Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Did You Heal Your Gut? Besides Giving Up Gluten...


icelandgirl

Recommended Posts

IrishHeart Veteran

A study showing that grains can be contaminated: Open Original Shared Link

 

Tricia Thompson RD  (whom I have conversed with via email) and Anne Lee, RD who I had the pleasure of meeting and talking with for over an hour at a Gluten Free Living conference inOrlando last spring co-authored that article and I specifically asked Ms. Lee about this study. She had presented a lecture earlier that day about the need for incorporating grains into the G F diet because she knows their nutritional importance.

 

She stressed that certified G F grains are not the problem.

 

Let's look at the conclusion of the study:

 

 

We concluded that “the findings of the current study indicate that some inherently gluten-free grains, seeds, and flours not labeled gluten-free are contaminated with gluten. This potential risk of contamination is a health concern for people with celiac disease, who must follow a gluten-free diet. The consumption of these products can lead to inadvertent gluten intake.”

 

1) some inherently G F grains, seeds and flours

2) NOT LABELED G F

3) "potential" risk

 

 

In other words, just to be safe, celiacs may wish to avoid THOSE not labeled G F......and eat  grains for their nutritional value. 

 

The vast majority of celiacs can and do heal their gut lining while eating G F grains. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

 

A study showing celiacs continuing to experience symptoms when they were on a special diet: Open Original Shared Link

They do allow rice.

"All cereal grains aside from rice are prohibited."

 

 

yes, however, after the trial of that "Fasano diet" as it is now dubbed, the conclusion was 

 

"Of the 14 patients who responded to the diet, 11 (79%) successfully returned to their previous traditional GFD without resurgence of symptoms or elevated serology."

 

Eating mass-market  G F grains. 

 

Even the leading celiac researchers think it's okay to eat rice. The people in the study did not cut out grains and they still healed their gut linings, so I am sorry but I honestly do not see why you use these two small studies as refutation of the statement gemini made.

Pauliewog Contributor

When I went gluten-free I struggled with what to eat. Then on the forum here I read about Paleo and Mark's Daily Apple. It wasn't until I started eating that way that I started to feel better. I eat all whole foods that I prepare myself. Any sweets (except for chocolate) I make myself. Any baked goods I make myself. Nothing processed other than the raw ingredients I need to make things. My meals center around a lot of vegetables with a bit of meat/fish. I do eat rice sometimes and I eat rice crackers every now and then.

icelandgirl Proficient

Hi Pauliwog...what do you bake with? Since you're not doing grains do you do almond flour?

dilettantesteph Collaborator

The comments from Irishheart make realize that I need to work harder to be more clear.  I gave the references to those studies because I thought the OP might want to read them because they are relevant to her question to me asking if I cut grains from my diet to heal.

IrishHeart Veteran

The comments from Irishheart make realize that I need to work harder to be more clear.  I gave the references to those studies because I thought the OP might want to read them because they are relevant to her question to me asking if I cut grains from my diet to heal.

 

Actually, no.. I thought you were pretty clear.  That's not why you posted them originally.. You posted them to refute a statement Gemini made earlier in the thread.

I say this because you quoted her before answering with those study links (why else would you post them directly after her comment?). 

 

And anyone reading the thread knows that you quoted Gemini's sentence because they saw it. Now, you are changing what you are saying was your intention because I raised some points that show the studies did not really support your attempt to  refute her comment.

 

You have since come back and edited that part out. 

 

but I have the email notice right here:

dilettantesteph  has just posted a reply to a topic that 
you have subscribed to titled "How Did You Heal Your Gut?  
Besides Giving Up Gluten...".

----------------------------------------------------------------------
------------ QUOTE ----------
There is no proof that cutting out all grains will help a person heal faster. 
-----------------------------

 
A study showing that grains can be contaminated: 
https://www.glutenfreewatchdog.org/blog/Naturally-Gluten-Free-Grains-and-
Gluten-Contamination/6 (https://www.glutenfreewatchdog.org/blog/Naturally-
Gluten-Free-Grains-and-Gluten-Contamination/6)
 
A study showing celiacs continuing to experience symptoms when they 
were on a special diet: http://www.biomedcentral.com/1471-230X/13/40
They do allow rice.
"All cereal grains aside from rice are prohibited."

***********************************

I would not have posted a lengthy response to you for no reason. That would make no sense and I would not waste my time or the reader's time.   

dilettantesteph Collaborator

I didn't edit that out to try to hide something.  I edited it out to try to make my meaning more clear.  Please don't make accusations.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

I would like to remind everyone of Board Rule #1:

  • 1) Do not be abusive or otherwise out of line towards other board members. Show respect for each board member, no matter what you think of their views. This is not a place to quarrel.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    2. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    3. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    5. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,230
    • Most Online (within 30 mins)
      7,748

    DJD
    Newest Member
    DJD
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.