Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Nabisco gluten-free Crackers Or Wendys Cause Of First Glutenin

indianaharlegirl

Recommended Posts

indianaharlegirl Newbie
indianaharlegirl
Posted

Hello everyone I dx myself as celiac 5 days ago and I just had my first glutenig by either Wendy's chili and/or frosty and/or nabisco gluten-free sea salt crackers. I talked to mgr at Wendys who said the chili and frosty mixes r prepackaged and they add their gluten-free hamburger to the chili. I'm pissed bc I can't figure out the culprit. Any thought? The crackers could be made on same line w soy but the chili could be cross contaminated. I had cheddar cheese on the chili.....any thoughts?? thanks This has been overwhelming and I dread dealing w derm this week when I try to explain that I KNOW I'm celiac and just need him to biopsy the area near these legions while they are still here and do the complete blood test!! You guys are a life saver!! Thx!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

It is really hard to say.  You don't know if you have Celiac - so it may not even be gluten? Might be something else you ate that day?  If you have only been gluten-free for 5 days, it really may not be gluten  - 5 days isn't enough time to get yourself back to "normal".

 

You  need to eat gluten and have fresh lesions to get them diagnosed for DH.

cyclinglady Grand Master
cyclinglady
Posted

I think you need to research more and you can share with your derm. Here is a link to the University of Chicago's celiac website:

Open Original Shared Link

Then search through this forum under the DH section. It clearly explains how the doc should biopsy for celiac disease. This is critical!

YOU HAVE TO BE CONSUMING GLUTEN TO GET ACCURRATE TEST/BIOPSY RESULTS!

mamaw Community Regular
mamaw
Posted

I agree with the other posters, you need more solid info & need testing.... don't jump on the celiac truck just yet , there are many illness/ diseases that can mimic celiac....and vice versa. Plus for correct testing you need to be eating gluten.......

A side note twelve years being celiac..... I never was glutened by Wendy's chili or frosty....I don't put cheese on it ..... shredded cheese can have wheat flour on it to keep it from sticking together, don't have any idea about Wendy's cheese.. I would guess it is okay....

Did your derm doc do a biopsy for DH?

kareng Grand Master
kareng
Posted

I agree with the other posters, you need more solid info & need testing.... don't jump on the celiac truck just yet , there are many illness/ diseases that can mimic celiac....and vice versa. Plus for correct testing you need to be eating gluten.......

A side note twelve years being celiac..... I never was glutened by Wendy's chili or frosty....I don't put cheese on it ..... shredded cheese can have wheat flour on it to keep it from sticking together, don't have any idea about Wendy's cheese.. I would guess it is okay....

Did your derm doc do a biopsy for DH?

 

 

I have never seen a shredded cheese with wheat flour.  I am curious what brand has that so we can warn people? edit - It seems to be a persistant internet myth so it would be good to have some real examples.  -Wheat flour gums up and sticks when wet. A restaurant might add some to the cheese if its being made into a sauce (as a thickener) - but that wouldn't be a fast food place.

 

 But... as some Wendy's workers have told me, they didn't fell confidant that the cheese wasn't cc'd - it was left with no lid next to where they assembled burgers.  Not all Wendys may have that set up.

mamaw Community Regular
mamaw
Posted

Kraft  & Sargento  are  safe  shredded  cheese  .... but  I  doubt  one of those  is used  in a fast food  joint....I  venture to guess  they use  a  cheap  brand  of  shredded  cheese   ........ where  more  generic  junk  is added...for looks & taste.  

anti-clumping  agents used by cheese mfg's  include powdered cellulose , potato starch, or calcium carbonate.  powdered  cellulose can be made from a gluten grain usually  wheat...with the  new  laws  that  should  be listed as  such....

 

cellulose  is a  ingredient  I look at  closely  when  purchasing a product....the  new  laws  should  be  helpful  but  is  all mgf's  on  board  yet?

