Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Diagnosed Yet


strum

Recommended Posts

strum Rookie

So, here's my story. For about the last year, I have been experiencing increasing GI issues. Bloating, gas and diarrhea mainly. To the point that it is beginning to interfere with work, and I do not want to go out or travel. I have had gastric bypass so I had been blaming that. I noticed when I cut back on carbs the symptoms improved. For the last 2-3 months I have been eating a low carb diet. I finally had an endoscopy and colonoscopy last week and it came back as "may represent an early manifestation of Celiac's disease". Other symptoms I have included migraines, really low ferritin levels for at least six months (been either 4 or 6), been losing teeth to cracking. I also have two other autoimmune diseases - hashimotos thyroiditis and Addison's disease.

Sorry that was so long. Any way, the doctor reading the test results recommended further blood testing. So I am trying to increase my gluten intake. Does that sounds reasonable? I just started yesterday and I am so sick already, can't hardly get out of the bathroom and my belly is aching like crazy. Just wanted to see what you all thought. And to vent a bit. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

sorry you are sick :(  but if you want the test to be accurate, you need to keep eating the gluten - i think a few slices of bread per day should do it, though.  celiac walks hand in hand with thyroid, but thyroid problems also benefit from gluten free diet.  get tested - hang in there!  did they do biopsies when they did your endoscopy?  

strum Rookie

Yes. The biopsy came back positive for increase in intraepithelial lymphocytes.

quote name="notme!" post="922124" timestamp="1404179706"]sorry you are sick :(  but if you want the test to be accurate, you need to keep eating the gluten - i think a few slices of bread per day should do it, though.  celiac walks hand in hand with thyroid, but thyroid problems also benefit from gluten free diet.  get tested - hang in there!  did they do biopsies when they did your endoscopy?

beebs Enthusiast

Yes. The biopsy came back positive for increase in intraepithelial lymphocytes.

quote name="notme!" post="922124" timestamp="1404179706"]sorry you are sick :(  but if you want the test to be accurate, you need to keep eating the gluten - i think a few slices of bread per day should do it, though.  celiac walks hand in hand with thyroid, but thyroid problems also benefit from gluten free diet.  get tested - hang in there!  did they do biopsies when they did your endoscopy?

strum Rookie

The report from the pathologist went on to say "may represent an early manifestation of celiac disease" and recommends further serological testing.

NatureChick Rookie

The two figures I've seen to ensure test accuracy (two different sources) are the equivalent of two pieces of bread a day for 6-8 weeks, or the equivalent of one piece of bread a day for 12 weeks.

In either case, it seems as if you've already realized that you have a problem with gluten. Congratulations on discovering a possible culprit for many of your woes. And best of luck getting through the next several weeks.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,213
    • Most Online (within 30 mins)
      7,748

    TeriH
    Newest Member
    TeriH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.