Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosed W Both Celiac And Anklyosing Spondolitis


amejia111

Recommended Posts

amejia111 Newbie

Hello, I'm new here and my first post. I was wondering if anybody else has Ankylosing Spondolitis also? Just diagnosed w Celiac but have had A.S. for 15 years now. Trying to figure out what symptoms are what now. Great site.

 

 

Angie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome! I do not have A.S., but I would encourage you to check out our Newbie 101 section under "Coping":

https://www.celiac.com/forums/topic/91878-newbie-info-101/

It includes valuable tips for staying gluten free as cross contamination is huge issue for those with celiac disease.

I wish you well!

LauraTX Rising Star

Welcome to the board, Angie!

 

A lot of us also have autoimmune disorders along with our Celiac Disease.  I have lupus as well as Celiac, and the advice I can offer is to let you know that you have to take care of all your conditions at once to be healthy.  So, dive on in to gluten-free eating and take it seriously, and you may see improvement overall and in things you thought were from your AS.  It will take some time to tell, but you are on the right path to healing :)

 

Feel free to ask any questions!

janpell Apprentice

I do have arthritis in my spine which is thankfully in remission. I have to expand my diet restrictions to beyond just gluten. One of my biggest offenders are tomatoes. I also have to avoid dairy, potatoes, most vinegars, most legumes, citrus, most corn chips and corn (there is still one brand I can have, yay) high sugar, soy, fermented foods, and a few gluten-free grains. I am hoping to reintroduce these but after eliminating for 6 weeks I noticed once reintroducing they are bringing back cervical pain so they are off the list again. I have been gluten free for three years and it took a long time to really see results and I do elimination diets here and there. Nothing was immediate but it results were certainly there so I am glad I stuck it through. I hope it is just a gluten thing for me and maybe in another year I can reintroduce some of these foods I have to avoid.

amejia111 Newbie

Thanks for input everybody! I'm hoping as I get completely gluten-free the rest will settle too. I've had my arthritis for almost 15 years now and meds never work for me so I've gotten off all meds to see how things shake out, and sadly now that I'm off everything I feel no different which kind of irritates me becuase I have taking all of these horrible meds for nothing but my $.

janpell Apprentice

I know what you mean about the meds not working. I used to go to support groups (online) before the diet change and many of us were/are in the same boat. Just take one step at a time, be aware and research other avenues, and you will notice results. I was gluten light for the first year before I gave it up completely. It just takes time and commitment and then habit change will happen.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      27

      My journey is it gluten or fiber?

    2. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.