Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Avoiding Cross Contamination!

ceceliac

By ceceliac
in Coping with Celiac Disease

Recommended Posts

ceceliac Apprentice
ceceliac
Posted

Hello, i have a big problem with cross contamination.i get glutened very often!!

i am usually very careful when cooking, i cook my own food iafter my mom finished cooking for the rest of the family because i know something may fall into my pan and gluten my food but there is always someone around in the kitchen, and they go wash their hands and spill water everywhere, or they pass food over my pan, or anything similar!! and i dont know how to stop that, i've told them thousands of times to please stay away from the kitchen while im cooking! but they dont pay attention to me.
 

Other problem is airborne gluten, my mom cooks with gluten flour very often, i keep all my stuff in my room so thats not the problem, the problem is me! i dont know if staying in my room is enough and for how long i must stay there so that the gluten goes away..
 

I was glutened on sunday but i dont know how! my mom made a gluten cake, i stayed in my room as i always do but i dont know what failed! I dont know if it was the flour itself, or some flour fell on the oil that i used later when cooking! The thing is i got glutened.
 

I was glutened once again today, and again, i dont know how. I suspect it was one of my friends who was eating cookies, then she cleaned her hands and tiny cookie particles spread around in the air (i saw that!! those were no crumbs, but tiny stuff flying around!). That sounds exagerated, i dont know if that's actually possible! But an hour later i started to feel bad! Could that be possible?

 

Please tell me if im going nuts or whats wrong xD

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

:( Having wheat flour in the house just seems like a very very bad idea. It poofs out and lands everywhere.  It's probably in the utensil drawer, landing on fruit, and inside the sugar bags or canisters.  I don't think airborne crumbs of food are a problem, but fine flour could be.  Could your mom stop using wheat flour?

 

I don't know... Perhaps there are others around here who manage to live safely around flour, but the idea of having that in my house would freak me out some.  :(  I don't think you are nuts at all.  I think you probably nailed the problem on the head.

 

Good luck.

JosieToo Explorer
JosieToo
Posted

Would your family go gluten free? When I was diagnosed my husband went gluten-free too. He just said "it's not worth risking your health for me to eat gluten". At minimum, wheat flour in the house is a no go - just way to risky. Does your family understand how dangerous it is for you to get glutened?

jennifer101 Newbie
jennifer101
Posted

my daughter has celiac just diagnosed last year october, we bought all new utensils, cutting boards, pots, pans and tupperware because gluten sticks to plastic, rubber anything that is porus (even deep scratched pans). you might want to check that out, we are not a completely gluten free household but i would say 90 %. all my daughters foods, storage and utensils are kept completley seperate from anything else. maybe the cross contamination is coming from used "glutened" dishes, rubber utensils and such....

ceceliac Apprentice
ceceliac
Posted
  • Author

nvsmom, my mom wont do that for me, she still thinks that the flour cant hurt me and that im exagerating! so i dont think she will stop using it, anyway i keep all my utensils and food in my room, including sugar, salt etc! i just shared the oil, now i wont xD

 

 

JosieToo, haha no, they wont go gluten-free for me! i tried gently suggesting that to  them, and they got angry!! so no, they gont go gluten-free or stop using flour :/ thats why i stay in my room while she cooks! i dont know if that's enough anyway.

 

jennifer101, i bought utensiles for myself and i keep them in my room, im very careful with that, i dont let anyone else use my stuff! so i dont think that could be the problem

julissa Explorer
julissa
Posted

I am sorry to hear your family won't go gluten free. I made cookies once with my granddaughter when I was new to all this, and got really sick. at the time I thought if I didn't eat them I would be ok, but didn't know then about airborne flour and it getting everywhere. that was the point in time I cleaned out my kitchen, replaced most everything and took my home gluten free. 

 

maybe you can show them some information on how this is affecting you, or your doctor can speak to them.. 

