Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iv Nutritional Therapy


CaliSparrow

Recommended Posts

CaliSparrow Collaborator

Hi folks,

So my doctor saw a pattern in my old labs and said my body isn't absorbing nutrients and have been this way for years. In addition, I have sleep apnea and my kidneys aren't holding onto water so I'm limited on FOOD, AIR & WATER.

The doctor is ordering a CPAP for me and has put me on weekly IV nutritional therapy along with increasing my iron, vitamin D (10,000 IU.) and probiotic supplements.

Has anyone had IV nutritional therapy and, if so, how long did it take to start feeling better? I just had my 2nd treatment and it's wiping me out. I'm less active than before and doc says to be careful. :/

Cali


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

That seems drastic! If your intestines are completely useless, why is that? Do you have a diagnosis of Chrons? I would insist he figure out why your intestines have failed. Even with Celiac disease, you should be healing and absorbing more and more after a few months.

CaliSparrow Collaborator

Honey, my intestines are't completely useless and there has been improvement over time.

Anyone out there ever done the IV nutritional therapy? If so, I'd love to hear from you. PM me if it's more "convenient".

kareng Grand Master

Honey, my intestines are't completely useless and there has been improvement over time.

Anyone out there ever done the IV nutritional therapy? If so, I'd love to hear from you. PM me if it's more "convenient".

I guess what I am saying is that TPN isn't usually done for people who can absorb some nutrients. It seems extreme for someone who is upright, conscious and has an intact digestive system. Occasionally, it is done for people with severe anorexia. But even then, they usually prefer them to learn to eat.

Maybe i am not understanding what you are having?

LauraTX Rising Star

What exact IV nutritional therapy do they have you on?  

CaliSparrow Collaborator

What exact IV nutritional therapy do they have you on?

LauraTX Rising Star

Not many people on the board have been on TPN or IV vitamins other than iron, but if you are to the point that you need it, you are probably going to feel tons better with it.  Sorry I can't give you too much more info, but I do hope it makes you a lot better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CaliSparrow Collaborator

Thank you for your response. I received iv iron in '09 but there was more of an effort to increase my hemoglobin & iron quickly rather than diagnose the cause. Anywho, it's a good thing you replied because I just realized I bought magnesium instead of iron a few weeks ago. I should be taking this iron twice a day, not magnesium. Maybe that's why I'm so tired!

I don't think I would have caught this had you not mentioned the iron. Thank you!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      27

      My journey is it gluten or fiber?

    2. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.