Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Genetics Testing Again

Renaye

Recommended Posts

Renaye Contributor
Renaye
Posted

After 3 years of being gluten-free, I convinced my new gastro do re-do the inconclusive genetics test. I have other issues such as possible Sjogrens and is seeing a rheumy for that. My insurance will not cover it but I would like to know, especially for my kids. I have less stomach pain but still am constipated to the point that I use Miralax daily. I have gained my weight back and am less fatigued but not sure if that is due to taking

Plaquenil or gluten-free diet.

Now I feel that maybe it is not worth it. If it is negative then I don't have it? Any thoughts? I am checking with my insurance before proceeding.

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BlessedMommy Rising Star
BlessedMommy
Posted

If your bloodwork is positive, you can be fairly confident that you have celiac. Bloodwork is more accurate than a biopsy. A negative biopsy often means that they missed the damage.

ravenwoodglass Mentor
ravenwoodglass
Posted

You had positive blood work so you have celiac no matter what genes you carry. Gene testing is really a pretty new science and they are learning more every day. While most doctors only test for DQ2 or DQ8 it is possible to have firmly diagnosed celiac without either of those two genes. You could also have something else going on of course including possible other intolerances like dairy or soy. I get stomach pain and constipation from soy, for example. 

Renaye Contributor
Renaye
Posted
  • Author

I am DGP IgG and DPG IgA positive. All other tests are negative. Not sure how accurate those tests are.

My diet is clean of gluten, eggs, dairy and peanuts. The only thing that I eat that has soy in it is my mayo and not sure what to substitute for that. But I need mayo!!

Gastro suggested fiber along with Miralax. Took gluten free gummy chews last night that had 5 grams of fiber at bedtime. Hopefully this will move things along.

ravenwoodglass Mentor
ravenwoodglass
Posted

Those tests are very good and very specific to celiac. 

I hope the doctor's suggestion works. It is frustrating when we continue to have problems and I hope these clear up soon for you.

BlessedMommy Rising Star
BlessedMommy
Posted

The only thing that I eat that has soy in it is my mayo and not sure what to substitute for that. But I need mayo!!

 

Open Original Shared Link

Ele Newbie
Ele
Posted

Open Original Shared Link

Hi everyone!

 

I have the same problem. I have a gluteen-free diet since two years, but the bloodwork doesn't identify my celiac disease. I'm allergic at flour mite, so I think that is the problem. What do you think about this? 

 

Sorry for my English, but I'm Italian and I'm just started a new metod for learning English better  ^_^

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

Welcome Ele!  Allergy to wheat is treated the same way as celiac, one does an elimination diet.  You can help lean about the diet and find people who can understand your struggles here.  You can improve your English as you read also!  I am also two years gluten free.

Renaye Contributor
Renaye
Posted
  • Author

Thanks Blessedmommy! I use this product only it has a blue lid and contains soy. My grocery store does not offer the soy free one but I will look elsewhere for it.

Thanks again!

Ele Newbie
Ele
Posted

Welcome Ele!  Allergy to wheat is treated the same way as celiac, one does an elimination diet.  You can help lean about the diet and find people who can understand your struggles here.  You can improve your English as you read also!  I am also two years gluten free.

Thank 1desperateladysaved!

 

I'm very happy now! You give me very important information!!!! thank for your kindness!!!!  :D  :D  :D

Adalaide Mentor
Adalaide
Posted

Hellman's/Best Foods makes a mayo with a yellow lid that is soy free. And it isn't something you have to go look for at a health food store or that costs 3 times as much as regular mayo.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rejoicephd
      - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question

      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed...
    2. ElenaM
      - ElenaM posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      I think I am gluten intolerant

      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of ...
    3. JulieRe
      - JulieRe replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question

      Hi Everyone, I do appreciate your replies to my original post. Here is where I am now in this journey. I am currently seeing a Naturopath. One thing I did not post before is that I take Esomeprazole for GERD. My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow. She has put me on some digestive enzymes...
    4. Ceekay
      - Ceekay replied to slkrav's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Gluten free beer ?

      I'm sure it's chemically perfect. Most of them taste lousy!
    5. Rejoicephd
      - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question

      Hi @JulieRe. I just found your post. It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida. I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment. In the meantime, I have been working with a functional...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,895
    • Most Online (within 30 mins)
      7,748
    catsrlife
    Newest Member
    catsrlife
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Oral thrush question

      By Rejoicephd · Posted

      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed ranitidine for it several years back, which was working to reduce my gastric reflux symptoms but then the FDA took ranitidine off the shelves so I stopped taking it. I had a lot of ups and downs healthwise in and around that time (I suddenly gained 20 pounds, blood pressure went up, depression got worse, and I was diagnosed with OSA). At the time I attributed my change in symptoms to me taking on a new stressful job and didn't think much else about it. They did give me a replacement gastric reflux drug since ranitidine was off the shelves, but when I went on the CPAP for my OSA, the CPAP seemed to correct the gastric reflux problem so I haven't been on any gastric reflux drug treatment for years although I still do have to use a CPAP for my OSA. Anyway that's a long story but just to say… I always feel like I've had a sensitive stomach and had migraines my whole life (which I'm now attributing to having celiac and not knowing it) but I feel my health took a turn for much worse around 2019-2020 (and this decline started before I caught covid for the first time). So I am now wondering based on what you said, if that ranitidine i took could have contributed to the yeast overgrowth, and that the problem has just been worsening ever since. I have distinctly felt that I am dealing with something more than just stress and battling a more fundamental disease process here. I've basically been in and out of different doctor specialties for the past 5 years trying to figure out what's wrong with me. Finally being diagnosed with celiac one year ago, I thought I finally had THE answer but now as I'm still sick, I think it's one of a few answers and that maybe yeast overgrowth is another answer. For me as well, my vitamin deficiencies have persisted even after I went gluten-free (and my TTG antibody levels came down to measurably below the detectable limit on my last blood test). So this issue of not absorbing vitamins well is also something our cases have in common. I'm now working with a nutritionist and taking lots of vitamins and supplements to try and remedy that issue. I hope that you continue to see improvements in working with your naturopath on this. Keep us posted!
    • ElenaM
      I think I am gluten intolerant

      By ElenaM · Posted

      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of these after I eat gluten. Could I have non celiac gluten sensitivity? Thanks anyone else with these symptoms?
    • JulieRe
      Oral thrush question

      By JulieRe · Posted

      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      Gluten free beer ?

      By Ceekay · Posted

      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Oral thrush question

      By Rejoicephd · Posted

      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.