Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Folic Acid Level Low


w8in4dave

Recommended Posts

w8in4dave Community Regular

I went to the Dr. Because I have just had absolutely no energy so he did a bunch of blood work and one part was Folic acid. Came back my Folic Acid is low. I have read this can be common with Celiac. Does anyone eles have this problem? I eat green leafy vegetables all the time and beans, not sure why this is happening. I guess I go get me a supplement.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MycasMommy Enthusiast

I supplement folic acid twice a day every day. It always came back low before that.  My vitamin D is always low too and I supplement the heck out of that to no seeming avail. The folic acid is working out well though.

w8in4dave Community Regular

My Vitamin D levels are ok I guess. The nurse is sending me my results in the mail should be here in a few days. Then I will see for my self.

mamaw Community Regular

I have had low folic acid for years , long before my twelve years of being celiac....

w8in4dave Community Regular

Well I am still waiting for my results! That was last Friday she said she was sending them out, nothing yet! The pharmacy didn't have any, But a friend of mine had some ,she gave me till the pharmacy comes thru. Amazing that they helped within 2 days! Just amazing! I cannot wait to get up and take my pill! Because after I take it I feel normal. I was hoping the blood work would come up with something so I would have an answer and sure enuf! It did! Lets just hope It stays that way!

MycasMommy Enthusiast

Well I am still waiting for my results! That was last Friday she said she was sending them out, nothing yet! The pharmacy didn't have any, But a friend of mine had some ,she gave me till the pharmacy comes thru. Amazing that they helped within 2 days! Just amazing! I cannot wait to get up and take my pill! Because after I take it I feel normal. I was hoping the blood work would come up with something so I would have an answer and sure enuf! It did! Lets just hope It stays that way!

 

 

Thats great!!  I take 3 times the recommended dose because I do not absorb things well.  Nothing happens if you take more, you pee out the excess, as far as I know.  It is also a safety thing if you plan on children to protect them from spinal issues during gestation. I am so glad to hear youre feeling better! :D

w8in4dave Community Regular

Yea I have 3 grown children out of the house and 7 Grand babies, Ain't no more child bearing for me! Lol But it did explain I could only find low level on the shelf. I got my blood tests back Woot! the test read this ... Result 4.5 ng/mL, Flag L, Reference >5.8.......Doesn't seem low enuf to make a difference to me,but it must of been.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
TashaLouise Apprentice

HI!!

I had the same thing a few weeks back. I had some blood tests for something else but the Folic Acid levels came back as lower than they should be. I always eat food that is high in Folic acid (I practically OD on avocados!) but the levels were low for whatever reason. The doc didnt read anything into it, instead just gave me a months supply of supps and it was all back to normal. I had been feeling uite lower energy wise than normal. I am a lot better now though. It is related to Coeliac disease although I cannot remember why 

 

:)

w8in4dave Community Regular

TashaLouise it was low because being Celiac you have a hard time absorbing vitamins and minerals. I think I have been missing my Folic Acid for a while. I am out of the ones the doc gave me. Anyone have a good source??

  • 5 weeks later...
darlingnea13 Rookie

I had my Gene's? tested through my psychologist and it came back that I as well have a folic acid deficiency. I wondered if It had anything to do with my Celiac but she didn't know.

LauraTX Rising Star

Folic acid levels are something that change with time, and are not detected by a genetic test.  (Unless it is a genetic condition they were screening for that can also cause low folic acid) But I assume your psychologist had you get some bloodwork done to check for vitamin deficiencies and they found a low folic level.  A psychologist is not a medical doctor and definitely not a Celiac specialist so I am glad they gave you the "I don't know" answer instead of making something up when you asked if it was related to your Celiac disease.  A low folic acid level, as well as low levels of other vitamins, can be related to malabsorption from Celiac disease.  I recommend you make an appointment with a GI doctor to regularly get follow up testing to ensure you don't have any long-undetected deficiencies, and have that medical doctor who can advise you on safe supplementation.  Most gluten-free foods are not fortified, so the University of Chicago Celiac Center Open Original Shared Link.  

  • 6 months later...
w8in4dave Community Regular

My Dr. Put me on a Prenatal vitamin. 1 mil. of folic acid a day. I can tell if I don't take one for a couple of days.  He said hed put me on the prenatal so I get more than just the Folic Acid. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748

    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.