 

Kareng  sorry I guess  I  didn't  explain  &  should  have  used  the  word  cellulose  instead  of  wheat...another thought  is  people 's   alarm/ radar  goes off  when they see the word  WHEAT but cellulose  they may just  pass  over...

squirmingitch Veteran
squirmingitch
Posted

Crystal, I TOLD you that you HAVE to be eating gluten -- a full gluten diet --- right up through testing. That means you HAVE to be eating gluten for the dh biopsy. You can NOT go gluten free yet. You will get a negative on the dh biopsy or on celiac blood work.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


indianaharlegirl Newbie
indianaharlegirl
Posted
  • Author

Squirmingitch: I'm back on gluten bc ur right that's the only way i will get dx. Derm very condescending and saidits eczema and that it is for sure not DH which she claims are like big cold sores and bc mine aren't blistered anymore but crusting over its not dh. Prescribed 5 creams which I'm not wasting $ on. To gasteo 2morrow. Will see if he will at least run blood test. Ate half a box of wheat thins and nothing happened?! This problem is very bizarre but I'm so tired and weak I can barely walk to the kitchen.. thanks for the support!! Crystal.

squirmingitch Veteran
squirmingitch
Posted

Reactions aren't always immediate -- neither the gut kind nor the dh kind. It might take 3 days or even a week. As far as dh goes -- it can wax & wane at will eating gluten or not so it's really impossible to gauge if you've gotten into some gluten or not. So the derm wouldn't do a biopsy? You still have your appt. for UC? The derm is an ass. DH takes many forms & she sin't aware of that. She's looking at the tip of the iceberg not the whole thing. 

 

Hang in there. Please let us know what happens with the gastro.

Nikki2777 Rising Star
Nikki2777
Posted

My reactions prior to diagnosis were not consistent.  I remember eating a bagel the day before my positive result and having no reaction.  When they did the endoscopy on me, the doctor said the damage to my cilli looked like it was in patches.  My Celiac was caught relatively early, so my suspicion (and I have no science to back this up) is that the patchiness is what allowed the bagel to get through with no problem that time while on another day, I'd have a reaction.  Not seeing a reaction from the wheat thins may not mean anything either way.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Iron loss and potential celiac.

      These articles may be helpful:
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Dermatitis Herpetiformis
      5

      Skin issues

      I went to ER on the 30th because I didn't want to wait and saw dr at desk for intake. I went for NOTHING!. ER Dr was very nice but made it seem as if I was a nut case rater than coming in for real issues calmly explaining its staph! Staph, by look no blood test, no skin test. No looking in my nose and throat was given a prescription for jock cream and some...
    3. N Young
      - N Young posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Frustrated with Providers

      I have been Gluten Free for 25 years and havent eaten gluten knowingly during that time. Such a rocky life, I have had issues since I was 16 when physicians stated I needed to see a psychiatrist. I am now 70 years old. I also had Dermatitis herpetiformis. I had negative tests on biopsy, blood test etc but no doctor mentioned that I needed to do a gluten...
    4. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Iron loss and potential celiac.

      "Risk free genetically"? Very low risk, actually. But, we are still learning about the genetics of celiac disease. Speaking of milk, some studies show that CMP (Cow's Milk Protein) can damage the small bowel villi like celiac disease does. Also, some meds (NSAIDS, Olmesartan - a blood pressure med) and some infections can also blunt SB villi.
    5. trents
      - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Test interpretations

      @Aretaeus Cappadocia! The post you were looking for about omeprazol acting as an anti-inflammatory/immunosuppressant was made (yesterday, I believe) by knitty kitty. Current guidelines for the gluten challenge prior to an endoscopy/biopsy of the small bowel is the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat flour...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,115
    • Most Online (within 30 mins)
      10,442
    Ginarwebb
    Newest Member
    Ginarwebb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Iron loss and potential celiac.

