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What Other Labs Should We Be Checking?


CeliacMommaX2

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CeliacMommaX2 Enthusiast

My children were diagnosed in March, but only ever had the "celiac panel" done.  Should we be checking other labs?  I've gathered a few things like vitamin D and thyroid stuff... what should I make sure is checked for the follow up appointment coming up soon?

 

Thanks!


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cyclinglady Grand Master

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I hope this helps!

  • 2 weeks later...
nvsmom Community Regular

The usual things to check is bone density, anemia, potassium, magnesium, calcium, zinc, cupper, ferritin, B12, iron, D, A,  and... I think I'm forgetting something. Hmm.  Also, keep an eye out for signs of hypothyroism/hashimoto's and type 1 diabetes; both of those are the most common co-occurring autoimmune diseases.  

 

If you retest the labs, wait at LEAST 6 months.  Some people's labs start coming down nicely within the first few months but many of us take months, and even a year or two, to stop making autoantibodies.  The best test to use to check for dietay compliance is the deaminated gliadinpeptides (DGP) tests.  The tissue transglutaminase tests (tTG) are just good for seeing if the immune system has calmed down yet - this one is the slowest to change.

 

Also, make sure the parents (you) are checked every 2 years for the disease.  Just in case. :)  Best wishes.

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      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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