Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Other Labs Should We Be Checking?


CeliacMommaX2

Recommended Posts

CeliacMommaX2 Enthusiast

My children were diagnosed in March, but only ever had the "celiac panel" done.  Should we be checking other labs?  I've gathered a few things like vitamin D and thyroid stuff... what should I make sure is checked for the follow up appointment coming up soon?

 

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Here are a few links:

Open Original Shared Link

Open Original Shared Link

I hope this helps!

  • 2 weeks later...
nvsmom Community Regular

The usual things to check is bone density, anemia, potassium, magnesium, calcium, zinc, cupper, ferritin, B12, iron, D, A,  and... I think I'm forgetting something. Hmm.  Also, keep an eye out for signs of hypothyroism/hashimoto's and type 1 diabetes; both of those are the most common co-occurring autoimmune diseases.  

 

If you retest the labs, wait at LEAST 6 months.  Some people's labs start coming down nicely within the first few months but many of us take months, and even a year or two, to stop making autoantibodies.  The best test to use to check for dietay compliance is the deaminated gliadinpeptides (DGP) tests.  The tissue transglutaminase tests (tTG) are just good for seeing if the immune system has calmed down yet - this one is the slowest to change.

 

Also, make sure the parents (you) are checked every 2 years for the disease.  Just in case. :)  Best wishes.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,228
    • Most Online (within 30 mins)
      7,748

    CindyNR
    Newest Member
    CindyNR
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I noticed eating gluten-free or CGF foods have higher sugar and sodium some. No added sugar protein bars I found better with plant fiber. I wanted to know what are you go to besides whole fruits/veggies that you find are healthy for you where you can feel eating normal without hurting yourself or health. I was looking into subscription based like Thrift to see if there is something that is healthier CGF that can make me feel normal. Thanks
    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.