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Gluten Sensitivity Versus Celiac Disease - Four States Homepage


Scott Adams

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Scott Adams Grand Master

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Four States Homepage

GROVE, OK.--- Integris Grove practitioners are informing people about the difference between the two. Celiac disease damages the lining of the small intestine and prevents it from absorbing parts of food that are important for staying healthy. The ...

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IrishHeart Veteran
 "Integris Grove practitioners are informing people about the difference between the two. Celiac disease damages the lining of the small intestine and prevents it from absorbing parts of food that are important for staying healthy. The damage is caused by a reaction to eating foods with gluten, like wheat, barley and rye. Those with celiac experience symptoms like abdominal pain, bloating, and other stomach issues. Health experts say people who are just gluten intolerant will have similar symptoms to celiac, but their intestine is not damaged by gluten. 
 
"If you just do like a trial of three weeks of no wheat, not just gluten, but no wheat and gluten. If you feel better, then you probably are sensitive," said Aunna Herbst, Integris Medicine Practitioner.
 
Around 20% to 30% of Americans suffer from celiac disease and around 70% to 80% are likely to be gluten sensitive. Celiac is also more commonly found in women. Integris practitioners suggest those who are experiencing symptoms when eating gluten, should see a doctor to get tested. "
 
there are so many things wrong in these statements and it bothers me that this is supposedly a "valid article" and a quote from a "medicine practitioner".??
here are a few:
 
20-30% of the population is not celiac.--1% is. 
 
70-80% of the population is not gluten sensitive. Researchers put it at 6-15%. 
 
and it occurs to me that
I'm probably the only one reading these articles on a Saturday morning  and likely just talking to myself right now.... :D
GF Lover Rising Star

I heard ya  :D

IrishHeart Veteran

I heard ya  :D

 

yes, but can you see me?  B)  got your cheaters on?...

 

watch the video please that's included  in the article...it will make you go "wtf???""""

GF Lover Rising Star

Watched it and cursed my laptop for playing such sewage.  The commercials are lame too.  This is why there is so much mis-information out there about Celiac.  

 

Got my cheaters...I CAN SEEEEEE.  :D

LauraTX Rising Star

Yeah, very inaccurate article.

BlessedMommy Rising Star

Wow, so according to the article, roughly 100% of Americans should be gluten free. LOL! :)


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    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
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