Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dealing With Social Awkwardness


Snag

Recommended Posts

Snag Rookie

Has anyone here mastered the social awkwardness of saying no to gluten? Let me expand. It seems that there have been social invitations my husband and I have been invited to by people who we're getting to know (we moved across the country this February), and there's this sort of offense taken if we decline because of my celiacs. Or there was this one time someone made me brownies with oats - specifically for me. I strained a smile and felt I had no option but to accept and eat (okay, it was really good - but I'm always paranoid with oats, so I try to avoid them). Even if someone smiles and says, "Don't worry, my sister has something with gluten, and I can prepare for it." I'm still left with a little bit of discomfort in the back of my mind, knowing that "something with gluten" could mean full blown celiacs, or just a bit of an intolerance if they over do it.

Or! After church every Sunday, we do a fellowship meal, and often, it's laden with gluten. If it's not, I'm not sure how much I can rely on others to cater for those needs. It just seems we've been suppressed to forever alone status because of my celiacs, and I know my husband twitches a bit at it, though he'd never say or blame me for my condition.

 

How have you mastered the art of declining social invitations? Can anyone relate? Or am I really missing the obvious here? (Like packing myself lunch for Sundays etc).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star
I think it isn't good to decline social invitations because of a food issue.  Unless they are throwing flour around the house, there is no reason you can't go and enjoy the company.  Either buy some frozen dinners or pack yourself something, and when you are accepting an invitation, let the hose know you have special food needs and ask if it is okay to use their microwave to heat up your food.  You can also eat before you go and not have to bother with that.  If someone insists on feeding you food that you shouldn't be eating, NEVER give in to that.  Just politely say, "I appreciate the effort you went through to try to feed me, but to be safe I am going to have to decline."
 
For the meal after church on Sundays, if you are not able to sit through it and eat when you get home, pack yourself a lunch.  It is important to empower yourself with the tools you will need to not be socially isolated because of your Celiac disease.  If the church thing is a potluck, you can bring something in a crockpot, and tape over it with masking tape saying DO NOT TOUCH, if you trust people to leave it alone.  Then have at it first, and once you have safely gotten your share out of it, others can get some.  If there is going to be a long standing thing and there is a person who you can trust and teach the ways of safely serving gluten-free food, you can spend some time with them and, only if you feel comfortable, entrust them with your food preparation.  
 
But overall, NOTHING says you have to eat their food, and cannot come if you don't.  Bring some gluten-free snacks to share at a casual sioree, or just have a drink and steal the first clean scoop of ice cream from the unopened container at a dinner party.  But don't sit at home thinking you cannot enjoy life because of Celiac disease.
KCG91 Enthusiast

I know how you feel, I have caught myself over the past few months considering avoiding social events around food and I'm trying to pull myself up on it. Laura is right, nobody should ever make you eat food you aren't happy with, but if they are people you might see regularly you might be able to teach them and cook with them - it varies. I have a few people I'm happy to do this with but I've only been doing it since I've become more confident in my own abilities to avoid CC.

 

Otherwise, I pack my own stuff and if I can I try to match it to whatever the host is making. If I take stuff to share then yes I grab my own (large) portions first to make sure I don't feel left out. Also - I once went to a cake sale my god-daughter held for a charity I run, which was lovely of her. I made one gluten-free cake expecting to take most of it home but in the end it made the day of an elderly lady who hadn't been able to eat anything at a church cake sale for years. Powering on through the awkward moments was made worth it for that :) 

NatureChick Rookie

The only time I avoid social gatherings because of food is when I don't have the time to prepare something to eat ahead of time, for instance, if I don't get enough notice.

Otherwise, I have to be honest with myself and recognize that I choose not to go simply because I don't want to, and the food issues are just an excuse. Sometimes that is a good thing - not wasting the energy and money on activities that leave me feeling as if I just wasted an evening. Sometimes it is a sign that I'm just not all that comfortable with some types of social situations for a variety of reasons.

I personally prefer meeting up with smaller groups or individuals much more than larger groups, and would prefer to do an activity rather than just sit around and eat. And I think my least favorite is when the only thing on the agenda is drinking alcohol. Perhaps you and your husband can find some middle ground by figuring out what factors other than food might make you more or less interested in attending, or occasionally have people come to you where you can control the menu.

Georgia-guy Enthusiast

But overall, NOTHING says you have to eat their food, and cannot come if you don't. Bring some gluten-free snacks to share at a casual sioree, or just have a drink and steal the first clean scoop of ice cream from the unopened container at a dinner party. But don't sit at home thinking you cannot enjoy life because of Celiac disease.

I don't really have the dinner party issue. Normally when my friends want to get together and eat, it's restaurant time, or a cookout (and with my friends, they know I'm gonna want my food straight from the grill). As for church, we haven't had a meal since I got diagnosed, but I plan to do like I've always done, set up the food line and help keep it moving (remove empty pans, replace utensils that get dropped, ect---with gloves on). Except I plan to grab my plate first instead of at the end. But by all means, don't let celiac run your life!
BlessedMommy Rising Star

I go to church potlucks and bring my own food. Yesterday, I brought my own food and in addition, snagged a few pickles from the potluck line to throw on my gluten free burger before anybody else had a chance to CC them. Everybody there is pretty much used to me bringing my own food by now.

 

I came up with a new catch phrase to use to explain why I don't often eat stuff prepared by others. "You know, life is too short to spend time interrogating my friends over their ingredients or preparation methods and worrying about feeling ill the next day. I'd rather bring my own food so that I can relax and enjoy spending time with my friends without worries."

luvs2eat Collaborator

I just bring my own food everywhere and say, with a huge smile, "Thanks so much for thinking about me... you are too kind...  but if I don't prepare it, I can't eat it." It's as simple as that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

I go to church potlucks and bring my own food. Yesterday, I brought my own food and in addition, snagged a few pickles from the potluck line to throw on my gluten free burger before anybody else had a chance to CC them. Everybody there is pretty much used to me bringing my own food by now.

 

I came up with a new catch phrase to use to explain why I don't often eat stuff prepared by others. "You know, life is too short to spend time interrogating my friends over their ingredients or preparation methods and worrying about feeling ill the next day. I'd rather bring my own food so that I can relax and enjoy spending time with my friends without worries."

 

 

I just bring my own food everywhere and say, with a huge smile, "Thanks so much for thinking about me... you are too kind...  but if I don't prepare it, I can't eat it." It's as simple as that.

 

Both of your quotes are awesome :)  Hopefully they will help some of our new people when they need the right thing to say!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748

    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.