Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itching And Prickles


Karla99

Recommended Posts

Karla99 Newbie

I was diagnosed last month (biopsy and blood) and have tried to be VERY careful about what I eat and yet I am still having what I call the "prickle-itches". This travels all over my body and drives me crazy (even keeps me awake at night). Is this something anyone else has gone through? What am I doing wrong??????

Thanks for any help you can give me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elisabet Contributor
I was diagnosed last month (biopsy and blood) and have tried to be VERY careful about what I eat and yet I am still having what I call the "prickle-itches".  This travels all over my body and drives me crazy (even keeps me awake at night).  Is this something anyone else has gone through? What am I doing wrong??????

Thanks for any help you can give me.

<{POST_SNAPBACK}>

My son had almost the same problem,we eliminated,diary,soy,and gluten,and all these are gone.

good luck

quantumsugar Apprentice

Have you looked into DH? Open Original Shared Link Open Original Shared Link "The symptoms of intense burning, stinging and itching cannot be overemphasized" and "may keep patients awake at night".

Or, on the other hand, I get some kind of itchy ezcema/rash when I get any gluten, dairy, or soy--additional allergies should definitely be checked into, and make sure you've eliminated all gluten in everything, down to cosmetics, condiments, etc.

Rachel--24 Collaborator

I know exactly what your talking about...I get that too but its not so bad that it keeps me up at night or anything. It sometimes happens after I eat and it happens alot after I've been glutened. There is no rash involved. Its just a weird feeling.

jpsych Newbie

Your not alone. I was diagnosed over a month ago and had the same problem. My doctor prescribed me a prescription antihistimine that worked but made me tired. I don't have any itching problems now. It could be a detoxing response from getting off of gluten...or not.

Hope you feel better.

Karla99 Newbie

Thanks for all the responses....I have no rash just the "problem". I see the doctor on Monday so hopefully he'll have a GREAT answer. I can't tell you how much this forum helps me. You are all the greatest!!!!

julie5914 Contributor

I feel like there's little bugs biting me at night. Is that what it feels like? I am taking magnesium b/c I was low on it last doc visit. Hoping it stops cause it makes me spazz out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lorka150 Collaborator

Do you mean, like, inside your body?

Rachel--24 Collaborator
I feel like there's little bugs biting me at night. Is that what it feels like? I am taking magnesium b/c I was low on it last doc visit. Hoping it stops cause it makes me spazz out.

<{POST_SNAPBACK}>

Yeah...what is that all about? I get that too...or it feels like bugs are crawling on me. :blink:

Karla99 Newbie

I also have the "bugs" crawling on me at night but the prickle/itch is kind of like little needles pokeing you but not to the point of hurting sorta like an itch...really hard to explain but drives a person crazy.

Rusla Enthusiast

All of you who have DH did you get it when you were first gluten free also?

I itch so much I have a back scratcher in my bag at work.

Claire Collaborator

First off to repeat myself, I do not have celiac disease. I have not yet been tested for non-celiac gluten sensitivity. I have been tested and diagnosed with Type II, Delayed Food Reactions and LGS.

On the reactive foods list is wheat, barley, rye. among many other things.

Before my diagnosis for DFR and LGS I had constant itching (intense - especially at night) accompanied by fierce cold chills. There was no rash. With the diagnosis (which did not specify gluten) I gave up bread and flour laden foods. Within a week the itching and chills went from nearly intolerable to manageable - i.e. flare ups at times but symptom free a lot of the time. As I didn't know the issue to be gluten I made no attemp to go gluten-free. I now am Gluten-free Casein-free - since August.

Because there may be more than one culprit you will be disappointed if you look for gluten to be responsible for all your symptoms. This leads you to expect everything nasty to go away - and immediately. It doesn't work tht way. Food sensitivities is almost a certainty if you have LGS> If you have celiac you are almost certain to have LGS. Any number of other foods could be causing your problem. I have had episodes of chills and itching when I know I had not been exposed to any grains. It had to be one of those other things. Claire

Noelle126 Apprentice

I also get the bugs crawling itchy feeling..I always thought I was just weird.,...thankfully I am not the only one! :blink:

jerseyangel Proficient

I used to feel the "crawlies", too especially the 2 years before going gluten-free. It was mostly in my legs in bed at night. Sometines, they would also affect my left arm, neck and face. They are mostly gone now :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.