 

good luck! 

hrenee101 Newbie
hrenee101
Posted

I've been told that flour particles can stay in the air for 24-48 hours after use. We don't keep any flour in our home that contains gluten. My mom went gluten free with me. My dad gets food out when he wants something that is flour based and all his other food is in a specific cabinet in the kitchen. 

we also have a toaster oven for my dad to use when he wants his mac and cheese or anything that has gluten in it, we only use the oven for gluten free foods, so there is no cross contamination there, is it possible for you to have a separate toaster oven for you to use?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

I am assuming you are an adult?  Might be time to get your own home where you can make the rules?  Doesn't sound like your parents are interesting in changing their ways.  

 

It sounds like you have done about all you can to make your current environment as safe as possible - and it isn't safe enough.  Time to find a new and safer environment.

celiac sharon Apprentice
celiac sharon
Posted

No flour in the house. Period! If you are too young to move out Then have your doctor speak to your mother

nvsmom Community Regular
nvsmom
Posted

nvsmom, my mom wont do that for me, she still thinks that the flour cant hurt me and that im exagerating! so i dont think she will stop using it, anyway i keep all my utensils and food in my room, including sugar, salt etc! i just shared the oil, now i wont xD

 

 

Oh I'm sorry. I'm hoping that she just doesn't understand how bits of flour can make you ill.  Could you show her our replies?  Perhaps seeing it in print would help. If she does actually understand then she is knowingly doing things that could hurt her child rather than learning how to bake and cook gluten-free.  That's just sad.  :(

 

If there is no way to leave home because you are too young or in school, then you'll need to take precautions: Rewash all fruits and veggies right before you eat them.  Don't use their sugar, oil, butter, spreads, baking supplies...nothing at all.  Keep all of your food in sealed bags or tupperware.  Wash all utensils, bowls, pots, pans, and plates before using them in case flour settled on them.  Clean all surfaces and cutting boards before preparing foods.

 

The best thing to do is to leave or get them to remove flour from the house... It's just not safe.  :(

 

Best wishes.

notme Experienced
notme
Posted

gosh!  as a mom, if my daughter were diagnosed with celiac, i certainly would make sure i wasn't making her sick!  get your doctor to speak to her - i am curious as to why she hasn't spoken to your doctor already.  again, as a mom, i am interested in what a doctor has to say when it comes to my child (even young adult)  what is up with her?  :/

w8in4dave Community Regular
w8in4dave
Posted

It is so hard sometimes for someone who isn't Celiac to understand it all. Maby get your mom a book or a list of the complications due to CC? Does she remember when you were so sick before DX? We are not a gluten-free house but I did take the flour out of the house! My husband couldn't understand why. I just told him it lingers in the air. If you want to make Gravy then make it with Corn starch. 

MomBTired Newbie
MomBTired
Posted

My son has celiac, I do not and I am addicted to bread. I sacrificed my bread for my son :)  When we eat out, I get gluten. When I am at work, I get gluten. Our dinners are pretty much completely gluten free except pasta night when we cook together. He likes leftovers

LauraTX Rising Star
LauraTX
Posted

 

My son has celiac, I do not and I am addicted to bread. I sacrificed my bread for my son :)  When we eat out, I get gluten. When I am at work, I get gluten. Our dinners are pretty much completely gluten free except pasta night when we cook together. He likes leftovers

 

You are an awesome mommy :)  My husband does the same... he can get his gluten fix out of the house no problem.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Have I got coeliac disease

      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test. In...
    2. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covere...
    3. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced. Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well. Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside...
    4. Wheatwacked
      - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Have I got coeliac disease

      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins...
    5. Jmartes71
      - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Gluten tester

      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748
    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Have I got coeliac disease

      By trents · Posted

      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test.  In addition to IGA tests there are IGG tests which are particularly useful in the case of IGA deficiency.  
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      Have I got coeliac disease

      By Wheatwacked · Posted

      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
    • Jmartes71
      Gluten tester

      By Jmartes71 · Posted

      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.