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Even gluten-free Foods Triggering Reaction After Initial Glutening?

jddh

By jddh
in Coping with Celiac Disease

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Zenith Explorer
Zenith
Posted
On ‎12‎/‎8‎/‎2014 at 4:23 PM, icelandgirl said:

Wow! Amazing news...congratulations!

 

I'm curious about not letting your stomach get empty. Do you know why? I'm asking because I've noticed I feel really bad if I let mine get completely empty...but no idea why.

OMG ME TOO.  Why? slight Nausea, slight hurting. Some days worse than others. Like past few days haven't noticed that but definitely some days I do.

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dilettantesteph
dilettantesteph

You may want to consider a diet like this one: http://www.biomedcentral.com/1471-230X/13/40   There can be wait times around 3 months where I live in the US to see a GI.  Last time my son got in qui

GF Lover
GF Lover

Hi jddh.  You asked : I wonder if omeprazole could make things worse? Perhaps decreased stomach acid causes my digestive process to slow down, lengthening the autoimmune reaction In my small gut.   

cyclinglady
cyclinglady

Here are my ideas (and they may be way off).... My husband went gluten free 13 years ago. I fed him purchased gluten-free bread and goodies and he did not have any issues. I was then diagnosed and

Rangerred Newbie
Rangerred
Posted

Realize this is an old thread but I’m a very sensitive celiac who add sx of glutening for over a year - neuropathy, fatigue, constipation, bloating, foggy brain, elevated liver enzymes, etc- finally linked it to Oral B dental floss. Quit using it and in a few weeks felt great and after a few months the liver enzymes normalized. 

cyclinglady Grand Master
cyclinglady
Posted
5 hours ago, Rangerred said:

Realize this is an old thread but I’m a very sensitive celiac who add sx of glutening for over a year - neuropathy, fatigue, constipation, bloating, foggy brain, elevated liver enzymes, etc- finally linked it to Oral B dental floss. Quit using it and in a few weeks felt great and after a few months the liver enzymes normalized. 

The Original poster on this thread struggled with non-responsive celiac disease.  If I recall, Type I refractory.  I guess I am at odds with your response.  I use this product and I have healed from celiac disease based on repeat biopsies.  How can you be sure that this floss was the culprit for sure?  Liver enzymes can be out of range for many reasons.  
 

https://www.medicalnewstoday.com/articles/325838#causes

I thought  for sure I was experincing active celiac disease symptoms.  I could not figure out any gluten exposures.  I even trialed the Fasano restrictive gluten-free diet without success (that included never eating out).   Turns out after a repeat endoscopy that my small intestine had healed, but that I had developed Autoimmune Gastritis years after my celiac disease.  Related?  Probably.  I think all autoimmune is linked.  
 

I learned that not all things are due to celiac disease.  You can develop more than one autoimmune disorder, infections or even cancer.    Floss is made from petroleum based products.  The Oral B Glide from Teflon.  Not the best, but certainly no gluten.  Why add something sticky to a product like this?  

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