Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

And The Torture Begins...

Georgia-guy

Recommended Posts

Georgia-guy Enthusiast
Georgia-guy
Posted

1 week in, and people are already torturing me. :-( Today I had a customer offer me some fresh (I could see the steam and smell them from a mile away) cookies! It was torture to say "no, thank you. I can't have them." Then, of course, she responded "the other mail man says y'all are allowed to have treats from customers." :-/ True story, we are allowed to at our discretion (if we trust them) but these people are in a neighborhood you don't move out of. Most of them have been there in the same houses since the 1950's. Made me feel bad turning them down, but I *think* she understood my explanation that it wasn't I didn't want them, it was that I couldn't have them for medical reasons. (She told me to keep an eye on my sugar, but at least she got the medical reasons part. Lol) I know it will get easier, but I've been thinking about them all day, and everything smells like them to me. :-(

But on the bright side, I did find a fresh fruit farm today, one of the pick your own places. :-)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beth01 Enthusiast
beth01
Posted

It's hard being a celiac, especially when there is food involved ( family get togethers, bars, restaurants, parties).  I only feel a 100% safe at home, and even here I have managed to gluten myself. I think I said the other day, " I would rather be agoraphobic rather than celiac". lol

mamaw Community Regular
mamaw
Posted

You  probably already know  the drill:   When  life  hands you lemons  make  lemonade"..... when I see  , smell or  hear  of  something that  puts  me  over  the top, I  either  go home  &  make  a copycat  or  order  it  gluten-free  & treat  myself...  And  after you have been gluten-free  for  a  period  of  time  your  taste & desires  will change.. It  becomes  easier  to  say  wow  that  looked  yummy  but  I  don't  need  it....

I  think the  key  is  make  sure  you never  feel food  deprived.......

People  mean well  they  just  don't know  about  this  crazy  disease....

Nikki2777 Community Regular
Nikki2777
Posted

ITA - it gets easier.  

 

I look at it this way, there have always been restaurants in our neighborhood I go to and those I didn't for one reason or another -- too pricey, too fancy, not fancy enough, too much seafood on the menu (don't like that), etc.  I just look at this now as one more reason and I pass by those restaurants without even noticing.  With a few exceptions (and maybe a good pout every four months or so) it's the same way with foods I can't have.  I don't even notice them, just look past them for the thing I can have.  It's not worth it to be sick, so I don't even put them in the bucket of options.

cyclinglady Grand Master
cyclinglady
Posted

Go buy a bag of Nestle chocolate chips and follow the cookie recipe. Sub out the flour for Pamela's gluten-free cup-for-cup. You will not miss gluten cookies after eating a hot batch of these cookies. If Pamela's is not available try a flour blend that contains a gum (Xanthan or guar). avoid flours with garbanzo beans. In my opinion, it tastes odd.

It will get better!

Questore Rookie
Questore
Posted

I haven't been having as much trouble as I thought I would...then I remembered, I had had intensive training for this years ago...with just oatmeal and potatoes!

 

I did however need to go shopping this week at a normal market...you know, where they put all the pastries just inside the entrance door!  Talk about wanting to holler at someone for being so insensitive!!!  I put my nose in the air, and tried hard to feel as nauseated as if I had eaten them.

 

My real problem right now is finding a good bread recipe...I want to use all the grains and seeds I can, attempting to replace my beloved Orowheat Honey Wheat Berry that I could scarcely find in the stores when I was eaten food with gluten in it!  I tried both of the RedHill mixes...one is a bit corn flavored, but okay...the other a lot buckwheat flavored, and not so okay...I had to put butter and Maple Syrup on it to eat it at all.

 

Now begins the experimentation...and lab notes!

C-Girl Contributor
C-Girl
Posted

I haven't been having as much trouble as I thought I would...then I remembered, I had had intensive training for this years ago...with just oatmeal and potatoes!

 

I did however need to go shopping this week at a normal market...you know, where they put all the pastries just inside the entrance door!  Talk about wanting to holler at someone for being so insensitive!!!  I put my nose in the air, and tried hard to feel as nauseated as if I had eaten them.

 

My real problem right now is finding a good bread recipe...I want to use all the grains and seeds I can, attempting to replace my beloved Orowheat Honey Wheat Berry that I could scarcely find in the stores when I was eaten food with gluten in it!  I tried both of the RedHill mixes...one is a bit corn flavored, but okay...the other a lot buckwheat flavored, and not so okay...I had to put butter and Maple Syrup on it to eat it at all.

 

Now begins the experimentation...and lab notes!

I may have one for you Questor Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JodyM75 Apprentice
JodyM75
Posted

I did however need to go shopping this week at a normal market...you know, where they put all the pastries just inside the entrance door!  Talk about wanting to holler at someone for being so insensitive!!!  I put my nose in the air, and tried hard to feel as nauseated as if I had eaten them.

 

My real problem right now is finding a good bread recipe...I want to use all the grains and seeds I can, attempting to replace my beloved Orowheat Honey Wheat Berry that I could scarcely find in the stores when I was eaten food with gluten in it!  I tried both of the RedHill mixes...one is a bit corn flavored, but okay...the other a lot buckwheat flavored, and not so okay...I had to put butter and Maple Syrup on it to eat it at all.

 

Now begins the experimentation...and lab notes!

 

The grocery store I frequent the most puts the gluten-free section RIGHT NEXT TO THEIR BAKERY!!!!

 

My dear friend made the gluten-free bread from "5-Minutes a Day for Healthy Bread" book, and it was very good!

sweetsailing Apprentice
sweetsailing
Posted

Ahhh...the grocery store.  I walked in yesterday and seemed to be assaulted by gluten.  They had it all stacked up right as you enter the store.  I felt like someone was doing this deliberately to taunt me.  Once you really take note of where the gluten items are in the store, it is amazing to me how I can now skip about 50% of the store entirely.  I am liking the produce section lately, it looks very pretty with all the fresh multi-colored veggies right now. 

notme Experienced
notme
Posted

1 week in, and people are already torturing me. :-( Today I had a customer offer me some fresh (I could see the steam and smell them from a mile away) cookies! It was torture to say "no, thank you. I can't have them." Then, of course, she responded "the other mail man says y'all are allowed to have treats from customers." :-/ True story, we are allowed to at our discretion (if we trust them) but these people are in a neighborhood you don't move out of. Most of them have been there in the same houses since the 1950's. Made me feel bad turning them down, but I *think* she understood my explanation that it wasn't I didn't want them, it was that I couldn't have them for medical reasons. (She told me to keep an eye on my sugar, but at least she got the medical reasons part. Lol) I know it will get easier, but I've been thinking about them all day, and everything smells like them to me. :-(

But on the bright side, I did find a fresh fruit farm today, one of the pick your own places. :-)

 

if you really want to be sweet, you could just take the cookies, say 'thank you' and give them to your friends :)  that's what i do when the church ladies forget (i feed them to my husband - he is so tortured lolz)

 

(and as i was just disappointed by a nectarine <the texture of a golf ball> i was lamenting the last time i had a *good* peach.  i bought the nectarine in hopes it would be peach-like :( any peaches down there yet?  there used to be a farmer who would come up to spring city with delicious georgia peaches.  mmmmmmmm.............. )

mamaw Community Regular
mamaw
Posted

Questore;;;;;;   I like to make  my own  healthy  multigrain bread too... but  life  gets  so busy  that  I need  a  good  ready  made  one too.. We  love  the three  bakers: 7 ancient  grain bread"   it  can be  found  in health food  stores  &  some  major  grocery stores  or  always  online....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748
    tdouglas2901
    Newest Member
    tdouglas2901
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.