Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reading Food Labels?


Glutenbola

Recommended Posts

Glutenbola Newbie

I recently got diagnosed with celiac disease, I am going to be starting my diet soon and I'm not really sure what to do about it. I know to look for things that say gluten-free on them but, what about labels? What if you're not sure if something is gluten-free and you have to look on the back of the box for the side of the box for labels? What do I look for? I know I can't have wheat but that's basically it. Like I said, I'm new at this whole thing so, if anyone can help me just let me know! ☺️

Thanks !


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Here is a good place to start -

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

 

Basically the things I see most often - Wheat, rye, barley, malt, barley malt, oats (in a product not labelled gluten-free, need gluten-free oats), spelt, couscous, soy sauce (should list wheat somewhere in the ingredients & some don't have wheat like San J).

Glutenbola Newbie

Thank you SO much ! (: big help !

HappyMom623 Proficient

For me in the beginning, I ate whole foods like meat, veggies, eggs, fruit and cheese (assuming no other allergies). This helped me heal and not have to worry about labels. After that, I bought ONLY from the the gluten free isles in my grocery store. It was more pricey, but it eliminated a lot of worry. 3 years later, and I'm still learning things I can and can't have. Sadly, as much as I like cashews, almost all brands still make me sick. :-(

Glutenbola Newbie

I'm sorry to hear about that but... Thank you so much for the help! I hope you find some cashews you can eat! Lol (: maybe Google will have some answers for you on how to make your own?

cap6 Enthusiast

Start off with good whole foods like meat, veggies and fruit.  Season with some herbs.  This way you don't have to worry about any ingredients - those foods are naturally gluten free. Plus whole foods, without any added ingredients, are easier to digest and help with a healing gut.  This way it makes it a whole lot easier to determine if a particular food is bothering you (other than gluten of course!!)

JennyD Rookie

Seconded on all of the replies above with one addition. There is an app called "The Gluten Free Scanner" that scans bar codes and lets you know if the item is gluten-free or gluten-free with a chance of cross contamination, etc. I don't rely on this solely, I will still scan the label for the key words (Wheat, Malt, etc.) but if the scanner (which has about 60% of the items I have scanned) and the label check out I feel a bit safer buying the foods I am not sure about. I hope this helps!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,807
    • Most Online (within 30 mins)
      7,748

    CeceNV
    Newest Member
    CeceNV
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      The anti-endomysial antibody test is an old test that is generally reported as positive or negative - a lab technician looks down a microscope to check for fluorescence of the sample. It is less sensitive but more specific for coeliac disease than IgA tTG2. Hence, it is not "barely positive" - it is positive. People diagnosed in childhood recover much more quickly than adults.  I would look at testing all 1st degree relatives - parents, siblings.
    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.