Posts

Georgia-guy Enthusiast

1 week in, and people are already torturing me. :-( Today I had a customer offer me some fresh (I could see the steam and smell them from a mile away) cookies! It was torture to say "no, thank you. I can't have them." Then, of course, she responded "the other mail man says y'all are allowed to have treats from customers." :-/ True story, we are allowed to at our discretion (if we trust them) but these people are in a neighborhood you don't move out of. Most of them have been there in the same houses since the 1950's. Made me feel bad turning them down, but I *think* she understood my explanation that it wasn't I didn't want them, it was that I couldn't have them for medical reasons. (She told me to keep an eye on my sugar, but at least she got the medical reasons part. Lol) I know it will get easier, but I've been thinking about them all day, and everything smells like them to me. :-(

But on the bright side, I did find a fresh fruit farm today, one of the pick your own places. :-)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beth01 Enthusiast

It's hard being a celiac, especially when there is food involved ( family get togethers, bars, restaurants, parties).  I only feel a 100% safe at home, and even here I have managed to gluten myself. I think I said the other day, " I would rather be agoraphobic rather than celiac". lol

mamaw Community Regular

You  probably already know  the drill:   When  life  hands you lemons  make  lemonade"..... when I see  , smell or  hear  of  something that  puts  me  over  the top, I  either  go home  &  make  a copycat  or  order  it  gluten-free  & treat  myself...  And  after you have been gluten-free  for  a  period  of  time  your  taste & desires  will change.. It  becomes  easier  to  say  wow  that  looked  yummy  but  I  don't  need  it....

I  think the  key  is  make  sure  you never  feel food  deprived.......

People  mean well  they  just  don't know  about  this  crazy  disease....

Nikki2777 Community Regular

ITA - it gets easier.  

 

I look at it this way, there have always been restaurants in our neighborhood I go to and those I didn't for one reason or another -- too pricey, too fancy, not fancy enough, too much seafood on the menu (don't like that), etc.  I just look at this now as one more reason and I pass by those restaurants without even noticing.  With a few exceptions (and maybe a good pout every four months or so) it's the same way with foods I can't have.  I don't even notice them, just look past them for the thing I can have.  It's not worth it to be sick, so I don't even put them in the bucket of options.

cyclinglady Grand Master

Go buy a bag of Nestle chocolate chips and follow the cookie recipe. Sub out the flour for Pamela's gluten-free cup-for-cup. You will not miss gluten cookies after eating a hot batch of these cookies. If Pamela's is not available try a flour blend that contains a gum (Xanthan or guar). avoid flours with garbanzo beans. In my opinion, it tastes odd.

It will get better!

Questore Rookie

I haven't been having as much trouble as I thought I would...then I remembered, I had had intensive training for this years ago...with just oatmeal and potatoes!

 

I did however need to go shopping this week at a normal market...you know, where they put all the pastries just inside the entrance door!  Talk about wanting to holler at someone for being so insensitive!!!  I put my nose in the air, and tried hard to feel as nauseated as if I had eaten them.

 

My real problem right now is finding a good bread recipe...I want to use all the grains and seeds I can, attempting to replace my beloved Orowheat Honey Wheat Berry that I could scarcely find in the stores when I was eaten food with gluten in it!  I tried both of the RedHill mixes...one is a bit corn flavored, but okay...the other a lot buckwheat flavored, and not so okay...I had to put butter and Maple Syrup on it to eat it at all.

 

Now begins the experimentation...and lab notes!

C-Girl Contributor

I haven't been having as much trouble as I thought I would...then I remembered, I had had intensive training for this years ago...with just oatmeal and potatoes!

 

I did however need to go shopping this week at a normal market...you know, where they put all the pastries just inside the entrance door!  Talk about wanting to holler at someone for being so insensitive!!!  I put my nose in the air, and tried hard to feel as nauseated as if I had eaten them.

 

My real problem right now is finding a good bread recipe...I want to use all the grains and seeds I can, attempting to replace my beloved Orowheat Honey Wheat Berry that I could scarcely find in the stores when I was eaten food with gluten in it!  I tried both of the RedHill mixes...one is a bit corn flavored, but okay...the other a lot buckwheat flavored, and not so okay...I had to put butter and Maple Syrup on it to eat it at all.

 

Now begins the experimentation...and lab notes!

I may have one for you Questor Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JodyM75 Apprentice

I did however need to go shopping this week at a normal market...you know, where they put all the pastries just inside the entrance door!  Talk about wanting to holler at someone for being so insensitive!!!  I put my nose in the air, and tried hard to feel as nauseated as if I had eaten them.

 

My real problem right now is finding a good bread recipe...I want to use all the grains and seeds I can, attempting to replace my beloved Orowheat Honey Wheat Berry that I could scarcely find in the stores when I was eaten food with gluten in it!  I tried both of the RedHill mixes...one is a bit corn flavored, but okay...the other a lot buckwheat flavored, and not so okay...I had to put butter and Maple Syrup on it to eat it at all.

 

Now begins the experimentation...and lab notes!

 

The grocery store I frequent the most puts the gluten-free section RIGHT NEXT TO THEIR BAKERY!!!!

 

My dear friend made the gluten-free bread from "5-Minutes a Day for Healthy Bread" book, and it was very good!

sweetsailing Apprentice

Ahhh...the grocery store.  I walked in yesterday and seemed to be assaulted by gluten.  They had it all stacked up right as you enter the store.  I felt like someone was doing this deliberately to taunt me.  Once you really take note of where the gluten items are in the store, it is amazing to me how I can now skip about 50% of the store entirely.  I am liking the produce section lately, it looks very pretty with all the fresh multi-colored veggies right now. 

notme Experienced

1 week in, and people are already torturing me. :-( Today I had a customer offer me some fresh (I could see the steam and smell them from a mile away) cookies! It was torture to say "no, thank you. I can't have them." Then, of course, she responded "the other mail man says y'all are allowed to have treats from customers." :-/ True story, we are allowed to at our discretion (if we trust them) but these people are in a neighborhood you don't move out of. Most of them have been there in the same houses since the 1950's. Made me feel bad turning them down, but I *think* she understood my explanation that it wasn't I didn't want them, it was that I couldn't have them for medical reasons. (She told me to keep an eye on my sugar, but at least she got the medical reasons part. Lol) I know it will get easier, but I've been thinking about them all day, and everything smells like them to me. :-(

But on the bright side, I did find a fresh fruit farm today, one of the pick your own places. :-)

 

if you really want to be sweet, you could just take the cookies, say 'thank you' and give them to your friends :)  that's what i do when the church ladies forget (i feed them to my husband - he is so tortured lolz)

 

(and as i was just disappointed by a nectarine <the texture of a golf ball> i was lamenting the last time i had a *good* peach.  i bought the nectarine in hopes it would be peach-like :( any peaches down there yet?  there used to be a farmer who would come up to spring city with delicious georgia peaches.  mmmmmmmm.............. )

mamaw Community Regular

Questore;;;;;;   I like to make  my own  healthy  multigrain bread too... but  life  gets  so busy  that  I need  a  good  ready  made  one too.. We  love  the three  bakers: 7 ancient  grain bread"   it  can be  found  in health food  stores  &  some  major  grocery stores  or  always  online....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,116
    • Most Online (within 30 mins)
      7,748

    rubyterrapin
    Newest Member
    rubyterrapin
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.