      By Scott Adams · Posted

      These articles may be helpful:    
    • Jmartes71
      Skin issues

      By Jmartes71 · Posted

      I went to ER on the 30th because I didn't want to wait and saw dr at desk for intake. I went for NOTHING!. ER Dr was very nice but made it seem as if I was a nut case rater than coming in for real issues calmly explaining its staph! Staph,  by look no blood test, no skin test. No looking in my nose and throat was given a prescription for jock cream and some pills ! I made the mistake of saying Im waiting on Infectious disease. She asked how did I get referral and I said I did it online.The next day I checked the status and it was denied! I did get  a referral to the dermatology office i went to last year that over charged me and did a biopsy on me stating inconclusive! I went to another dermatologist and he stated I should see Infectious disease at place i put in referral. With that I contacted that dermatologist and waiting to see if he thinks dermatology or Infectious disease is the route.I do have appointment for dermatology next week.Until then i did purchase Zahler paraGuard advance intestinal  flora support  from Sprouts. Im also very alarmed that the fact celiac isn't addressed properly infact its downplayed. When I had my son tested for HLA-DQ2 and it came out positive because he is eating everything and he is extremely skinny but he isn't dealing with severe diagestive issues because thats all he knows NOW or yet because he is still young 21.I too didn't know any difference when i was that age because thats all we know.Life changes will get him in latter years im afraid because what im dealing with.That scares me.The specialist we went to was only about congestion he is getting.He is getting congestion because he is eating what he isn't supposed too! Zero talk about celiac and HLA-DQ2 positive. Only talk was he is congested because we live in the Valley! They wanted to do surgery! I did write again to our district leader considering when I did call, the guy stated he knew all about celiac. I really wanted to tell him NO YOU DON'T but held my tongue. For my skin sores the cream given didn't do anything because ive also had in past.Ive been putting liquid vitamin c on it and taking vitamins which is making a little difference just with the last few days of doing.
    • N Young
      Frustrated with Providers

      By N Young · Posted

      I have been Gluten Free for 25 years and havent eaten gluten knowingly during that time.   Such a rocky life, I have had issues since I was 16 when physicians stated I needed to see a psychiatrist. I am now 70 years old. I also had Dermatitis herpetiformis. I had negative tests on biopsy, blood test etc but no doctor mentioned that I needed to do a gluten challenge. I went on an elimination diet and found relief on the Dermatitis within a month. I have no doubt that I am celiac and very sensitive now. Now my issue is that I changed physicians due to retirement and he performed a blood test and included a celiac test. I was very upset because I did not request the test and had not been eating gluten for 25 years. Of course the test was negative.  My question - Will this cause me any issues with health treatment if my records now have that I dont have celiac? I like this physician and I am appalled that he performed the test. (he told me his brother is also celiac).  I feel that we are still living in the dark ages. I dont want to cause problems because I rarely need health treatment since I live a fairly healthy lifestyle.  Since I am at this age and been through so much getting to this point am I being unreasonable for being upset? I am not expecting to see this physician for another 2 months.  Need to know if I can expect issues with future treatments. How can a physician not know about the gluten challenge this day and age?   
    • trents
      Iron loss and potential celiac.

      By trents · Posted

      "Risk free genetically"? Very low risk, actually. But, we are still learning about the genetics of celiac disease. Speaking of milk, some studies show that CMP (Cow's Milk Protein) can damage the small bowel villi like celiac disease does. Also, some meds (NSAIDS, Olmesartan - a blood pressure med) and some infections can also blunt SB villi.
    • trents
      Test interpretations

      By trents · Posted

      @Aretaeus Cappadocia! The post you were looking for about omeprazol acting as an anti-inflammatory/immunosuppressant was made (yesterday, I believe) by knitty kitty. Current guidelines for the gluten challenge prior to an endoscopy/biopsy of the small bowel is the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat flour bread) for at least two weeks prior to the day of the procedure. @Ginarwebb, your tTG-IGA >250 would seem to be a pretty high test result, though to be sure of that statement, I would need to see what the lab used for a "normal" range. Do you have that number also? Different labs use different scales. There isn't an industry standard yet. The tTG-IGA is the centerpiece of celiac blood antibody testing. Your ENDOMYSIAL ANTIBODY SCR (IGA) W/REFL TO TITER (aka, "EMA") is positive as well. This is an older test, and a relative expensive one, compared to the tTG-IGA which has largely replaced. But the EMA is still ordered by some docs and is highly reliable. That both of them agree in your case and this is strong evidence that you have celiac disease. Concerning the ENDOMYSIAL ANTIBODY TITER (aka, "total IGA") being high, there are two things of importance. First, it tells us you are not "IGA deficient" such that your tTG-IGA test result is reliable. Second, a high total IGA test score can suggest other health concerns, some of which are serious. It can also mean nothing. Talk to your doctor about this. I would also suggest you research the implications of a high total IGA. In addition to IGA celiac diagnostic tests there are also IGG tests which are handy when total IGA is sub normal.  Here is an article outlining the various tests that can be run for diagnosing celiac disease:  
×
×
  • Create New...