Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eating Out, How Do You


nme23

Recommended Posts

nme23 Apprentice

Some nights I just don't feel like cooking or it is a last minute decision or out with friends. How do you order from the menu and make sure to avoid cross contamination. It is so hard my husband always makes me decide and I don't like it. I want eating out to be an enjoyable experience. Any suggestions


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

If possible, go to a gluten-free restaurant and there will be no stress at all.  :)  I tend not to eat out. Even when I grill the waiter, and go to the kitchen to read the labels (I've done it for my kids), I still get glutened about a third of the time.

 

If I go out, it is usually for coffee, drinks, or ice cream.... Going for ice cream is often more fun than dinner anyways.  ;)

sunny2012 Rookie

I agree with the previous poster. IT is just to unsafe to trust to so many people handling my food.

And even in places where they have a strict gluten-free policy about some dishes with separate differently stylized plates to be used just for gluten-free meals, I have been served my food on a regular plate and "assured" by my wait staff that THEY are certain it is safe.

cap6 Enthusiast

Typically I go only to places that have a gluten free menu.  No g,f. menu and I won't eat there.  Most of the bigger chain restaurants that have a g.f. menu are pretty careful.  Bottom line is that you have to do what feels most comfortable for you.    Also, since g.f. has become so popular I foind that it is best to advise the wait staff that I am g.f. not by choise but have celiac.  They pay more attention that way!

BlessedMommy Rising Star

Yep!

 

I told the restaurant, "I'm on this diet because I have to be, not because I'm trying to be trendy." LOL!

MycasMommy Enthusiast

You're all more brave than I.  Every single time I have attempted to eat out... things have gone badly. I am pretty gun shy over it all now.  I TRY to make our meals with double recipes, and then freeze the leftovers. You cant do this with everything, but with most things, it works out pretty well. Then U just pull that stuff out of the freezer and set it in an ultra low oven for an hour to defrost (or the microwave it it will fit), and BAM there is not no work dinner.

julissa Explorer

I wouldn't eat out in a place that has gluten in on the premises, period. I have had too many bad experiences, and being sick for an entire week is not worth it. there are several places that are completely gluten free,  and I go there if I want to go out. if not, I will go with people for the social experience but I bring my own food. I have become a master at that. no one anywhere has ever said a word, ever.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

i eat out, like, a few times a year and only at carefully scrutinized places.  i ask a million questions and make sure they understand exactly what i want.  i tip really really well :D

 

the last few times i got glutened it was from eating out.  if i can't be sure it's safe, eat before or i bring my own or eat before and bring a snackity snack.  too bad if anybody doesn't like it.  ;)

Gemini Experienced

I guess I must be one of a few people who eat out on occasion with great results.  It is highly dependent on where you live and what the knowledge level is regarding Celiac Disease and common sense.  I am extremely lucky to be living in an area with high knowledge and a ton of gluten-free options....even though I do not take advantage of them all.

 

There is only one chain I eat out at that does it right and they are GIG trained.  It is a higher end chain in New England called Burton's Grill.  Food is very, very good and the waitstaff are trained well.  The manager brings gluten-free meals to the table, after checking that protocol has been followed.  Anywhere else has to be higher end food or restaurants with Celiac's in the family. It is extremely helpful if the chef has actually gone to culinary school because they are taught about food/ingredients and know how not to cc something.  That is done from a bacteria point of view but the same protocol applies to gluten.

 

You can eat out successfully but cannot be shy about your needs. I do not eat out often at all but when I do, I trust these types of places and have never been glutened in these types of restaurants.  Fast food places really are a no go for someone with Celiac who take their diet seriously.

cap6 Enthusiast

So much of it comes with experience and doing what is right for you.  Every Friday we go out with friends for margaritas and Mexican food.  It's a small place, not one I would trust, so I always just take something for me to eat and drink the wine.  For me times like that are all about the social end of it.    Last summer, while on vacation, we went out for our usual Friday night but I walked off forgetting my food at home,.  The server asked why I wasn't ordering and I briefly explained.  Turns out he too was celiac and suggested two meal options to me and promised he would notify kitchen and keep an eye on my meal.  It turned out so well that we ate there again!  But....that is sort of an exception I think.

 

One thing I do is keep a zip lock of cooked frozen meatballs in the freezer, along with some veggies.  That way even at the last minute I have an instant meal ready to go for eating at a possibly unsafe (by my standards!) place.   

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    3. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    4. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.