Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3 Yrs Post Dx I Still Don't Know What To Eat


Raywuwei

Recommended Posts

Raywuwei Explorer

I wasn't sure exactly which topic to post this under, but since our diet is really our only form of "treatment" I figured here would be fine. 

 

I am 26yrs old and have been struggling to eat a healthy and healing gluten-free diet for about three years. I still fail. Reading some other posts I saw people doing something similar to me: eating bad (but gluten-free) foods when we feel miserable about our dietary restrictions. I have developed a really horrible habit of keeping a family sized bag of chips on my night stand as a way of coping with my reeeeally stressful 7 day work weeks. 

 

To be clear, I am an active and petite female. I don't have issues with weight (mostly) but I have terrible issues with my energy levels. I take vitamins when I can afford them. But I really haven't found great solutions to what things are good to pack for lunch. What does an ideal fast and easy breakfast look like? What kind of foods should I try and be sure to work into my diet to help continue healing? (I have heard something about coconut oil being great in smoothies??)

 

I don't mind cooking. It is just that when I do bus to the grocery store (I don't have a car) I am so exhausted and hungary that I grab all of my favorite comfort foods and don't plan anything out. 

 

I guess I would just like to hear how other celiac's who are young and poor and without a car deal with shopping. Or anything from anyone who has any semi-useful advice. If you can't tell, I am rather exhausted at this very moment  :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BlessedMommy Rising Star

I do have a car, but hauling 3 kids around to various stores can get exhausting. So I do as much online shopping as I can. Amazon has some good deals, especially through their subscribe and save program. And even if the price is the same as at the store, getting it dropped on my doorstep is worth a lot. 

Raywuwei Explorer

I do have a car, but hauling 3 kids around to various stores can get exhausting. So I do as much online shopping as I can. Amazon has some good deals, especially through their subscribe and save program. And even if the price is the same as at the store, getting it dropped on my doorstep is worth a lot. 

Oooh, I was just informed of Amazon's magical toilet paper delivery! I will definitely look at what kinds of foods I can buy as well. Thanks!!

BlessedMommy Rising Star

Yes, there's lots of good options both for food and toiletries. You select the interval that you want it delivered at and then you can always be stocked.

 

I subscribe to shampoo, toothpaste, razors, toothbrushes, dish soap, dishwasher soap, almond flour, grain free cat food, coconut milk, sponges, vanilla, and organic hand soap. The advantage of subscribing to so many items other than convenience is that if you have 5 or more subscriptions delivered in a month, you get a 15% discount off of all of them. My almond flour and cat food are substantially better deals from Amazon, than using the available options at my grocery store.

nvsmom Community Regular

My problem is that if it is in the house, I WILL eat it. Not gluten but junk, so the secret for me is to not have it in house. I can only go shopping when I am not hungry or I cave in and buy stuff I should not. Don't have it in the house, and by "it" I mean sugars and many starches - they'll take you on the energy roller coaster ride and eventually you'll stat to put on weight too.  :(  I'm sure you know all this though... It is much easier said than done, darn it all.

 

You might want to get your thyroid checked too. Hypothyroidism is quite common among celiacs, and it can really zap your energy.  Check your TSH (should be near a (reagrdless of the normal range), Free T4 and Free T3 (should be in the 50-75% range of your lab's normal reference range), and TPO Ab.

 

Best wishes.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      27

      My journey is it gluten or fiber?

    2. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.