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Itching And Prickles

Karla99

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Karla99 Newbie
Karla99
Posted

I was diagnosed last month (biopsy and blood) and have tried to be VERY careful about what I eat and yet I am still having what I call the "prickle-itches". This travels all over my body and drives me crazy (even keeps me awake at night). Is this something anyone else has gone through? What am I doing wrong??????

Thanks for any help you can give me.

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elisabet Contributor
elisabet
Posted
I was diagnosed last month (biopsy and blood) and have tried to be VERY careful about what I eat and yet I am still having what I call the "prickle-itches".  This travels all over my body and drives me crazy (even keeps me awake at night).  Is this something anyone else has gone through? What am I doing wrong??????

Thanks for any help you can give me.

<{POST_SNAPBACK}>

My son had almost the same problem,we eliminated,diary,soy,and gluten,and all these are gone.

good luck

quantumsugar Apprentice
quantumsugar
Posted

Have you looked into DH? Open Original Shared Link Open Original Shared Link "The symptoms of intense burning, stinging and itching cannot be overemphasized" and "may keep patients awake at night".

Or, on the other hand, I get some kind of itchy ezcema/rash when I get any gluten, dairy, or soy--additional allergies should definitely be checked into, and make sure you've eliminated all gluten in everything, down to cosmetics, condiments, etc.

Rachel--24 Collaborator
Rachel--24
Posted

I know exactly what your talking about...I get that too but its not so bad that it keeps me up at night or anything. It sometimes happens after I eat and it happens alot after I've been glutened. There is no rash involved. Its just a weird feeling.

jpsych Newbie
jpsych
Posted

Your not alone. I was diagnosed over a month ago and had the same problem. My doctor prescribed me a prescription antihistimine that worked but made me tired. I don't have any itching problems now. It could be a detoxing response from getting off of gluten...or not.

Hope you feel better.

Karla99 Newbie
Karla99
Posted
  • Author

Thanks for all the responses....I have no rash just the "problem". I see the doctor on Monday so hopefully he'll have a GREAT answer. I can't tell you how much this forum helps me. You are all the greatest!!!!

julie5914 Contributor
julie5914
Posted

I feel like there's little bugs biting me at night. Is that what it feels like? I am taking magnesium b/c I was low on it last doc visit. Hoping it stops cause it makes me spazz out.

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lorka150 Collaborator
lorka150
Posted

Do you mean, like, inside your body?

Rachel--24 Collaborator
Rachel--24
Posted
I feel like there's little bugs biting me at night. Is that what it feels like? I am taking magnesium b/c I was low on it last doc visit. Hoping it stops cause it makes me spazz out.

<{POST_SNAPBACK}>

Yeah...what is that all about? I get that too...or it feels like bugs are crawling on me. :blink:

Karla99 Newbie
Karla99
Posted
  • Author

I also have the "bugs" crawling on me at night but the prickle/itch is kind of like little needles pokeing you but not to the point of hurting sorta like an itch...really hard to explain but drives a person crazy.

Rusla Enthusiast
Rusla
Posted

All of you who have DH did you get it when you were first gluten free also?

I itch so much I have a back scratcher in my bag at work.

Claire Collaborator
Claire
Posted

First off to repeat myself, I do not have celiac disease. I have not yet been tested for non-celiac gluten sensitivity. I have been tested and diagnosed with Type II, Delayed Food Reactions and LGS.

On the reactive foods list is wheat, barley, rye. among many other things.

Before my diagnosis for DFR and LGS I had constant itching (intense - especially at night) accompanied by fierce cold chills. There was no rash. With the diagnosis (which did not specify gluten) I gave up bread and flour laden foods. Within a week the itching and chills went from nearly intolerable to manageable - i.e. flare ups at times but symptom free a lot of the time. As I didn't know the issue to be gluten I made no attemp to go gluten-free. I now am Gluten-free Casein-free - since August.

Because there may be more than one culprit you will be disappointed if you look for gluten to be responsible for all your symptoms. This leads you to expect everything nasty to go away - and immediately. It doesn't work tht way. Food sensitivities is almost a certainty if you have LGS> If you have celiac you are almost certain to have LGS. Any number of other foods could be causing your problem. I have had episodes of chills and itching when I know I had not been exposed to any grains. It had to be one of those other things. Claire

Noelle126 Apprentice
Noelle126
Posted

I also get the bugs crawling itchy feeling..I always thought I was just weird.,...thankfully I am not the only one! :blink:

jerseyangel Proficient
jerseyangel
Posted

I used to feel the "crawlies", too especially the 2 years before going gluten-free. It was mostly in my legs in bed at night. Sometines, they would also affect my left arm, neck and face. They are mostly gone now :)

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      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
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