Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Food


Steph1

Recommended Posts

Steph1 Apprentice

I am wondering if most people on here are fine with gluten free treats, cereals, etc. I get some symptoms from them, I think, though not as bad as gluten. It just makes me concerned that perhaps gluten isn't my problem if gluten-free foods make me feel unwell also.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

I  think  it  depends  on  how  strict  the place  is  when  being  made/processed.... there are  many gluten-free  foods  I don't  eat  because I  react  do to  CC.... for  instance  the  new  law  stating  20ppm  is  safe for  celiac---- if  one  is  super  sensitive  then  that  is  not  safe  for  that  person....  but  may be  fine  for  another celiac... Many  after  being  gluten-free  notice  they  also  don't  feel  well  after eating  a naturally gluten-free  product    such  as  corn  or  soy  ... We  all are  unique  in  how  we  react  to  anything...

So  to  answer  your  question  yes, many of us  have a  negative  response  to  gluten-free   items... even the  ones  made  in a dedicated facility....

sunny2012 Rookie

I can't eat any of the cereals that are labeled "gluten free". There are many steps in the processioning plant to market shelf for cross contamination can happen.

A friend of mine was constantly sick from eating corn. They researched and found that corn in their area is shipped via trucks that also ship wheat, rye, and barely without ever being cleaned between the loads. 

Product shelved surrounded by gluten contaminated items will frequently become contaminated.

Storage in the where house under gluten containing items can cross contaminate.

In my store, I observed the stock being brought to the shelf with the gluten free items under the regular flour. Flour sacks frequently leak flour all over.

 

Personally, I don't tend to trust my life to symptoms. There are nutrients deficiencies that only show up after months of damage. And it takes a long time to recover. And there is the fear that the intestines will eventually stop healing as well from constant destruction. It just seems easier to me to avoid anything that I am not certain is 100% gluten-free.

cyclinglady Grand Master

You are self-diagnosed, right? If you are still not feeling well on a gluten free diet and you are strictly adhering to it, look for other intolerances. Keep a journal. I hope you find your answers!

I can tell you from my experience, that most gluten-free processed cereals and goodies are not good food choices. They seem to be packed with sugar!

etbtbfs Rookie

A lot of gluten-free processed, high-glycemic foods aren't much better than their gluten equivalents.

Steph1 Apprentice

I am feeling better, for the most part. My vitamin levels are all good now, my thyroid is better. But if I have like 10 gluten-free crackers it hurts my belly. I will be bloated and it hurts my lower abdomen. I know that it is not just the fact that it's junk because I can eat a lot of sugar candy and it is fine.

ravenwoodglass Mentor

It isn't uncommon for us to have additional intolerances that rear their heads after we have been gluten free. I thought for a long time that a brand of gluten free crackers was getting me even though I later found they were made in a dedicated facility.  It turned out that I was also having problems with soy. Soy is in a lot of gluten-free products so it is likely that many times early on when I thought I was being glutened I was actually being soyed. Try keeping a food and symptom diary for a while.  It may help you pinpoint if something else is causing the issues. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Corn and rice are in almost every cracker.  I would keep a journal like Ravenwoodglass suggested and keep a close eye on how you feel 30 minutes to 3 days after eating corn and rice .  Don't forget that symptoms can take a few days to show up.

 

Best wishes.

cyclinglady Grand Master

Ah, one of my intolerances at the beginning turned out to be Xanthan Gum which never bothered my husband who had long since healed. I gave up some commercial crackers and bread containing xanthan gum. I made my own using guar gum and have done well. I can eat a little xanthan gum now and have not had an issues. One of the blessings of a healed gut!

cap6 Enthusiast

Most corn and soy is a GMO'd food item and can cause digestive problems. I would work on cutting out as much corn as possible and all soy.

sunny2012 Rookie

How long have you been gluten-free? It took me several years to be able to digest some natural carbs in veggies. I wish I remember which. But really it depends on the damaged areas and how quickly they heal. It is very individual.

 

I just put those aside for another few months and tried again later.

 

We can end up with other stomach issues. I still can't digest fresh fruit and all veggies have to be at least partially cooked or I am in trouble. I never eat processed starches at all.

BUT my duodenum was completely smooth when the doctor looked. He told me while in the procedure room that he knew what was wrong with me,and  put me on a clear liquid diet for the days for the STAT pathology testing cause he was not "allowed" to diagnose based on his view. And all that damage caused some other very serious long term stomach issues that really don't heal well at all after many decades of poisoning with gluten.

 

My point is to take lots of time and be patient while you heal. It is worth it to stop having those stomach troubles. 

Steph1 Apprentice

Thanks everyone! I am a little bit teary because this site is such a blessing. When I first went gluten-free 3 years ago I found that dairy, peanut, soy, msg, and tree nuts made me sick. That is all pretty much better, though. I never eat actual corn, though. Maybe those crackers and cookies are made with corn, and I have difficulty digesting it. I will look for that and possibly xanthum gum. Thanks again!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mmoc replied to Mmoc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Blood tests low iGA 4 years later digestive issues

    2. - Aretaeus Cappadocia replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Gluten free nuts

    3. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,387
    • Most Online (within 30 mins)
      7,748

    LizzieE
    Newest Member
    LizzieE
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
    • Aretaeus Cappadocia
      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to see if they can get you the gluten-free version (they are tasty) > This past week I bought "Sliced Raw Almonds, Baking Nuts, 5 lbs Item 1495072 Best if used by Jun-10-26 W-261-6-L1A 12:47" at Costco. The package has the standard warning that it was made on machinery that <may> have processed wheat. Based on that alone, I would not eat these. However, I contacted customer service and asked them "are Costco's Sliced Almonds gluten free?" Within a day I got this response:  "This is [xyz] with the Costco Member Service Resolutions Team. I am happy to let you know we got a reply back from our Kirkland Signature team. Here is their response:  This item does not have a risk of cross contamination with gluten, barley or rye." Based on this, I will eat them. Based on experience, I believe they will be fine. Sometimes, for other products, the answer has been "they really do have cross-contamination risk" (eg, Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs Item 1195303). When they give me that answer I return them for cash. You might reasonably ask, "Why would Costco use that label if they actually are safe?" I can't speak for Costco but I've worked in Corporate America and I've seen this kind of thing first hand and up close. (1) This kind of regulatory label represents risk/cost to the company. What if they are mistaken? In one direction, the cost is loss of maybe 1% of sales (if celiacs don't buy when they would have). In the other direction, the risk is reputational damage and open-ended litigation (bad reviews and celiacs suing them). Expect them to play it safe. (2) There is a team tasked with getting each product out to market quickly and cheaply, and there is also a committee tasked with reviewing the packaging before it is released. If the team chooses the simplest, safest, pre-approved label, this becomes a quick check box. On the other hand, if they choose something else, it has to be carefully scrutinized through a long process. It's more efficient for the team to say there <could> be risk. (3) There is probably some plug and play in production. Some lots of the very same product could be made in a safe facility while others are made in an unsafe facility. Uniform packaging (saying there is risk) for all packages regardless of gluten risk is easier, cheaper, and safer (for Costco). Everything I wrote here is about my Costco experience, but the principles will be true at other vendors, particularly if they have extensive quality control infrastructure. The first hurdle of gluten-free diet is to remove/replace all the labeled gluten ingredients. The second, more difficult hurdle is to remove/replace all the hidden gluten. Each of us have to assess gray zones and make judgement calls knowing there is a penalty for being wrong. One penalty would be getting glutened but the other penalty could be eating an unnecessarily boring or malnourishing diet.
    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.