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What Other Labs Should We Be Checking?

CeliacMommaX2

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CeliacMommaX2 Enthusiast
CeliacMommaX2
Posted

My children were diagnosed in March, but only ever had the "celiac panel" done.  Should we be checking other labs?  I've gathered a few things like vitamin D and thyroid stuff... what should I make sure is checked for the follow up appointment coming up soon?

 

Thanks!

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cyclinglady Grand Master
cyclinglady
Posted

Here are a few links:

Open Original Shared Link

Open Original Shared Link

I hope this helps!

  • 2 weeks later...
nvsmom Community Regular
nvsmom
Posted

The usual things to check is bone density, anemia, potassium, magnesium, calcium, zinc, cupper, ferritin, B12, iron, D, A,  and... I think I'm forgetting something. Hmm.  Also, keep an eye out for signs of hypothyroism/hashimoto's and type 1 diabetes; both of those are the most common co-occurring autoimmune diseases.  

 

If you retest the labs, wait at LEAST 6 months.  Some people's labs start coming down nicely within the first few months but many of us take months, and even a year or two, to stop making autoantibodies.  The best test to use to check for dietay compliance is the deaminated gliadinpeptides (DGP) tests.  The tissue transglutaminase tests (tTG) are just good for seeing if the immune system has calmed down yet - this one is the slowest to change.

 

Also, make sure the parents (you) are checked every 2 years for the disease.  Just in case. :)  Best wishes.

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    • RMJ
      ttg iga high (646 mg/dl) other results are normal

      By RMJ · Posted

      Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result. 
    • kpf
      Vegetarians and vegans with celiac disease

      By kpf · Posted

      I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else? 
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      Fiber Supplement

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      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
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