Genetics Testing Again

[Renaye]

After 3 years of being gluten-free, I convinced my new gastro do re-do the inconclusive genetics test. I have other issues such as possible Sjogrens and is seeing a rheumy for that. My insurance will not cover it but I would like to know, especially for my kids. I have less stomach pain but still am constipated to the point that I use Miralax daily. I have gained my weight back and am less fatigued but not sure if that is due to taking

Plaquenil or gluten-free diet.

Now I feel that maybe it is not worth it. If it is negative then I don't have it? Any thoughts? I am checking with my insurance before proceeding.

Thanks

[BlessedMommy]

If your bloodwork is positive, you can be fairly confident that you have celiac. Bloodwork is more accurate than a biopsy. A negative biopsy often means that they missed the damage.

[ravenwoodglass]

You had positive blood work so you have celiac no matter what genes you carry. Gene testing is really a pretty new science and they are learning more every day. While most doctors only test for DQ2 or DQ8 it is possible to have firmly diagnosed celiac without either of those two genes. You could also have something else going on of course including possible other intolerances like dairy or soy. I get stomach pain and constipation from soy, for example. 

[Renaye]

I am DGP IgG and DPG IgA positive. All other tests are negative. Not sure how accurate those tests are.

My diet is clean of gluten, eggs, dairy and peanuts. The only thing that I eat that has soy in it is my mayo and not sure what to substitute for that. But I need mayo!!

Gastro suggested fiber along with Miralax. Took gluten free gummy chews last night that had 5 grams of fiber at bedtime. Hopefully this will move things along.

[ravenwoodglass]

Those tests are very good and very specific to celiac. 

I hope the doctor's suggestion works. It is frustrating when we continue to have problems and I hope these clear up soon for you.

[BlessedMommy]

  On 7/31/2014 at 12:05 PM, Renaye said:

The only thing that I eat that has soy in it is my mayo and not sure what to substitute for that. But I need mayo!!

 

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[Ele]

  On 8/1/2014 at 12:38 AM, BlessedMommy said:

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Hi everyone!

 

I have the same problem. I have a gluteen-free diet since two years, but the bloodwork doesn't identify my celiac disease. I'm allergic at flour mite, so I think that is the problem. What do you think about this? 

 

Sorry for my English, but I'm Italian and I'm just started a new metod for learning English better 

[1desperateladysaved]

Welcome Ele!  Allergy to wheat is treated the same way as celiac, one does an elimination diet.  You can help lean about the diet and find people who can understand your struggles here.  You can improve your English as you read also!  I am also two years gluten free.

[Renaye]

Thanks Blessedmommy! I use this product only it has a blue lid and contains soy. My grocery store does not offer the soy free one but I will look elsewhere for it.

Thanks again!

[Ele]

  On 8/1/2014 at 12:14 PM, 1desperateladysaved said:

Welcome Ele!  Allergy to wheat is treated the same way as celiac, one does an elimination diet.  You can help lean about the diet and find people who can understand your struggles here.  You can improve your English as you read also!  I am also two years gluten free.

Thank 1desperateladysaved!

 

I'm very happy now! You give me very important information!!!! thank for your kindness!!!!     

[Adalaide]

Hellman's/Best Foods makes a mayo with a yellow lid that is soy free. And it isn't something you have to go look for at a health food store or that costs 3 times as much as regular mayo.