Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Jax Lowell, Danna Korn?

eeyor-fan

By eeyor-fan
in Publications & Publicity

Recommended Posts

eeyor-fan Contributor
eeyor-fan
Posted

A while back in this forum there was a lot of critical things said about the Gluten Free Bible, and how it was not accurate because she recommended things like Frito Lays etc and many people reccomended "wheat Free, Worry Free" by Danna Korn. 2 Days ago I went to our local library and was looking for "Wheat Free, Worry Free". They did not have it, but the DID have another book by Danna Korn called "Kids with Celiac Disease". I checked it out and my only question is; have you read it? She, in that book, preaches the exact same things as Jax does in the gluten-free Bible; right down to Frito Lays. I've come to the conclussion to only believe about 50% of what I read from these types of books and really it is just safer to do the work on our own, instead of depending on these type of books. :(

Bridget

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommida Enthusiast
mommida
Posted

I suggest the kids with celiac by danna korn for newly diagnosed parents. More for the emotional understanding of the changes the gluten free diet brings into your household.

As for the diet, you have got to read the label. You have know the companies official policy on what they mean by other natural flavors, modified food starch, fillers and binders, or other questionable ingredients. Ingredients are subject to change.

Laura

eeyor-fan Contributor
eeyor-fan
Posted
  • Author
I suggest the kids with celiac by danna korn for newly diagnosed parents.  More for the emotional understanding of the changes the gluten free diet brings into your household.

As for the diet, you have got to read the label.  You have know the companies official policy on what they mean by other natural flavors, modified food starch, fillers and binders, or other questionable ingredients.  Ingredients are subject to change.

Laura

<{POST_SNAPBACK}>

I wasn't putting down either book as a whole, just saying that one has been bashed to death on here, while the other is praised and, really there is not that much difference. Amen to reading labels, and if you check my other posts you will see I'm always writting/ calling companies. Plus Jenvan, is my "Great Mentor" when I get confused. I think a better book being I've read everything I can get my hands on, for newly diagnosed (I know because that was me not that long ago) is "A Personal Touch on Celiac Disease" by A Personal Touch Publishing (from 2004 so it is newer, it is written by people with Celiac, and it deals with babies right up to Seniors and has something for everyone...even family of celiacs). $15 to order it into Barnes and Noble. My hubby and I took turns reading it to each other and discussing it together everyday. The only book that really made me feel like there was hope, and others going through what I was, after I was diagnosed (the only book I actually bought my own copy and still read a lot on a regular basis).

Hugs

Bridget :)

mommida Enthusiast
mommida
Posted

I will be on the look out for "A personal touch with Celiac". Thank you for the suggestion.

The Danna Korn book hits on and describes a lot of things you don't think of when you get the diagnoses.

Your family refusing to get tested even when they are experiencing obvious symptoms.

Your child's reaction, and good solution to the situation of not being able to accept a treat. I did not think I was ever going to be a parent that carries around a "goodie" bag every where we go. To trade off the gluten treat for something acceptable.

Explains some of the testing.

It gives a good foundation of resources.

Some books can be a good starting point. Any book that says you can scrape sandwich filling out of gluten bread is just wrong and dangerous for a Celiac. (That is one of the reasons a certain book has been really blasted on the forum.)

Laura

celiac3270 Collaborator
celiac3270
Posted

Danna Korn says she's trying to avoid using specific product names. And she incorporates numerous disclaimers. And with regards to the FritoLay thing--about 1/2 of celiacs look upon FritoLay suspiciously, suspecting contamination. I personally don't, but if she warns against FritoLay, that's fine cause so do so many others. NOW, Danna does not make long lists of prescription drugs in which half of the products listed to be gluten-free actually are not and those listed as not being gluten-free (such as Lipitor) actually are. Danna does not suggest that you pull the cold cuts from between the wheat bread and just brush off the crumbs. Danna does not suggest, if you're a Catholic, taking Communion and stuffing it in your pocket, nor eating the wafer if you're confronted about this practice. Danna Korn does not list references without ever visiting them, resulting in numerous misspellings of the URLs (delphiforums.com was morphed to delphiformus.com). As you can see, there's a lot more to this than Fritos. My other posts explain in greater detail.

I highly recommend Wheat-Free, Worry-Free (and it's more sophisticated than her beginners-aimed Kids with Celiac Disease). I would endorse other celiac authors, and have nothing against any of those I haven't mentioned. I do have a problem with Jax, because I think her inaccuracies are dangerous and negligent.

eeyor-fan Contributor
eeyor-fan
Posted
  • Author

As I said....I am NOT putting down EITHER author....I'm not a supreme being so I cannot judge and I do not have all the answers to life's questions. I was just saying, I think the best thing for all of us is to only believe about 50% of these books and depend mostly on what WE learn, none of us have all the answers and it would be negligent to think any of these authors do and to depend on other peoples words 100%! The only person who has the control of making US better, is US. I was not trying to start a debate and I'm sorry if I did not make my point clear enough. As I stated before, it is up to us, so there is no need to bash anyone here. We are all in this together!

jenvan Collaborator
jenvan
Posted

Bridge-

(Thanks for the compliment girl!) I have simliar thoughts to what you're saying... I think there are some things we can take as gospel...but many things, like "frito-lay" for instance, are subjective, and each of us has to use our own discernment and choose what we feel is best...after doing the research and hearing from both sides. I need to check out the personal touch on celiac book too. It must be pretty good if it sparked discussion between you and your husband !

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac3270 Collaborator
celiac3270
Posted

Yes--I've heard good things about that book (Personal touch on... Celiac Disease) but haven't actually read it. Not trying to resurrect the Jax debate--sorry--just wanted to defend Danna Korn cause I think she's pretty reliable.

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Danna is awesome (I met her in San Diego last year).

Her book is more cautious than others, but how is that a bad thing?

On the Frito-Lay thing -- they do produce the gluten-free list, but they have several facilities where items are produced on lines where gluten-friendly items were produced also.

Strangely enough, I seem to react to Lays stuff, but not to Ruffles or Lays Stax.....go figure!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,047
    • Most Online (within 30 mins)
      7,748
    Anddiana
    Newest Member
    Anddiana
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.