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Endoscopy Results

shiffy k

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shiffy k Newbie
shiffy k
Posted

I have been battling with my symptoms for nearly 4 years. Gastric pain, cramps,rashes,nausea, and vomiting. You all know my pain. I had my gallbladder removed in 2013 and was diagnosed with fatty liver. I am only now 23 years old and I had my primary care completely shocked. I continued to live with symptoms that often sent me to seek emergency care. They continued to poke and prod me suggesting it was stress from college and being a mother.I simply decided that it wasn't worth the struggle I was going through as not a single doctor could solve my puzzles. Nearly 6 months ago my 4 year old son started displaying the symptoms that I had been trying to overcome for the past several years. It was then that I knew I needed some kind of diagnosis. I received a referral from an urgent care clinic, because my primary care physician wanted to continue treating me. I felt I needed to see a gastroenterologist, and he quickly scheduled me for an endoscopy. I got the result today, and luckily they DID NOT find cancer; however, they say it is difficult to exclude celiac. I just left from getting a celiac blood panels that they ordered. I don't know what is happening. Are they saying that it is likely that I have celiac disease?!

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nvsmom Community Regular
nvsmom
Posted

Probably.  You probably have some intestinal damage to your villi which is usually caused by celiac disease.  The biopsy damage is rated on a Marsh scale where 3 is definitely celiac disease and 2 may be celiac disease.  A 1 shows some abnormalities but they won't call that celiac disease (yet) .  If they ordered blood tests after seeing your biopsy results, my guess is that you scored a 2 or 3.

 

This report has more info on the tests: Open Original Shared Link

 

If you do have celiac disease, get your son tested.  It's a genetic disease so he has a much greater risk of developing it than most people do.

 

Let us know what the doctors say.  And welcome to the board.  :)

shiffy k Newbie
shiffy k
Posted
  • Author

Thanks. I am driving myself crazy waiting for the results to the blood tests. EVERY time I eat I feel like I am poisoning myself. I am even more so freaking out about my son. I am worried about such a dramatic lifestyle change for us both. Then I think maybe I don't have celiac. It is a vicious cycle so I am just ready to get some answers and begin healing. I Will be sure to update on how my test results come back though. Thank you for your support.

nvsmom Community Regular
nvsmom
Posted

Worrying about the change is harder than doing it - I think.  Going gluten-free isn't a huge lifestyle change unless you eat out a lot.  That's where it changes for most people.  It is difficult to get used to cooking most nights, or making extra so you can have leftovers, than it is to get used to eating a bit less bread or baked goods... There are gluten-free substitutes out there for bread and such, although they are not fortified with vitamins like most breads are, and their fibre content is usually lower.

 

You'll get it.  The first couple of months are definitely work, but I predict you'll be pretty comfortable with the diet by time the fall rolls around.  :)

shiffy k Newbie
shiffy k
Posted
  • Author

I am officially diagnosed. I have celiac disease.

cyclinglady Grand Master
cyclinglady
Posted

Soon, you will be feeling better!  That's the good news!  

 

Read up on the Newbie 101 section under "Coping".  There are valuable tips regarding cross contamination, etc. 

 

Then get your son tested and if negative, keep testing him every couple of years.   That's what I do with my kid.  

 

Hugs! 

shiffy k Newbie
shiffy k
Posted
  • Author

Thanks for all of the support. =D

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nvsmom Community Regular
nvsmom
Posted

I hope you have a fast and smooth recovery!  Feel free to post as you get started gluten-free.  :)

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      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
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      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
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      26F!
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