Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nasal Sprays


Jen H

Recommended Posts

Jen H Contributor

Hi,

I need to take a nasal spray for allergies and was wondering if you have used any without getting glutened. I used Nasonex recently and believe I had a reaction. What do you use and do you know for sure that it's gluten-free?

Thanks,

Jen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Funny you should mention Nasonex.. A couple of years ago, pre gluten free, I tried Nasonex and got a strange pain in my upper stomach area. At the time, I thought it was weird that a nasal spray would affect me that way, but didn't think much of it.. I mentioned it to my Dr. who prescribed Flonase instead--which I used with no problem. I haven't thought about that until now, but it made me think. Anyway, what kind of reaction did you have?

Jen H Contributor

I have had terrible stomach cramps and nausea all week. I just started using it last Tuesday and within 2 days or so I felt awful. It feels like a gluten reaction. I went on a few websites to verify whether Nasonex is gluten free and one website claims it is (as of 2004), two did not list it, and the Clan Thompson books say that it can't be guaranteed as gluten-free. Hmmm....I hate getting mixed messages. I think I'll ask my doctor about Flonase instead. That was listed as gluten-free on 2 websites. I'll try to call the company as well. Thanks for the suggestion.

jerseyangel Proficient

Jen, Sorry you are not feeling well. I don't know if Nasonex is gluten-free or not, but it sounds suspicious and since there are other sprays available, I agree--I'd try something else. I don't know what your nasal/sinus issues are, but I've also had some success with plain saline sprays. They can be used as often as you need them, as they are drug free.

cornbread Explorer

I got prescribed Nasarel. I don't see it on the gluten-free drug list... Does anyone know if it's safe?

darlindeb25 Collaborator

I cant tell you what is good, but I can say I was glutened by CVS brand of nasal spray last winter--Deb

kabowman Explorer

Thansks for bringing this up. I have two different nasal sprays for my allergies which I try to avoid using since I hate them. I only use them in the spring when I am at my worst (my youngest uses his in the late summer/fall). I will need to check mine - the one I keep at work is Astelin but I keep two at home. I never thought about those!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



laurelfla Enthusiast

i use Flonase, and haven't noticed anything in the way of symptoms. i called GlaxoSmithKline and they wouldn't guarantee anything since the raw materials come from a variety of manufacturers, but "to their knowledge it doesn't contain gluten".

Jen H Contributor

Thanks for the feedback guys. It stinks that we have to be worried about nasal spray as well :blink: . This is probably a dumb question, but the saline sprays some people mentioned, are they for allergies? It sounds like they're over the counter? I guess I'm supposed to use mine each day for allergies and to prevent sinus infections. Is that why you guys use the saline spray?

Laurelfla and Jersey Angel, do you guys use Flonase each day? Still no reactions? Sorry, it's just that I'm paranoid now.

Thanks for your help!

jerseyangel Proficient

Saline sprays are sold over the counter--they are nothing but a saltwater solution that can be used to moisturize and temporarily make the nasal passage clearer. You can use them as often as you feel you need to because they do not contain any medicines. They don't treat or prevent allergies or sinus infections. I have personally found that they can be useful along with a prescription spray when needed or alone. Since I've been gluten-free, I haven't used Flonase because I haven't needed it. No matter what you deciede to use, I would still check ingred. to be safe.

Jen H Contributor

Thanks, Jerseyangel. I see my doctor on Wednesday and will call around to some nasal spray drug companies tomorrow. I'll let you guys know what I find out.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,255
    • Most Online (within 30 mins)
      7,748

    Miss Betty
    Newest Member
    Miss Betty
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right.
    • trents
      Welcome to the forum, @Godfather! "Gluten-free" is not the same as zero gluten. The FDA standard for allowing the food industry to us the gluten-free label on a product is that it cannot exceed 20 ppm of gluten. That is safe for most celiacs but not for the subset of celiacs/gltuen sensitive people who are super sensitive. "Gluten-free" wheat starch products have been processed in such a way to remove enough of the protein gluten to comply with the FDA regulation but usually do retain some gluten and we usually get reports from some people on this forum who fall in the more sensitive range that such products cause them to react. Hope this helps. So, you may just have to experiment for yourself.
    • trents
      Welcome to the forum, @Dana0207! Another diagnostic approach would be to get biopsied for dermatitis herpetiformis which would not require an extensive exposure to gluten. But it would need to be done during an active outbreak of the rash. Celiac disease is the only known cause for dermatitis herpetiformis so it would be a definitive diagnosis. It might be tricky, however, to time the dermatology appointment with the gluten exposure and outbreak.
×
×
  • Create New...